I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: noahvale on August 11, 2010, 09:20:28 PM

Title: FSGS Info for RichardMEL and others
Post by: noahvale on August 11, 2010, 09:20:28 PM: ***
Title: Re: FSGS Info for RichardMEL and others
Post by: Deanne on August 12, 2010, 07:23:52 AM: I think this is the study my family participated in! I didn't know there was a website for it. Thanks for sharing it!
Title: Re: FSGS Info for RichardMEL and others
Post by: RichardMEL on August 12, 2010, 09:38:49 PM: oooh. that is very interesting. Thank you! I hope they can find the genes responsible and somehow find some kind of therapy or way to prevent this occuring in the future - that would be great!
Title: Re: FSGS Info for RichardMEL and others
Post by: noahvale on August 13, 2010, 07:00:50 PM: ***
Title: Re: FSGS Info for RichardMEL and others
Post by: noahvale on August 13, 2010, 07:01:58 PM: ***
Title: Re: FSGS Info for RichardMEL and others
Post by: Sluff on August 14, 2010, 08:05:12 AM: Might be some hope for us FSGS ers.
Title: Re: FSGS Info for RichardMEL and others
Post by: Deanne on August 16, 2010, 12:50:39 PM: Our participation was just a blood test. We were asked to participate after my nephew was diagnosed with FSGS (my diagnosis, too), showing a likely genetic link. They sent a kit, we had our blood drawn into the vials they provided and sent it back. That was a couple of years ago. From the website, it sounds like the study is still ongoing. I was wondering why I hadn't heard anything back from them because I thought they said they'd email the results. I guess we hadn't heard back yet because there's nothing to hear.