I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: renalpenguin on June 29, 2010, 12:42:43 PM
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I'm so confused... three months ago my phosphorus was 8.8. I got so used to no milk, no cheese, no icecream... that now I don't even want to eat those things! Then I get my new kidney Ned from my cousin, and overnight my phosphorus is dangerously low (0.5!) I've dreamed of this day forever, the day they make you eat cheese and milk and peanuts all day long... I was so excited when my dietician gave me pizza with extra cheese! But now that it's here, it's so hard! :rofl; It's so funny, but it's getting a little scary because no matter what I do (24 ounces of milk a day, the gross high dose of Nutri-Phos, and IV phosphorus) it keeps dropping. Any ideas? I've been told if I get much lower I could get really sick. I never thought it would be this big a problem! Isn't life with kidney disease strange? My family just got used to the idea I couldn't have most dairy, and now they're so confused!
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Maybe your new kidney is "leaking' phosphorus.
http://ndt.oxfordjournals.org/cgi/content/full/16/2/378
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My first month after, my throat kept closing up on me when I started to chug down water. A nearly 4 year habit of tiny sips is hard to break! Ahh, but I do love my cheese now! "Cheese, Gromit, cheese!"