I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: lillinny on September 21, 2010, 08:58:53 AM

Title: I'm a NEWBEE and this is my first post!
Post by: lillinny on September 21, 2010, 08:58:53 AM

Where to start???  My husband was diagnosed with ESRD last September!  It has been one crazy year.  He started dialysis on Thanksgiving day in the center.  We completed the inhome hemo training last July.  It has been quite a process.  Many more challenges than we expected. 

I accidently found this website last week and think I read every post in the entire site!  It was so reassuring to hear that we are not alone.  Everytime I think that we have gotten past the needle/buttonhole problems and the alarm problems, something new happens! 

Currently, our latest 'issue' is that he has a major rash over his access arm.  It itches like crazy and makes him mieserable.  RNs keep suggesting cream, but nothing seems to help.  Does anyone have any ideas? 

Title: Re: I'm a NEWBEE and this is my first post!
Post by: YLGuy on September 21, 2010, 09:18:47 AM

 :welcomesign; Glad you found IHD

Title: Re: I'm a NEWBEE and this is my first post!
Post by: lillinny on September 21, 2010, 09:23:08 AM

Thank you!  Me, too!   :clap;

Title: Re: I'm a NEWBEE and this is my first post!
Post by: Dianejt on September 21, 2010, 09:24:18 AM

 :welcomesign;

Title: Re: I'm a NEWBEE and this is my first post!
Post by: ChickenLittle56 on September 21, 2010, 09:24:34 AM

 :welcomesign; to IHD

Title: Re: I'm a NEWBEE and this is my first post!
Post by: brmoore on September 21, 2010, 11:51:17 AM

Hi:
     Welcome !!!!
     When you see your Neph. ask him about the old standby Triamcinolone Cream ( Brand nane - Kenalog). I find it
really works well. You need a script, but it is not very expensive (if you get the generic).

Title: Re: I'm a NEWBEE and this is my first post!
Post by: lillinny on September 21, 2010, 12:06:05 PM

Thank you!  Will do.  I appreciate the info! 

Title: Re: I'm a NEWBEE and this is my first post!
Post by: cloud393 on September 21, 2010, 12:37:44 PM

Could he be alergic to whatever you are cleaning his arm with  prior to treatment.  I know I am alergic to the clora-prep my center normally uses.  I got all rashey and itchy from it.  Now I have to use Ex-cept or betadyne.  Even some of the tape and band aides break me out.  Just an idea.

Title: Re: I'm a NEWBEE and this is my first post!
Post by: kellyt on September 21, 2010, 01:50:59 PM

 :welcomesign; :waving;   I found th is site by accident, too.  Best accident that's ever happened to me!   Good Luck with the rash.  I'm glad he's able to do dialysis at home. 

Title: Re: I'm a NEWBEE and this is my first post!
Post by: Rerun on September 21, 2010, 03:28:21 PM

Hi lillinny, and welcome to IHD.  I'm so glad you found us.  Spread the word to your dialysis friends.

A last resort would be to see if he is alergic to the needles.  Some people have to go to titanium which are very expensive so they don't like to tell you about them.

Rerun, Moderator    :welcomesign;

Title: Re: I'm a NEWBEE and this is my first post!
Post by: lillinny on September 21, 2010, 04:20:32 PM

Dear Rerun!  Thank you.  Hopefully that isn't the case but good to know about.  Its a crazy maker!

Title: Re: I'm a NEWBEE and this is my first post!
Post by: Bajanne on September 21, 2010, 06:21:26 PM

WElcome to our community, lillinny! (that is a very cute screen name)  I am so glad that you found us.  I do hope that your husband gets relief from the itching.  I am sure that I don't have to tell you that this is a great site for information, support and encouragement.  We even have a section for you, for caregivers and loved ones - check it out.  You are now part of our IHD family :grouphug; one of the most wonderful set of people I have ever met (and I have met some of them!)
Just keep reading and keep posting.  Let us know how your husband is doing.


Bajanne, Moderator

Title: Re: I'm a NEWBEE and this is my first post!
Post by: galvo on September 21, 2010, 06:27:03 PM

G'day lillinny and  :welcomesign;.

Title: Re: I'm a NEWBEE and this is my first post!
Post by: Jean on September 21, 2010, 11:47:15 PM

  :welcomesign;

Title: Re: I'm a NEWBEE and this is my first post!
Post by: needlephobic on September 22, 2010, 01:31:54 AM

 :bandance; :bandance; :bandance; :welcomesign; :bandance; :bandance; :bandance;

Title: Re: I'm a NEWBEE and this is my first post!
Post by: Poppylicious on September 22, 2010, 02:29:49 AM

 :welcomesign;

My Blokey (husband) is on dialysis too. 

Title: Re: I'm a NEWBEE and this is my first post!
Post by: looneytunes on September 22, 2010, 08:25:37 PM

Hi Lillinney.  I also would like to say "  :welcomesign; ".