I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: sico on March 15, 2010, 11:47:02 PM

Title: My turn soon.
Post by: sico on March 15, 2010, 11:47:02 PM
Received a call from my transplant nurse today.

Thursday April the 8th is the day my father will donate a kidney to me.
Get admitted to hospital the day before.
So just over 3 weeks away.
Have some blood test done the week before.
No more Baxter deliveries, as i have enough to last until then.

I think i am as ready as i will ever be and thanks to everyone on IHD have a fair idea of what i am in for.
Wish me luck.
 :beer1; :beer1; :beer1; :beer1;


Title: Re: My turn soon.
Post by: Jean on March 16, 2010, 12:47:57 AM
Great News!!!!! :bandance; Hope all goes well for you. You will keep us posted, I hope. We will be thinking of you and  :pray; :pray; :pray; for you.
Title: Re: My turn soon.
Post by: okarol on March 16, 2010, 01:14:04 AM
 :cheer: Yay!! Best wishes to you both!  :clap;
Title: Re: My turn soon.
Post by: galvo on March 16, 2010, 04:19:12 AM
Good luck, buddy!
Title: Re: My turn soon.
Post by: Sluff on March 16, 2010, 04:43:48 AM
Awesome!
Title: Re: My turn soon.
Post by: monrein on March 16, 2010, 04:46:46 AM
Very exciting!  All the best to you both and remember to update us as things move along.
Title: Re: My turn soon.
Post by: Sunny on March 16, 2010, 01:12:27 PM
I'm very happy for you. Hope all gies well for you both.
Title: Re: My turn soon.
Post by: st789 on March 16, 2010, 01:21:58 PM
Best wishes.
Title: Re: My turn soon.
Post by: Romona on March 16, 2010, 03:00:54 PM
 :bandance; Best Wishes! I am so excited for you!
Title: Re: My turn soon.
Post by: sullidog on March 16, 2010, 04:37:10 PM
Great news! Let us all know how it goes.

Troy
Title: Re: My turn soon.
Post by: texasstyle on March 16, 2010, 04:58:56 PM
Wow, that must be joyously overwhelming but I imagine a little scary at the same time. The reality of it all. You have an actual date set to do this. My thoughts and prayers with you and your family that things go as smoothly as possible for everyone involved.
Title: Re: My turn soon.
Post by: Chris on March 16, 2010, 10:26:18 PM
Good Luck and time will fly by Sico. Hope you both have a good recovery.
Title: Re: My turn soon.
Post by: sico on March 16, 2010, 11:52:20 PM
Thanks everyone, i will be updating for sure.

I'm just so happy to be an IHD member right now and that i get to share my experience with you all.

Title: Re: My turn soon.
Post by: -Lady Noir- on March 17, 2010, 12:11:07 AM
 :yahoo;
You know how super happy i am for you Brad! I told Mike about your awesome news, and he wishes you the best  :cuddle;

Title: Re: My turn soon.
Post by: sico on March 17, 2010, 01:03:15 AM
:yahoo;
You know how super happy i am for you Brad! I told Mike about your awesome news, and he wishes you the best  :cuddle;



Yeah thanks Nik, i so cannot wait for when Mikes turn comes around.  :beer1;
Title: Re: My turn soon.
Post by: RichardMEL on March 17, 2010, 03:47:14 AM
wow! so soon! That's awesome!!!!!

Best wishes mate!
Title: Re: My turn soon.
Post by: billybags on March 23, 2010, 11:45:37 AM
sico, I bet you can not wait for April, I wish both of you all the very best.     :yahoo;
Title: Re: My turn soon.
Post by: paris on March 23, 2010, 03:39:21 PM
Wonderful news.  I'll be keeping you and your Dad in my prayers.   This is an exciting time.   :2thumbsup;
Title: Re: My turn soon.
Post by: sico on April 09, 2010, 05:35:38 AM
Well everyone, i now officially have 3 kidneys!
It all went as planned. Had my first lot of immune suppressants on Wednesday night then my last pd run which left me dry. I felt really off before surgery, sooo empty.
Dad is doing well. He was wheeled into my room today in a wheelchair. I was up walking around but not allowed out. The docs/surgeons were really happy with the kidney. Got my tenckoff removed at the same time, yay!
Im 10kg heavier than yesterday and have some odd swelling, hope this goes down as its really uncomfortable. Other than that i feel good.
Thats it for now. Typing on the mobile sucks.
Title: Re: My turn soon.
Post by: -Lady Noir- on April 09, 2010, 12:50:38 PM
OMG!! I'm super thrilled for you, and suuuuper thrilled i know how you are doing too  :yahoo; [Was so excited when i saw this thread updated,  :lol;]
Glad to hear your Dads doing well too.

