I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: gregory on November 03, 2010, 04:48:17 PM

Title: Bundling
Post by: gregory on November 03, 2010, 04:48:17 PM
I was recently informed I will no longer be receiving carnitor because of bundling. It has helped my neuropathy and blood pressure, I no longer almost pass out during treatment. Do the people who make these decisions ever visit treatment centers? I don't think so. I also read that U.N.O.S. is going to change their criteria for kidney transplants. Whats next! Oh yeah, Pelosi and friends want to tax my social security. I only get 850.00 a month what else do they want?
Title: Re: Bundling
Post by: Riki on November 03, 2010, 05:20:22 PM
I wish I got $850 a month.  I could almost live on my own with that..

BTW, Pelosi is no longer the speaker of the house, or won't be come January.  I doubt they'll do much in the next few months.  That's why they call it a lame duck session.
Title: Re: Bundling
Post by: greg10 on November 03, 2010, 05:33:25 PM
I was recently informed I will no longer be receiving carnitor because of bundling. It has helped my neuropathy and blood pressure, I no longer almost pass out during treatment. Do the people who make these decisions ever visit treatment centers? I don't think so. I also read that U.N.O.S. is going to change their criteria for kidney transplants. Whats next! Oh yeah, Pelosi and friends want to tax my social security. I only get 850.00 a month what else do they want?
I am sorry your center is no longer providing carnitor and I have read your complaints on carnitor here several times with interest.  I did answered previously that carnitor is L-carnitine and is sold fairly inexpensively over the counter as a supplement.  Have you tried the capsule form of L-carnitine and does that help?  The transition to bundling could have been done in stages or "all in" and that is a decision made by the the center, not CMS.  Perhaps you can find a center that will still provide carnitor.