I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: KICKSTART on October 31, 2010, 10:32:10 AM

Title: Bone pain
Post by: KICKSTART on October 31, 2010, 10:32:10 AM

Ive heard talk of bone pain with high PTH , is it at all possible for anyone to be able to describe it ?  Are there any tell tale signs it is bone pain and not something else , regardless of the PTH levels ?

Title: Re: Bone pain
Post by: paul.karen on November 01, 2010, 01:18:44 PM

I can try to explain it.  At least for me it happens in the front shinb area of my (usualy)left leg.  It is like a cramp but MUCH more painful.  It is like the bone marror is shrinking and sucking in the bone almost like an imlposion.  This has brought me to tears twice.  And i have a very high pain threshold.   It paralysis me to the point i cant move.  Karen freaks out when it happens not knowing what to do.  It ususaly stikes me when im asleep of falling to sleep.
I would rather have my fingers slammed in a door jam then have this happen.  The good news is it passes after about 15 minutes.  But im usualy afraid to move for an hour in case it might come back.

I take hectorel to keep it at bay.

Title: Re: Bone pain
Post by: KICKSTART on November 02, 2010, 01:36:08 PM

Thanks for the reply .. not an easy thing to describe eh?  Phew at least thats not what ive got  :2thumbsup; Im just having lots of problems with my neck and radiating down my back. Im ok if im mobile, but sitting for a long time drives me mad ! doh !