I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: Barbinska on December 03, 2010, 06:54:44 AM

Title: Hello
Post by: Barbinska on December 03, 2010, 06:54:44 AM

My name is Barb and I have been on hemo dialysis for about 1 year and half.  I currently dialyzes in center, but am interested in starting in home dialysis as soon as I am freed next month from my HMO insurance that does not cover it.  I am also a cancer patient diagnosed with Multiple Myeloma 10 years ago.  The beast worked away at my kidneys all those years until they finally gave out.  My goal is to achieve what they call a "complete response" so that I may be eligible for a kidney transplant.  My social worker at the kidney center referred me to this website so here I am looking to glean from others and hopefully contribute as well.

Title: Re: Hello
Post by: MooseMom on December 03, 2010, 08:12:28 AM

Thank goodness for your social worker!  S/he knows what s/he's doing!  There are so many people here who are in all different stages of this process; a wealth of information and compassion and understanding is at your disposal here on IHD.  Welcome to our community!

I have never heard the phrase "complete response"...what does that mean?  How long does that take?  When might you be eligible for pre-transplant evaluation?

Title: Re: Hello
Post by: willowtreewren on December 03, 2010, 01:10:07 PM

Hi, Barbinska.

There are many folks here doing home hemo. I am a care partner to my husband and we have been using NxStage for over 2 years.

I hope you are able to make that switch.  :2thumbsup;

Aleta

Title: Re: Hello
Post by: Rerun on December 03, 2010, 02:29:48 PM

Barb, welcome to IHD.  I guess there is at least one smart Social Worker out there.  Yours!  He/She referred you to this site!   :thumbup;

You will get a lot of support from here and you don't have to pay a dime.  Just come here where we understand.

Rerun, Moderator        :welcomesign;

Title: Re: Hello
Post by: kellyt on December 03, 2010, 06:13:11 PM

 :waving;   Welcome!   I hope you can get on home hemo very soon.  Those here who do it really seem to like it.

Title: Re: Hello
Post by: looneytunes on December 04, 2010, 11:21:55 AM

Hi Barb, glad to have you join IHD.   :welcomesign;   I also am caregiver to my husband and we currently do home hemo with NxStage, which he likes a lot better than in-center.  Hope to see you posting. 

Title: Re: Hello
Post by: Nancy on December 04, 2010, 08:15:51 PM

hi!

Title: Re: Hello
Post by: Desert Dancer on December 11, 2010, 05:26:06 PM

Hi, Barb and  :welcomesign;  I think you're really going to love home hemo; it's a world's difference from in-center.

Title: Re: Hello
Post by: boswife on December 11, 2010, 07:20:42 PM

Welcome to a great place  :2thumbsup;  So glad you were guided here..  Hubby and i are in the beginning stages for home hemo as well.. NxStage..  Im so glad i had this place to come to for advice.  I know i couldnt have done it alone!  all the best to you

Title: Re: Hello
Post by: galvo on December 11, 2010, 11:03:59 PM

G'day barb and :welcomesign;.

Title: Re: Hello
Post by: rsudock on December 12, 2010, 12:21:38 AM

Hello Barb! Way to go for being such a fighter!!  :boxing;  You have overcome so much, your strength will be a great addition to the forum.

xo,
R