I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: bonbora on March 30, 2010, 05:59:57 PM
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Hi my name is Laura and I live in the U.K in Nottingham.
I am really glad I have found this site as at the moment I am feeling a bit 'lost'. I got kidney failure due to diabetes and pregnancy when I was 22yrs old, I am now 32. At first I had PD, and if I am honest I hated every minute of it! But then my tube stopped working and I found out I could manage without dialysis for the next few years.
5 yrs ago my auntie gave me her kidney *blessing*. It went abit wrong after a year due to medication problems but it hung on in then until now. Today is my first day back on PD :'(
I got alot of other health issues due to the severity of the transplant drugs. My legs have broken 6 times just by walking on them because of the osteoporosis I have. I am currently in a full length leg brace as they recently went into my knee and rebroke it to try and align it properly. I also have a chest disease called bronchiectasis...which is down to low immunity but I am coping with it O.K.
I have quite a few other problems due to the diabetes but I will bore you no more. I am sorry if this sounds like one big moan ... I don't meant it to, I just wanted to explain my situation to you all.
Thanks for reading, hope to get to know you all
Laura :waving;
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Welcome to the site!
You are in the right place and what you have to say will never be boring!
The people here are friendly, knowledgeable and healing!
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G'day Laura and :welcomesign;. Great to have you on board. You'll find plenty here and, with all the experience you have, you'll have plenty to offer too.
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:welcomesign; Laura
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Welcome Laura - my that's a lot to go through at such a young age. Hopefully you are on the up swing now and things will improve!! I am sure you can add a lot to our board with your experiences!
:welcomesign;
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Hey laura,
Sorry to hear about your problems ..but the people on here are lovely and do listen to our rants and raves. Hang in there kid and sending cyber hugzzz :cuddle;
Steve
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Hi Laura and welcome to IHD. Sounds like you have been through the mill, so make yourself at home and ask all the questions you want to.
Love, Mimi
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:welcomesign; Laura I also are from the :ukflag; You will just love the people on this site they are all so very very helpful.
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:welcomesign; to IHD, wow you have had a long rough road. But, feel free to rant, moan, groan and complain, that is what we are her for. Glad to have you here with us.
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:welcomesign; Laura, and you've every right to moan although your post did not strike me as such. I hope you'll find this site to be as helpful with information and support as I have and I look forward to getting to know more about you and your experiences with ESRD.
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Hi Laura, So glad you found us! You to ahead and moan--you have certainly gone through so much. This is a wonderful site for support. It is one place you can go to and people understand what you are talking about. I am looking forward to reading more of your posts. Welcome to IHD :2thumbsup;
paris, Moderator
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Oh my goodness gracious...you've had a right old time, haven't you? It must be really hard to go back on dialysis when you've been able to enjoy some time away from it all. Do you think you might risk transplanatation again? Are you going to stay with PD, or do you think you may give hemo a try? Whatever you do, just know that there are plenty of people here who have been through the wars, too, so you are by no means alone. We wish you the best of luck and hope that you will come back with frequent updates.
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Thanks everyone for such a warm welcome.
To answer a few questions...Yes I have had my work up for another transplant and I am fit enough so this time I am going for a kidney/pancreas. It does scare me as I have been told the statistics are 1 in 10 will die in the 1st year *yikes*
As for hemo...that frightens me too!
I am not sure why. I think the grafr that I would have to have and having a huge needle all the time is scary to me. Plus I would like to be in control, i.e blood pressure, taking off fluid etc..and here in the U.k there isnt funding for me to have a home machine so it would all be down to the nurses.
At the moment I am doing 4 exchanges a day with the hope off going on to the night time machine.
I love reading everyones posts and I hope to add some in the future
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Hi Laura and I also welcome you to IHD! You have been through a lot and sounds like you are handling it so well. I wish you the best and am looking forward to reading your posts.