I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: Neo on October 19, 2010, 01:48:13 AM

Title: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: Neo on October 19, 2010, 01:48:13 AM
I know this is the dialysis bored but I have always been on here when I talk to you guys and most of my friends on here patrol this board. So Yea i cant believe its finally happening I am 93% sensitized and my friend matched me about a year ago and weve been through a ton of tests and just a lot of obstacles because of a really bad transplant center, But its actually happening on Thursday..Going to the hospital Wednesday Morning. Than the surgery is Thursday morning! Thank you all for always lending an ear! IM still going to school to be a physician assistant, so Ill have a lot more time for school. I just turned 32 so its a pretty great present! I missed out on my 20's so ill be making up for that very soon..LoL You all have helped me through some very tough times... THANKS!! And remember to always have hope. The impossible CAN happen!!!


Edited: Moved to transplant section - okarol/admin
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: lou on October 19, 2010, 01:56:15 AM
 :clap; Such wonderful news, best of luck neo! wishing you a fantastic 30's!!  :bandance; :bandance; :bandance;
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: Rerun on October 19, 2010, 02:27:22 AM
Hey, best of luck and stay with this board because we have a whole Transplant Experience section.

                :yahoo;
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: Zach on October 19, 2010, 07:25:46 AM
 :beer1; :beer1; :beer1;
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: RichardMEL on October 19, 2010, 07:36:11 AM
Great news!!!
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: Poppylicious on October 19, 2010, 07:55:06 AM
Fabulous news Neo. Hope it all goes swimmingly.

 ;D
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: YLGuy on October 19, 2010, 08:01:48 AM
 :bandance;
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: jbeany on October 19, 2010, 08:07:43 AM
 :bandance; :bandance; :bandance;

You still can stick around, you know!  We have a great transplant board here as well - and believe me, when you start dealing with the meds, you will want to compare notes with someone who has been through it already.

Congrats!
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: Marina on October 19, 2010, 08:19:24 AM
Neo,

wonderful  news  to share with us    :bandance;.   I'll keep you and  your  donor   in  my  thoughts  and  prayers  for  a  speedy  recovery.
I'm  so  happy  for you!!!!!!!!!!!!    :beer1;    :cuddle;

I  wanted  to  give you  some  green  for  good  luck    but  looks  like  my  choices  are  very minimal,  so  I  will give you  a   :christmastree;  yeah  whole  lot  better  than  the  puking  guy    :urcrazy;

Please do  come  back and  share your  experience,  I'm  awaiting  a  kidney  and  pancreas, and  like  to hear  what  other  patients  experience  so  I  can  know  what  to  expect.

Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: Sluff on October 19, 2010, 09:38:26 AM
Great news Neo!
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: boswife on October 19, 2010, 09:59:42 AM
how wonderfuly exciting..   :yahoo;   you know your going to have to keep in touch and give all the news  ;)  Im very excited.. the "30's" are going to be GREAT!!!!!  all the best..and cant wait to hear more..
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: MooseMom on October 19, 2010, 10:08:49 AM
Yes, please do keep posting after your transplant as you will have a whole new set of experiences you can share and we can learn from!  This is wonderful news, and I am so grateful to your donor.  This is just so great!!!  I can't wait to hear more!
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: galvo on October 19, 2010, 12:38:32 PM
Onya, Neo!
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: FindingNeverland on October 19, 2010, 12:42:20 PM
Congrats!!  :yahoo;
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: KICKSTART on October 19, 2010, 12:43:05 PM
You can tell how excited you are ..you've put 'fetting' instead of 'getting'  :2thumbsup; Dont forget the 30's are the new 20's !  :rofl;  :clap; :clap; :clap;
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: tyefly on October 19, 2010, 12:56:57 PM
WONDERFUL.............the best new today.....good luck to you
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: Neo on October 19, 2010, 03:11:34 PM
Thanks guys! I'm nervous about the surgery but excited about the future! And ill be posting for a long time. You guys are great! And i will be in touch. I guess I can look forward to contributing to the transplant section. Don' :yahoo;t hesitate to keep in touch with me either.. Thanks again everyone and ill update as soon as I'm able to..
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: lola on October 19, 2010, 04:22:05 PM
WOOOOOOOOOOOHOOOOOOOOOOOO NEO!!!!!! OMG I'm so happy for you!!!!!
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: paris on October 19, 2010, 04:47:43 PM
Neo!!! I am so thrilled for you!!  We will all be with you in thoughts and prayers.   I am about 6 weeks ahead of you.  The surgery is not bad at all. They asked if I wanted to see the new kidney in the operating room.  I said YES!   The pain afterwards was much less than I anticipated.  I was in ICU the first day, and only used the morphine pump 4 times in 24 hours. (apparently 16 times is normal)  Use it and stay on top of the pain.  Then percocet easily controlled the pain.  I never got above a 3 out of 10 pain level.  Getting up and walking wasn't hard either.  I was ready to try while still in ICU. It felt good to stretch and sit in a chair.  I do think the "high" you have after surgery helps a lot. I just couldn't believe it happened and couldn't stop smiling.     If I could suggest taking something with you, it would be lip balm and tic-tacs!  Dry lips and mouth was my biggest problem.  And that can't count as a problem compaired to kidney failure!!     But, do take things easy and rest. Your body needs sleep to help heal itself.   I know I am rambling, but I am so excited for you I can hardly stand it.

