I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: gothiclovemonkey on July 18, 2010, 07:00:56 AM
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Hello, My name is Jen, aka Gothiclovemonkey, aka the Squrl
I stumbled upon this site while looking for info on pd, as i just started doing pd. I have FSGS, and no idea why. When i was 10 i lost my first kidney to a 25lb terratoma tumor in my abdomen. I found out i had kidney failure in 04, when i had my son at 5 1/2 mos due to me getting really sick.
I had been on hemo since 07, i hate it very very much. Pd has been so much better. While id rather not have to do it, im glad pd is available it really has been a life saver for me. Cant stand hemo....
I was going to davita from 07 to 09, it was a terrible experience. I ended up going to the hospital, which was in another town, the dialysis center their seemed a better fit, so i transfered, and things were much better. Then i found out about pd... :)
Im a single mom of an awesome little boy, im a dork, anything else u want to know u can ask me. :)
Nice to meet you :grouphug;
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Welcome Jen/Gothiclovemonkey/squrl - hmm I'm sure there are stories there, but I'm almost afraid to ask!! >:D
Glad to have you with us, but not glad you hated hemo, but glad you found and can do pd, and hope that works for you for a long time. Thus the glads outweigh the "not glad"s, so you better stay now!!!
:welcomesign;
RichardMEL, Moderator
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:welcomesign;
This is a very good site that offers awesome insight to the many different aspects of ESRD. Glad you are here.
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:rofl; yes there are stories there. hehe Not really sure how i got the gothiclovemonkey, but i like it anyway heh, as for Squrl, my mom... Before she died, she would call me squirrel, i changed the spelling because im fun like that :bandance;
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:welcomesign; Glad you found us. I don't even do hemo as I'm my hubby's caregiver, but I hate it also & he has only been doing it since June 11th. I wish he could have tried PD but too much scarring. Hope you post often.
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G'day, Squrl, and :welcomesign;.
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dianejt, Im surprised i got to, i have a hip to hip scar from a surgery when i was ten, and belly button to... hair line, from a c sect plus others, yet they said i should be ok....
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I was always on PD. I started young, like you, when I was 12. I've had 2 transplants so far, and I'm hoping the 3rd one comes along soon. The last time, I was on PD for almost 5 years, and I had to stop because of a really bad peritonitis episode. I seriously thought I was gonna die, it was so bad. I went on what was supposed to be temporary hemo, but about 6 months into it, they tried to place a new PD catheter, but the peritonitis had done it's damage, and there was too much scar tissue to bother. I'm actually doing better on hemo than I was on PD, although I miss the freedom that PD provides. Everyone has their good days and bad days, but I've noticed that I've had a heck of a lot more good days on hemo than I ever did on PD. Would I go back to PD if I could? In a heartbeat, but I"m doing so good on hemo, I can sacrifice the freedom I had to feel 10x better than I did before
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Welcome to our community, Squrl! So glad that you found us. I know that you are going to enjoy it here - a wonderful place for information, support and even fun. All you have to do is keep reading and keep posting. You are now part of the IHD family :grouphug; - a wonderful group of sharing and caring people.
Bajanne, Moderator
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Hey, Jen, welcome to the group. I couldn't agree more about PD. I love it and absolutely hated hemo when I had to go on it for 6 months. Glad you found us.