I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: KICKSTART on May 28, 2010, 07:23:56 AM

Title: Someone , somewhere, really hates me !
Post by: KICKSTART on May 28, 2010, 07:23:56 AM
Im convinced ! From the very very start along time ago , everything to do with dialysis has been a rough ride and today has just about taken the biscuit. How i havent crumbled before now i just dont know ..i think i go into zombie coping mode or something ? Well today i was going for my mapping for my fistula . Having one done is a straight forward day procedure done under a local. OOOOOOh nooooooo not for me ! I have to have major surgery under a general, they are going to cut me from elbow to armpit , not only do they have to make a fistula but they have to LIFT it as well ! I really , really do give up ! Came home fed up, faced with this news only to get a phone call as i walked through the door, oh we forgot to mention ...not only do we have to do that but we have to take your line out of your neck and put it in the opposite side , you cant have a line and a fistula on the same side.  I give up , i just give up , i dont know what else to say !  :waiting;
Title: Re: Someone , somewhere, really hates me !
Post by: Darthvadar on May 28, 2010, 07:42:29 AM
Oh Lord!!!!!....

Poor KS..... You've REALLY been through the mill, haven't you???.....

On the plus side, if you have this done soon, it'll be done and dusted... You'll be able to dialyse easier, and you'll be able to enjoy your new garden, with a little bit of better weather (hopefully).... The idea of the elbow to armpit sounds daunting, and that was the plan for Mum.... When they operated though, they put the fistula into her wrist... It was an unmitigated disaster!... If I could get hold of the person who did that, I'd be shoving dialysis needles up their.... >:D...  Well, you get the picture!!!!!.... Fistula never worked properly... From the people I've spoken to, the one in the upper arm seems to work much better!...

I hope everything goes very well....

Keep me informed, please!...

Love and hugs....

Darth...
Title: Re: Someone , somewhere, really hates me !
Post by: jbeany on May 28, 2010, 07:54:42 AM
 :grouphug;
Title: Re: Someone , somewhere, really hates me !
Post by: cookie2008 on May 28, 2010, 09:00:44 AM
I had that surgery done to both arms, finally the one in my upper left arm works, 3 surgeries on the right arm, 2 surgeries on the left.   :grouphug; :grouphug; getting it done all at once is the way to go.
Title: Re: Someone , somewhere, really hates me !
Post by: KICKSTART on May 28, 2010, 09:52:02 AM
I had that surgery done to both arms, finally the one in my upper left arm works, 3 surgeries on the right arm, 2 surgeries on the left.   :grouphug; :grouphug; getting it done all at once is the way to go.


GULP!   :pray;
Title: Re: Someone , somewhere, really hates me !
Post by: MooseMom on May 28, 2010, 09:55:31 AM
[Victor Meldrew] I do not BELIEVE it![/Victor Meldrew]

Doesn't it make you wonder what's gonna happen next?  I mean, really...
Title: Re: Someone , somewhere, really hates me !
Post by: Poppylicious on May 28, 2010, 10:01:32 AM
Awww, you poor thing.  My Blokey feels the same way, not that that's any consolation for you (but it does mean there are at least two of you who somebody somewhere really hates!) ...

*huggles*
Title: Re: Someone , somewhere, really hates me !
Post by: pdpatty on May 28, 2010, 10:23:11 AM
UK is totally strange. My cath was on my right and so is my fistula. When they started using my arm,they used one needle and one side of the cath.

Now I have a great neph and an excellant vascular surgen. If this couldn't have been done,they wouldn't have done it.

I do believe UK is still in dark ages where dialysis is concerned.
Title: Re: Someone , somewhere, really hates me !
Post by: okarol on May 28, 2010, 11:16:42 AM
Jenna also had vein mapping done recently and the recommendation was the same. They need to lift a vein from deep in her arm to create the fistula. They wanted to schedule it right away but she needs her wisdom teeth out now so will do the fistula surgery later.
 :cuddle;
Title: Re: Someone , somewhere, really hates me !
Post by: Stoday on May 28, 2010, 12:48:35 PM
I'm sad that you should have such a hard time KS.

