I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Spouses and Caregivers => Topic started by: Dianejt on September 08, 2010, 02:27:15 PM
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As of yesterday he is on Hospice. He refused to go Monday to Dialysis and we where told he could go Tuesday they had room for him. He told us he did not want to go again. He is so very tired of fighting, Friday his session was ok. He was pretty alert on the ride home but climbing the front stairs (we do have a ramp but he wanted to go in the front door) he said "this is getting harder." He slept all weekend not coming out of the bedroom too much. Last Tuesday Hannah started kindergarden. He kept saying he wanted to be up & in the kitchen so he could see her off on her first day of school. We have a nice picture of them but I forgot how to upload it on here. Now he is very much sedated. He has not conversed much today, only asking to wait till later as I was cleaning him up & changing the bed. His eyes are very watery & not in focus and he is hard to respond to me. From what I've heard he is slipping into a Ureamic coma, which they say is a very peaceful way to go. I am worried that since he did receive TPN (3 liters) over the weekend that his lungs will fill up. I wish he would have gone for that last treatment on Monday to at least remove the fluids. I don't want his death to be hard. A new medicine patch has been ordered to help with secreations.
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I wish I had the words...
If you have any concerns at all (ie regarding his lungs), please find someone who can give you information that will reassure you. I hope you are receiving all of the support that you and Frank deserve. :grouphug;
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I'm thinking of and praying for you both......
Those we hold most dearly never truly leave us... They live on in the kindnesses they showed, the comfort they shared, and the love they brought into out lives...
May you have courage during the coming days....
May God bless and protect you....
Love...
Darth....
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I have no words, either. Only tears. I pray for peace for Frank and for you. :grouphug;
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Diane, my heart is aching for you. These are the days that it is harder to be the caregiver. I will be praying for you both to be surrounded with love, peace and calm. I admire the grace you have during all of this. Frank must feel very loved and cherished.
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Thinking of you...... :grouphug;
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This must be difficult beyond words.
I truly feel for you and your family. Hospice is a very good program that will make things easier so I hope it will help your situation.
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Diane, I am so sorry. Love and peace to you and Frank.
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Diane, again, I am so sorry for this that is going on in your life.I wish you calm and peace, and for Frank too.
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My heart and prayers are with you. Bless your hearts dear ones and may Gods blessings help you through this. With love
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Diane, my mother went to live with the Lord under similar circumstances. The mode she used to end her journey was to stop eating. She had a cerebral hemmorage that left her whole left side
gone and she did not want to live that way. Hospice was very good to her and to us, her family. They saw to it that she did not suffer
and that she was cimfortable. It would be a lie for me to say that it was easy. It was not. However, iit was a comfort to us to know
that she left us in the way she wanted. I pray that you will get this same comfort while watching over Frank as he leaves you. Any questions you have over his feelings can be answered by the Hospice workers or his personal doctor. My heart bleeds for you and
I pray that the comfort you need, and the comfort Frank needs, and of course the family, will be forthcoming to you.
You all are in my heart and prayers.
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My prayers are with you both.
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I was able to change my profile picture to the last one taken of Yaya (Frank) & Hannah on her first day of school. This event seamed to be the last goal he had. How precious is that!
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What a beautiful picture of them both! I send you hugs and strength and want you to know how much I admire your courage and calm under these terrible circumstances. I wish you all peace. :grouphug; :grouphug; :grouphug;
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What a beautiful picture of them both! I send you hugs and strength and want you to know how much I admire your courage and calm under these terrible circumstances. I wish you all peace. :grouphug; :grouphug; :grouphug;
I'm not sure you would call it calm, I think it is being Numb.
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Diane,
I understand your pain, to see your loved one suffer through dialysis and you know that it isn't working for them is just agonizing. Hospice is the route to go and they will make sure that he doesn't suffer. I wish that I had used hospice with my dad instead of trusting that the Dr. would follow through on his promises to me. I know your pain, I feel it still whenever I think of my dad. I was with my dad the entire last 36 hours of his life, holding his hand, telling him how much I love him, what a wonderful dad he was to me....Be there for Frank, he will know that you are there, he will hear your voice, he will feel your love...I hope that when his time does come that it will be peaceful and calm. My heart goes out to you...Here is a hug, I hope that it helps. :grouphug; :grouphug;
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Such a beautiful photo.............
I can't find the right words... just know that so many are praying for you..........
:grouphug;
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((((((((((((Diane)))))))))))))))
at such difficult time, there are no words to express what we feel, all we can do is offer (((((((((hugs))))))))))))) and prayers! :cuddle; :grouphug;
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That is a picture to treasure. It is an awesome thing to see your grandchildren go off to school for the first time. So glad Frank was there to see her go,
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This is a beautiful picture. A very special day for them both.
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Dianejt, I am sorry this is happening to you...
(((((((((((((((((((((((((((((HUGS))))))))))))))))))))))))))))))))))
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Diane, I'm so sorry about Frank. :grouphug;
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I probably don't have the proper words to comfort you, but know that I AM feeling for you (and Frank). A friend of ours recently made the same decesion. I think he was just so tired. Our friend went peacefully actually. Kinda slipped into a coma also. They had something for the secretions as well. I was suprised to see that in your posr because that is only the 2nd time I'm hearing that term. I always felt that if somone makes such a decesion, that's truly what they want. I know that doesn't make things any better for how your feeling right now. I am slowly learning though in life, sometimes we have to put our own needs and wants aside and it's a difficult thing to do. My prayers are with your family. Hugs to all of you. I'm sorry
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Diane, I am sorry. Not sorry for what you and Frank are going through so much as I am sorry that after all you both have been through, that it has to come to a point where anyone feels that this is the best choice they can make after a lifetime of giving to society. It is sad. Please know you and Frank will be lifted up in prayer. Frank for a peaceful transition and you the strength, peace and courage to accept Franks decision and the path that the Lord has led you both.
We are here for you.