I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Working while on Dialysis => Topic started by: sarahmanda on November 19, 2010, 11:38:58 PM
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Let me start off by saying I have a great job. As a matter of fact I am writing this from said job.
I work as a night auditor at a hotel three nights a week. I've been here for a right at a year and since I got sick my manager has been awesome about the whole thing. My only problem is before I went into the hospital I was working two jobs and my boyfriend was living with me, helping to pay the bills. I have since quit my other job and my boyfriend has moved away for school, and is not yet working. I'm barely getting my bills, as a matter of fact I had to get assistance with one of my bills this month.
Currently I make too much to qualify for SSI Disability, but if I were to drop down to only two nights a week I would make little enough to get the assistance. I'm also not recieving Medicaid because of my "high" income. In Texas I have to be making just over $700/month to qualify for SSID (then I would automatically get Medicaid to pay for my dialysis, rather than the other programs seh has me signed up for) and I currently make almost $900.
I could also work more nights per week, make more money and whatnot, but I already am exhausted after 3 nights (even though my job is relatively easy) and I am just drained when I do have to pull a 4 night week.
Honestly I would prefer to support myself, but I feel like I would be better off health-wise if I didn't push myself so hard. Part of what got me sick in the first place was working myself to death.
Oh, and I'm a weenie. I know there isn't anyone who could take the extra night (our other night auditor already complains that 4 nights a week is too much for her and she had to get a shot in her back...yeah I'm not even going to start comparing a steroid shot to the big D!), so I don't want to put the pressure on my boss. She did tell me that if I was too exhausted or if I couldn't handle it I should talk to her, but like I said...I'm a Big Fat Weenie!
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Sarahmanda,
I can understand your position to work or not work just so you don't have to be physically and mentally exhausted. I am currently pushing though with my job even though I would love to say, "yes i need to work part time." I am hanging in there as well.... do what's best for you and in the end have peace with that.
xo,
R
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I finally jumped into the "disability" pool after trying to work and do dialysis for six months. I'm better for it. Now I have time to cook and eat right and not feel so exhausted and stressed all the time.
It is up to you.
:cuddle;
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ok, im not the one on Dialysis in my family, but i can tell you something about pushing yourself because of being a ,,,well, ill call it over dedicated ;) I too was that, and i pushed myself too far. It's not good to be brave and dedicated to the point of harming yoursef. I learned something else... work goes on with or without you :o . It may be to your benifit to get yourself situated with your health, and then go back with the aloted time Disability gives you. Just some suggestion..
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Well the situation kinda actually resolved itself tonight. We had our employee Thanksgiving dinner and gone into my boss' office to get my co-worker's phone number because I had to make sure she could come in at 6 Tuesday morning so I could go to D. Afterwards my boss asked me how the audit was going and told me that several people were really concerned about me. Since I'm here by myself, have been felling kinda sick, etc. She said she was going to start training the new girl on audit! It may be a couple weeks before she can get her started on training then a little longer before she can do it herself (its not hard to do, just hard to get used to), but hopefully I'll be down to two days a week by Christmas!
Thank you so much for all the input, it was very helpful!!!
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yeah I am so happy it worked out...gives me hope that maybe my situation will improve.
xo,
R