Is there anyone who could post here for you so we know how you are doing?   You know someone has to post a picture of you holding your "golden liquid" bag before you leave the hospital?!  That is the shot we all want to see!

Good luck, Neo.  Your world is going to change in a couple of days.  You deserve this.    :cuddle;
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: okarol on October 19, 2010, 07:05:56 PM
 :flower; WooohOOOOOOOOOOO!

Great news!

I PM'd you neo.
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: chook on October 19, 2010, 07:10:46 PM
All the best for the transplant, Neo, for you and your donor firiend (read 'hero' for friend!)  :cheer:
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: kellyt on October 19, 2010, 08:15:15 PM
Congratulations Neo!  I'm thrilled for you!  God Bless your friend.  Please keep in touch!  The surgery isn't bad at all.  I slept through the whole thing.   ;)
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: natnnnat on October 19, 2010, 11:29:53 PM
Gosh Neo, I guess its nearly time for you to go into hospital now.  So happy to hear your news, and can't wait to hear from you on the "other side".  Hope everything goes smoothly for you and your fabulous friend.  A big hug coming your way:    :cuddle;
and this one is for your donor:   :grouphug;
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: glitter on October 20, 2010, 07:32:10 AM
Tomorrow is the BIG DAY!!  :flower; :flower; :cheer: :cheer: :cheer: :bandance; :bandance;
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: Sluff on October 20, 2010, 08:34:35 AM
Woo!Hoo!  tomorrow we will be thinking of you Neo!!
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: Sunny on October 20, 2010, 05:57:17 PM
Your big day is here!
Good luck to both you and your donor.Hope all goes well and you are able to begin a renewed life.
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: Jean on October 21, 2010, 01:19:40 AM
Such wonderful news. You have made every bodys day with this. Hope it all goes well for you.   :bandance;
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: Sluff on October 21, 2010, 07:15:55 AM
Well today is the Big Day Neo and I hope all is well and goes smoothly. You are in my thoughts and prayers today.
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: YLGuy on October 21, 2010, 12:16:37 PM
Thinking about you today.  :pray;  :bandance;
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: Bajanne on October 21, 2010, 01:00:32 PM
Lots of love and caring thoughts going your way.  Please let us know SOON how you are doing.
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: kellyt on October 21, 2010, 01:51:40 PM
You're in my thoughts, Neo!   I hope you and your donor are sleeping soundly, and I hope you have a full bag of urine hanging off the side of your hospital bed!


Only on this site can we say "urine" and no one is grossed out.   :rofl;
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: MooseMom on October 21, 2010, 01:57:18 PM
Yes, urine is very important to us here on IHD! :2thumbsup;

Can't wait to hear from Neo! 
Title: Re: My LONG wait is over after 7 years IM fetting a kidney on Thursday!!
Post by: chook on October 21, 2010, 05:40:47 PM
Thinking of you, Neo. But I get confused with the time difference: here in Oz I think our Friday is the US Thursday. (Thinking about it makes mt head ache   ??? Anyway......hope all is going well for you
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: okarol on October 29, 2010, 12:30:40 AM
Got a note from Neo. He says the surgery went great. Everything is working and creatinine is 1.4. Slight problem is trouble urinating without the catheter - but he didn't pee for 6 years while on dialysis so the surgeon says hes pretty positive his bladder just needs time to strengthen up.

 :waving; I hope Neo will post soon.

Congrats!!  :bandance;

Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: Jean on October 29, 2010, 12:41:56 AM
Thats very good news!!! Hope it starts up really good soon.   :bandance;
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: kellyt on October 29, 2010, 07:57:31 AM
Great news!  As always, thanks for the update, Karol!!!
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: Riki on October 29, 2010, 08:51:12 AM
That's awesome... Thanks for the update.. I had the catheter in for a few days afterwards after both my transplants.  It's the learning how to hold it again that's hard to do.. *L*
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: lola on October 29, 2010, 08:53:44 AM
WooooooooooooHooooooooooooooo Neo!!!!!
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: MooseMom on October 29, 2010, 10:33:21 AM
Another IHD member with a new lease on life...how fantastic!
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: natnnnat on October 29, 2010, 04:32:57 PM
Gregory often tells me with great pride about the day he wet the bed - when his new kidney started working.
 :thumbup; :thumbup;
Wishing you an easy time in recovery Neo (not fun once the morphine wears off).  Gregory says it hurt for about 5 days.  Maybe Neo is out climbing buildings and dodging bullets already, its more than 5 days now (gratuitous Matrix reference)
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: boswife on October 29, 2010, 05:09:12 PM
YEAH!! thanks for the update!!  Cant wait to hear someore..
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: Neo on October 31, 2010, 12:55:02 AM
Hey guys! I'm finally home now.. I have a full bag of urine..lol kidney is making tons of it.. I joked with my donor and said damn you pee a lot.. LoL well so far everything has went great no problems the kidney is working great. It's just that I had the catheter out after the 5th day, peed ok for a few hours but than it got tougher to go and I had a huge urge to go. I went just only 75cc at a time. They seem to think it has to do with the fact I hadn't peed in 7 years, and the anesthesia may have affected the prostate temporarily enlarged it a bit so I'm on flomax. I had to get a catheter put back in cuz the pressure on my bladder was pretty painful and they didn't want to mess anything up. The docs say it's no biggie. They said my bladder will "wake up" soon.. I'm got home after 8 days in the hospital Thursday with a foley.. I get it out Monday so I'm hoping I can go ok cuz I really dot want another one put in.. Anyone else with a tranplant have that problem urinating? However they said everything looks great and they fully expect me to be just fine, they said this happens. And the important part is everything is going perfect. So hopefully Monday I'm done with this damn catheter cuz i feel great.. THANKS SO MUCH FOR THE KIND WORDS THE MEAN ALOT!! I'm so excited about the future!!!
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: Jean on October 31, 2010, 12:58:31 AM
So very happy for you Neo. Did you give your new little bean a name yet?
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: okarol on October 31, 2010, 01:03:37 AM
 :cheer: Yay PEE!
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: Joe Paul on October 31, 2010, 02:33:04 AM
I know this is the dialysis bored but I have always been on here when I talk to you guys and most of my friends on here patrol this board. So Yea i cant believe its finally happening I am 93% sensitized and my friend matched me about a year ago and weve been through a ton of tests and just a lot of obstacles because of a really bad transplant center, But its actually happening on Thursday..Going to the hospital Wednesday Morning. Than the surgery is Thursday morning! Thank you all for always lending an ear! IM still going to school to be a physician assistant, so Ill have a lot more time for school. I just turned 32 so its a pretty great present! I missed out on my 20's so ill be making up for that very soon..LoL You all have helped me through some very tough times... THANKS!! And remember to always have hope. The impossible CAN happen!!!


Edited: Moved to transplant section - okarol/admin
  WOW NEO!!!! Congratulations Brother !  So glad to be browsing my old turf, and running into this news -I got chills when I read you got another chance at living!! All I can say is welcome back, and have a great chance at making up for life on pause. You will recall things you have thought about, but most of all, please remember to thank GOD as you may know him. Be nice to keep in touch, never really got to know you Peace out
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: chook on October 31, 2010, 03:16:23 AM
 :2thumbsup; Great news, Neo. Hope all continues to go well
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: lou on October 31, 2010, 02:42:04 PM
 :yahoo; :yahoo; :yahoo; Yay brill news!!!!  :clap; :clap; Sooooo happy for you x x x  :bandance; :bandance; :bandance;
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: Sunny on October 31, 2010, 04:33:03 PM
I am thrilled to hear your transplant went well. Hope your donor is doing well too. Congratulations.
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: RichardMEL on October 31, 2010, 06:01:42 PM
ahem. Where is the required picture of you with the pee bag??!!! COME ON YOU ARE SUPPOSED TO THINK OF US!!!  :rofl;

Great news that it is all going so well - you must feel wonderful.

About your bladder - yes, I have also been told about this. When you have to restrict fluids for so long your bladder actually shrinks quite a bit.. when you suddenly try and pump so much more through it, it has to enlarge again, and this process takes time to get things back to normal.

Good luck with getting that catheter out!
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: Neo on November 01, 2010, 02:27:39 PM
Ok catheter is out I'm at home waiting to pee... It just came out please keep your fingers crossed.. I'm so nervous I don't want another catheter I'm terrified oF mot peeing again..  :pray;
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: MooseMom on November 01, 2010, 02:41:13 PM
Who know we could get so excited waiting for someone to pee?   :2thumbsup;
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: chook on November 01, 2010, 05:58:06 PM
 :bandance;  :bandance; Neo, great to hear you have a flow goin'!
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: Neo on November 01, 2010, 09:37:22 PM
Still cant pee well... Catheter is back in... :(
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: Zach on November 04, 2010, 09:29:12 AM

Still cant pee well... Catheter is back in... :(



I know this may sound gross to some, but try standing in your shower with the warm water running down your abdomen for a while.  This may relax the bladder so you can urinate --yes, in the shower.

8)
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: billybags on November 04, 2010, 01:37:27 PM
Neo hope every thing went well to-day. Thinking about you.
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: chook on November 04, 2010, 04:49:00 PM
Neo, just checking in to see how things are - sorry to hear the cath is back in  :(
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: natnnnat on November 06, 2010, 04:42:29 AM
Fingers crossed for you Neo.
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: billybags on November 23, 2010, 08:01:16 AM
Neo how are you doing?
Title: Re: My LONG wait is over after 7 years IM getting a kidney on Thursday!!
Post by: RichardMEL on November 23, 2010, 09:31:15 PM
Want to see that bag o' pee picture!!!