I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Jimmyboze on August 31, 2010, 03:03:03 PM
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Hi,
I have perused through this website many times but have been afraid to admit that I need support from other dialysis members. My name is Sandy and I have been a type one diabetic since age 11. I am getting ready to celebrate my 50th birthday in November. I have virtually been unscathed in diabetic complications, until the last couple of years. When I discovered I was in renal failure, it was a complete surprise. I have always tried to take very good care of myself. I exercise 3-5 days a week, try to eat the right things, worked full time as an Operating Room nurse, have 2 active kids and a husband for over 27 years. I don't have time to get sick. I resisted starting dialysis until my GFR dropped to 8. I wanted to be placed on the UNOS list for transplant, but needed to have a cardiac angiogram first. They would not do the angiogram until I was on dialysis. My GFR dropped to 6 after the procedure.
Everyone said I would start feeling better once I started CAPD. I finally relinquished in April of 2010 and began treatments. I was doing them manually every 6-8 hours, but found I was reabsorbing much of the fluid. My neph told me to do the exchanges more often, which tied me to my house every 2-3 hours. Then I switched to the night cycler. What a difference that makes
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Hi I am pretty new here myself :welcomesign;
My GRF is 6 and I will be starting HD in 2 weeks... I can relate to your feelings about being tied down or limited...
so much good information and support here!!!
Sounds like you did a fantastic job of keeping your renal function for so long!!!
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:welcomesign;
:flower;
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Hi and :welcomesign; to IHD, What part of Ca are you in? I am in Riverside, about 60 miles inland from LA.
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G'day and :welcomesign;.
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:welcomesign; :welcomesign;
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Welcome to our community! i am glad that you finally gave in and joined us. It is great that you found a modality that suits you.
This is a tremendous place for information and support. You will soon find that out. This is more than a website - it is a genuine family :grouphug; caring and sharing. And we have lots of members from California.
Please take advantage of all this site has to offer. Keep reading and please keep posting. Let us know how you are doing.
Bajanne, Moderator
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Hi Sandy and welcome to IHD. I'm so glad you found us. This site is full of information and tips. I'm glad you found that the cycler is a better form of dialysis for you. Hang in there girl. I'll be 50 next July. ;D I hope! :o
Rerun, Moderator :welcomesign;
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Welcome to our community Sandy. I hope you much information here. :bandance; :bandance;
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Hi,
I have perused through this website many times but have been afraid to admit that I need support from other dialysis members.
We are very nice people and not at all scary. I'm glad that you've come out from behind the shadows and have allowed us the opportunity to give you our incredibly vast wealth of information and truly sage advice. At the very least, you will be able to see that we know exactly how you are feeling and why. You will quickly discover that new people will join IHD and that you will be the one giving them advice and support. When they post that they have been afraid to admit needing support, you'll be able to in all honesty that you know how they feel; that will do them the world of good.
That's what communities do.
Welcome!
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Beware of Stoday. He's scary!!!
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Hi, Sandy, and welcome. I see you're in the Inland Empire. If you ever feel like taking a ride on the third Saturday of the month, Kidney Beings Renal Support Group will happily welcome you. We meet from 2 to 4 at Kaiser Bellflower, 9400 Rosecrans. It's just like IHD, but with real people. Hope to see you at one of our meetings.