I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: GoingThere on November 18, 2010, 05:15:16 AM
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Hi!
My D neph put me on 2x5 hrs instead of 3x4 hrs. I will be on this new regime for 14 days and then lab test will be done. If they will be ok, I will be able to stay on that regime. My neph friend doesn't agree with that decision. I must admit that I trust her, so I'm thinking to switch back on 3x4 hrs.
What is your opinion? All blood markers are ok. I'm still peeing superb.
GT
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I know that my Neph has repeatedly told me that LONGER and SLOWER is BETTER. I personally have not heard of 2 x 5 but then again, what do I know!!! I'm no DR.
I have heard of people only doing Hemo Dialysis 2x per week.
Good luck. Let us know how it works!
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Hi!
My D neph put me on 2x5 hrs instead of 3x4 hrs. I will be on this new regime for 14 days and then lab test will be done. If they will be ok, I will be able to stay on that regime. My neph friend doesn't agree with that decision. I must admit that I trust her, so I'm thinking to switch back on 3x4 hrs.
What is your opinion? All blood markers are ok. I'm still peeing superb.
GT
Do you still have some kidney function?
8)
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Hi, GT -
Well, if you look at all the available information the one constant you will find is: MORE dialysis is better. Long, slow runs allow you to take off more fluid at a gentler rate, and many of the bigger molecules that cause us problems (such as phosphorus) can ONLY be removed with long, slow dialysis.
If you'd like some reading on adequate dialysis vs. optimal dialysis, here is a really good place to start:
http://www.billpeckham.com/from_the_sharp_end_of_the/optimal_dialysis/ (http://www.billpeckham.com/from_the_sharp_end_of_the/optimal_dialysis/)
Just my :twocents; of course, and YMMV.
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i was recently switched to 4x per week 4 hours at a time. As much as i hate going i feel better and find it easier to manage fluids. I did pd daily so maybe im just used to it but i dont know that i would trust 2x5. Everyone is different though so if it does work for you go for it, you will have more time to yourself
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Well, if you look at all the available information the one constant you will find is: MORE dialysis is better. Long, slow runs allow you to take off more fluid at a gentler rate, and many of the bigger molecules that cause us problems (such as phosphorus) can ONLY be removed with long, slow dialysis.
Actually, phosphorus is a small molecule solute, but it behaves similar to a middle molecule solute in that its removal is time dependent.
8)
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Thank you, Zach - I stand corrected!
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I have no problems with fluid. I still pee a lot.
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I have no problems with fluid. I still pee a lot.
How are your phosphorus and PTH levels so far?
8)
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If you still uinate a lot, then presumably you still have a greater residual kidney function than most of us. You might well get away with 2 days a week; only you can tell if it's OK by trying it out. Write down how you feel now just before the M/T session. Give it a month and then review how you feel just before the session after the 4-day interval.
Best of luck!
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This is slightly off topic but i couldnt help but notice you mention your 'neph friend' is this the one you are dating ? because already she is influencing what you should do regarding treatment. Forget what she says and ask yourself what YOU would do. At worst go back to your neph and ask him the advantages of doing these hours.
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@Kickstart - I asked her for opinion as I asked you. I know that I'm responsible for myself and no one else. I feel extremley fine, yesterday I was riding a bike without any problems, today I worked 10 hours at my faculty and now I was dancing salsa and bachata for three hours. Not tired at all :beer1;
@Zach - my phosporus, calcium and potassium levels are within normal range. i do have a strict diet which I obey with military discipline :2thumbsup;
I think I will give my new regime some time and then I will reevaluate my decision.
Tnx.
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I think your wonderfuly lucky to have a Neph friend or like us, a tech friend! One of the techs at our unit was so knowledgeable and we trusted him (as a friend) completly! Im not saying be blinded or anything, but i feel that "friends" with knowledge are looking out for your best interest and a lucky find..
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my only concern would be the length of time between treatments will be increased if you move to 2x5 (you will only really be doing 1/6th less dialysis over the course of a week, which isn't much). I guess if your remaining kidney function is decent that perhaps you will be OK in terms of toxin build up. It sounds like you're doing so wonderfully well right now with all the stuff you are able to do (I'm tired reading it!!!) :) So glad to read - good luck with whatever you wind up doing.
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and........ btw :) , i"m OBVIOUSLY no dr OR neph, so im not promoting any which way, but as much as i would love to have hubby on the 2 day thing, and was actually pushing for it at one time, for as much as i've learned, for *us* it wouldnt be a safe thing i dont think. We're looking for daily now, but am very anxious to see how you do (if your going through with it) One thing good is that it sounds like you'll be getting good monitoring so that part should keep ya safe. Please keep us up on the outcome ok...