I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis - NxStage Users => Topic started by: cookie2008 on May 17, 2010, 09:23:47 PM
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On 5/12 I was put in the hospital with a surface infection on my arm thankfully it did not effect my fistula strong antibiotics, On 5/14 they told me my labs were so good I could skip dialysis, we didnt they took me down and I did 4 hours of hemo what a difference, the next day a different neph came in and told me since I do it daily he had me do another 3 hours of hemo, they put me back on all my restrictions, wiped me out, got out on 5/16 back to my NxStage and no restrictions and my regular neph. :bandance; :ba
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Hospitals don't understand daily dialysis. If they did, 3 times/week would be seen as inadequate. Especially for someone trying to get well. However, your hospital seems to be odd in that they let you do dialysis two days in a row. Unfortunate for you it seems, that they didn't modify their machine to do a gentle NxStage-like treatment. They put Jenn on the renal diet every time she goes into the hospital. If they only knew what daily dialysis does. Old fashioned neph's like to brag about urea clearance from their machines like it is your only problem. There's more to life than urea clearance.
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I heartily agree Zog! Last week when hubby was in the hospital and they dialyzed him, they would not listen when we gave his dry weight. The fact that he was below his dry weight when they hooked him up didn't seem to faze them. They set their machine to pull another 2 kilos over our continual objections. I fiinally caught up with his neph who was making rounds and asked him to stop them from pulling fluid, which he immediately did. Of course it p*ssed off the tech but...oh well. I tried to explain that we do daily hemo at home and he had been sick but...it fell on deaf (or dumb) ears.
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This is probably what I fear most about starting all this, having to deal with medical "professionals," so many of whom just can't get it through their heads that patients can know more than they do about their own condition and what needs to be done.