I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: JRA on November 20, 2010, 07:11:29 PM
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An open invitation to everyone in the IHD community :waving;
Dear IHD members,
My name is Jamie R. Anderson and I'm a graduate researcher working on a dissertation. For the past 5 years I've been researching transplant issues in Japan and around the world and am currently conducting a study (together with colleagues) on how online support groups empower patients and their families. As part of this research project, we would like to invite you to participate in a short survey to collect your thoughts and feelings on how online spaces like this forum have affected your ability to meet your health needs (or have helped you better understand the situation of family members dealing with illness). We are also interested in how participating in online forums has affected your ability to make informed treatment decisions, and has affected your relation with primary caregivers. Below is a short description of the study.
Study Description: A study of patient empowerment through participation in online support groups
Looking for:
A) Recipients, donors, family members.
B) Who are pre/post-operation.
C) Who have used online transplant forums for support and/or information gathering purposes.
D) Who are at least 16 years of age.
* We are especially interested in attracting participants who frequently read forum posts but who rarely (or never) post questions or responses.
Time Required: The survey takes roughly 15 minutes to complete.
As a token of our appreciation, all participants in this study will be entered into a drawing for one of four $25 Visa gift certificates.
Every precaution will be taken to ensure the privacy of individual forum members and to respect the stated policies of the forum. All data collected from the survey is strictly for research purposes and will be erased from our computers upon completion of the project.
At the completion of the research project, we would be happy to share any findings of the research with any interested members in the forum community.
**** Please feel free to recommend this survey to any acquaintances who meet the criteria listed above. *****
Survey links:
DONORS
https://spreadsheets.google.com/viewform?formkey=dEtReHJ4MGRBYmRfUVNyV1dmcXF5c2c6MA
FAMILY MEMBERS
https://spreadsheets.google.com/viewform?formkey=dHRLUXJVUWNIcG1MRUMxZ3dKVU4wYnc6MA
RECIPIENTS
https://spreadsheets.google.com/viewform?formkey=dGVjZkFLRE0tbV9rZ0tUME8wY0NzNnc6MA
Thank You in advance for your interest and participation! :thx;
Jamie R. Anderson
Doctoral candidate
Kyoto University Graduate School
Department of Human and Environmental Studies
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Hi everyone,
Thought I would bump this topic back up to the top one last time for those who may not have seen it. There are still two weeks remaining to participate in the survey posted above. Last week, we broke 200 responses but hope that many more people have the chance to participate.
When all the results of the survey are collected and analyzed, I will start posting the findings in the transplant section.
Thank you again for your support ~
Jamie R Anderson
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Thanks for the reminder Jamie. :thumbup;