You must have really upset the gods and they've got it in for you.

Ulysses survived and I expect you shall too.
Title: Re: Someone , somewhere, really hates me !
Post by: galvo on May 28, 2010, 01:32:52 PM
That's rotten!
Title: Re: Someone , somewhere, really hates me !
Post by: Jean on May 28, 2010, 04:00:30 PM
So sorry for you KS.  :grouphug;
Title: Re: Someone , somewhere, really hates me !
Post by: natnnnat on May 28, 2010, 06:29:25 PM

I had that surgery done to both arms, finally the one in my upper left arm works, 3 surgeries on the right arm, 2 surgeries on the left.   :grouphug; :grouphug; getting it done all at once is the way to go.

GULP!   :pray;

My sentiments exactly.  Cookie, you are hard core.  The cookiemonster.
Title: Re: Someone , somewhere, really hates me !
Post by: Quickfeet on May 28, 2010, 08:06:36 PM
All I can say is,  :grouphug;
Title: Re: Someone , somewhere, really hates me !
Post by: sullidog on May 28, 2010, 08:14:51 PM
Any reason why they can't keep your cath in the same side as the fistula? My graft is in the same side as my catheter, when I asked my vascular surgeon if he'd have to move it when he put it in he said no it will be fine, and it still works fine.
Troy
Title: Re: Someone , somewhere, really hates me !
Post by: carla13 on May 28, 2010, 08:29:21 PM
I think that at one point or another every dialysis patient has felt this. Some times it feels like it will never end until they've cut you up from head to toe.

Hang in there, once you're dialysing regularly hopefully things will settle down for you and (dare I say it?) you might start to feel a little better!

hugs
xx
carla
xx
Title: Re: Someone , somewhere, really hates me !
Post by: KICKSTART on May 30, 2010, 05:32:32 AM
Any reason why they can't keep your cath in the same side as the fistula? My graft is in the same side as my catheter, when I asked my vascular surgeon if he'd have to move it when he put it in he said no it will be fine, and it still works fine.
Troy

All i was told was they need to be in opposite sides to give the fistula the best chance !
Title: Re: Someone , somewhere, really hates me !
Post by: KICKSTART on May 30, 2010, 05:34:02 AM
I think that at one point or another every dialysis patient has felt this. Some times it feels like it will never end until they've cut you up from head to toe.

Hang in there, once you're dialysing regularly hopefully things will settle down for you and (dare I say it?) you might start to feel a little better!

hugs
xx




Thanks for the well wishes, but ive been doing dialysis for over 6 years now ! , so i would like to think im dialysing regularly  ..hehe !
Title: Re: Someone , somewhere, really hates me !
Post by: Ken Shelmerdine on May 31, 2010, 02:10:49 PM
not only do we have to do that but we have to take your line out of your neck and put it in the opposite side , you cant have a line and a fistula on the same side.  I give up , i just give up , i dont know what else to say !  :waiting;

Kickstart
My lines were in the right side of my chest and my fistula is in my right arm! Now maybe it's that your cicumstances are different because the vein needs lifting but if not then somebody has told you porkies!
Title: Re: Someone , somewhere, really hates me !
Post by: kitkatz on June 05, 2010, 11:55:03 PM
I hope things get better for you Kickstart   :grouphug; :grouphug;
Title: Re: Someone , somewhere, really hates me !
Post by: Bajanne on June 06, 2010, 12:12:14 AM
My caring thoughts are with you. :cuddle;  How is it going now?  PLease give an update.
And by the way, they are people all over the world who love you.  :grouphug;
Title: Re: Someone , somewhere, really hates me !
Post by: KICKSTART on June 06, 2010, 04:44:28 AM
No news at the moment , waiting to see if i can go back to the surgeon and get him to look at my left arm instead. I am left handed, but somehow i will manage if it saves all this messing with my right arm !
Title: Re: Someone , somewhere, really hates me !
Post by: sullidog on June 06, 2010, 04:51:51 PM
I would say well I know people that have their catheter in the same side as their fistula and see what he has to say to that.
Troy