I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: kidneyboytrip on April 15, 2010, 09:49:27 PM
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does anyone miss milk as much as i do?
EDITED: Merged Introductions- Rerun, Moderator
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Dealing with poorly trained dialysis staff can b not only frustrating it can b deadly allways remember to watch your tech make sure that they use universal precautions and if anything seems as if it is not right to u question it a good tech will not b offended but will be happy to explain or answer any questions u may have.
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Me! I miss milk sooo much. Rice drink on my cereal is palatable but it is not milk.
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Dietician came to me yesterday with a list of breakfast cereals I should consider (I don't tend to have brekky because of the milk thing - which I told her)..... so yeah I'm going to eat this stuff without milk?
I'd rather a piece of toast.
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Hello everyone u can call me kidneyboytrip im new here i hav been on dialysis 4 what will soon b 12yrs i hav had 1 transplant it lasted for 4 years but ended badly im am also a certified hemodialysis tech{yes i am aware of the irony} i hav over the years learned to manage my kidney disease and i kno that u all kno it aint easy i am very knowledgeble and willing to help by answering any questions anyone may have i am currently on in center hemo but have done home hemo w the nxstage machine and both capd and ccpd im in the process of returning to ccpd i hope i can be helpfull so go ahead ask me anything
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Hello kidneyboytrip! Welcome to IHD. Yes I miss milk the most. I would love to buy a gallon and chug it down.
I'm glad you are a trained technician. You may get some questions from me.
Thanks for linking up with us.
Rerun, Moderator
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Hey rerun any time questions r welcome i love the site havin a lil trouble w nav but i must admit most of the time im online from my mobile nice 2 meet u i'll b around
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Is it bad to have like a cup of milk on ceral once a week??
Yeah i miss ice cold milk & Cheese & Ice Cream.......
I heard soft cheese like philly cream cheese is ok?? Is that even cheese though?
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Do u know what really gets under my skin,its when i mention peritoneal dialysis or home hemo to a fellow dialysis patient who has been on dialysis 4 several yrs and they reply whats that or "oh no that sounds too dangerous i could never do that".Now im not angry with them{well a lil bit}and i know its good 2 hav a healthy fear but mostly angry at a system that cud allow a person 2 b on dialysis 4 years and never explain 2 them all of his or her options in center hemo is not the only game in town.Now with that said i must also remind everyone to please be ur own advocate put the social wrkr 2 wrk on ur behalf read everything u can about kidney disease dont leave your care completely in the hands of your tech remember ur in charge of ur dialysis treatments even if u have 2 ruffle a few feathers n step on some toes bcuz if u dont maybe no one else will I hope i dont come off as angry or preachy,just lost a few good friends to dialysis so make ur dialysis work 4 u bcuz if u dont ur killing urself.....Later guys
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I don't miss it at all. Milk use to cramp me up real bad.
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im not a doc but a cup of milk once a wk seems reasonable...but only if ur phosphorous is within acceptable range n of course dont forget 2 take ur binders
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After my transplant, I am going to order two items. Firstly, a chocolate milkshake and second: a large glass of beer. :beer1;
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Hey Kidneyboytrip, we usually only introduce ourselves once. So I merged your 3 topics into one. Also we like to use proper English. We try!!! That doesn't mean it is perfect, but people read this from all over the world and may not know that u is you and r is are. Please try to spell things out and the spell check at the bottom of the post box is awesome.
Thanks you,
Rerun, Moderator
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cheese is cheese philly or otherwise and in renal patients high phosphorous foods should be eaten in moderation if at all but a little cheese here and there should not b a problem as long as you remember 2 take your binders.
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There is nothing you "have" to miss. All foods are still available; you just can't have them every day. Drink your milk and take extra phosphate binders. I have never stopped drinking milk or eating cheese. Strangely enough, nearly a year ago my phosphorus dropped to 2.2 and they took me off binders. Although it started to climb back up, it has never exceeded the max by enough to put me back on binders. Every body is different!
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yes, everyone is different. what i miss most is the 3-5 32oz mugs of water i used to drink every day. but then as a trainer i talked all day long. after 4 years, there isn't anything i don't eat. there are however some foods that i don't eat very often. with nocturnal my levels are often so so i'm told to go home and eat something "bad" for me. now that i can live with. a good example is...as long as you know what a little cheese means, you should be ok. and never put anything in your mouth without taking your binders and that includes the snack you have a 2pm or the pie you have 3 hours after dinner.
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I always take my binders. My phos level is 4.2 right now.