I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Lins on September 16, 2010, 06:14:17 PM
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I live with my boyfriend who was diagnosed with IGA nephropathy. His first nephrologist didn't know what to do and put him on chemotherapy for a few months which just made him feel worse along with the high doses of prednisone. Still ended up on dialysis less than a year after the chemo (Nov 2009). Now he is on the third nephrologist and second dialysis center. He is doing pretty good now that he is situated and enjoys the dialysis staff.
He was listed for cadaver transplant list May 2010. His dad was finally approved to give him a kidney last month. We are going to try to sit down this week to figure out a time to schedule it!!!! So excited! Just interested in learning all I can before we go through the transplant ourselves!
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:waving; Hi Lins..... IHD is a great place to gather info!!
That is awesome that your boyfriends dad can donate!!
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G'day Lins and :welcomesign;. It sounds that things are progressing well for your boyfriend. You'll find plenty of relevant information here.
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:welcomesign; and we look forward to following this transplant journey with your boyfriend and you. My current trx is from my sister-in-law.
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Welcome and congratulations to your boyfriend for the upcoming kidney. How is it the first "nephrologist" didn't know what to do? I'm still trying to digest that? Chemotherapy for IgA nephropathy? Is that common?
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From what I have been able to ask around and find, no chemo is not normal. He had to drive 3 hours to get IV chemo several times, and I really think it did more damage than anything.
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Welcome to the site. Glad to hear of the upcoming transplant. I finally got on the list in August of this year. I'm sure you will find all the info you need here and maybe more.
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There is a chemo drug named cytoxin that they use to try to slow the progession of ckd. I has three treatments of it five years ago. They stopped after three because it was making worse. But i was willing to try anything that they came up.
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:welcomesign; Lins!
How fabulous about the transplant match ... *fingers crossed* that they can get it done as soon as poss.!
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Welcome! I have gotten so much support here. My father was on probably the same treatment as your dad. Steroids and CellCept. He had a very hard time but is doing much better. GFR 45 is but doing "ok" so to say. My husband is on dialysis and I've learned a great deal here. Nice to "meet you".
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Hi Lins and welcome to IHD. You are smart to learn about transplantation before jumping in. This site is the best. Best of luck to all
Rerun, Moderator :welcomesign;