As you know, thinking of you ..
 :-*
Title: Re: My turn soon.
Post by: monrein on April 09, 2010, 02:16:53 PM
Fabulous news...I can relate to the swelling due to water weight but the "odd" swelling you refer to is, I'm guessing here, of some body bits that us girls are not dragging around with us.   :o
Title: Re: My turn soon.
Post by: MooseMom on April 09, 2010, 02:33:20 PM
How many ways can I say "wonderful"!?   :clap;
Title: Re: My turn soon.
Post by: galvo on April 09, 2010, 03:22:09 PM
Good stuff!!
Title: Re: My turn soon.
Post by: RichardMEL on April 11, 2010, 08:15:51 PM
absolutely awesome mate!! Great news that both you and your dad are doing well. Hope you have many many years of happy times with your dad's kidney!!!! Fantastic!  :2thumbsup; :2thumbsup;
 :yahoo; :yahoo; :yahoo; :yahoo; :yahoo; :yahoo;
Title: Re: My turn soon.
Post by: sico on April 14, 2010, 12:15:37 AM
Yeah Gail you were right.

Well i got home lastnight, 5 days post op and feeling good beside the fluid. Still 6.7kg over my pre op dry weight.

Yesterday my creatinine was down to 117 and urea 6.7. My phos has been low so may have to start a supplement for that.

Cant wait for the fluid to go and the drugs to settle down.

Here's a few pics.

!. Dad and myself the day before the op.
2. Pee bag, sorry guys didnt get golden before cath was removed.
3. Dad and myself post op, day after surgery.
Title: Re: My turn soon.
Post by: edersham on April 14, 2010, 05:43:50 PM
I had My transplant Mar. 23 and three days later My creatinine was 132 and I was 6kg above My pre op dry weight. 19 days later my creatinine is the same and My weight is 2kg below my pre op dry weight. Sounds like your doing great. Best wishes.

Ed :clap;
Title: Re: My turn soon.
Post by: SONIA on April 14, 2010, 09:57:24 PM

Just read this post ........really very happy to read it . Hope dad is ok too  :cheer:
Title: Re: My turn soon.
Post by: galvo on April 15, 2010, 12:10:15 AM
You and your Dad look cool in your gowns and stockings!
Title: Re: My turn soon.
Post by: -Lady Noir- on April 15, 2010, 12:22:46 PM
You and your Dad look cool in your gowns and stockings!

 :laugh: :lol;

Love that photo.
Wow, creatinine keeps getting lower. And Urea, thats awesome!

Title: Re: My turn soon.
Post by: RichardMEL on April 15, 2010, 08:46:26 PM
so fantastic - I'm so rapt it's a success so far and you are home inside a week - drink something cold for me!!! :)
Title: Re: My turn soon.
Post by: RichardMEL on April 15, 2010, 08:47:17 PM
PS: with the low phos... have PIZZA!!! lol. extra cheese!  :rofl;
Title: Re: My turn soon.
Post by: Poppylicious on April 16, 2010, 06:28:06 AM
This is so fantastic!  (Sorry I'm late; I rarely venture into the transplant bit!)

Love the photos!

Hope you're doing well.

 ;D
Title: Re: My turn soon.
Post by: sico on April 16, 2010, 11:17:23 PM
Thanks everyone. Dad had a couple beers lastnight so doing very well.

My creatinine is 97 a week out from surgery. Only a couple kg's over my pre op weight now so feeling really good.

The other night i only had 4 and half hours sleep and woke up fresh as a daisy on 'D' i'd get way more and still be tired, it's unreal.
Title: Re: My turn soon.
Post by: jennyc on April 17, 2010, 05:09:28 AM
Hey, just found your thread!!!!

Congrats Brad.

Don't you just love those stockings? i got into so much trouble because i'd get really hot (cause of the ATG and the Tac) and kick them off.

So glad you're doing great!!!
Title: Re: My turn soon.
Post by: RichardMEL on April 18, 2010, 08:23:51 PM
ok now I'm starting to get jealous!!! Or maybe it's just envy.  :rofl;

sounds so awesome!!! I want that 'fresh as a daisy' feeling too!!! Perhaps I need to shower more?  :rofl;
Title: Re: My turn soon.
Post by: okarol on April 25, 2010, 10:55:30 PM

Glad to hear you and your Dad are recovering well - yay!!  :clap; :clap; :clap;
Title: Re: My turn soon.
Post by: karen547 on April 26, 2010, 07:00:26 AM
Congrats to both of you, I am happy you both are recovering well.  :flower; :cheer:
Title: Re: My turn soon.
Post by: sico on April 29, 2010, 04:43:29 AM
Thanks.

3 weeks out from the op and feeling really good.

Next to nil side effects, on 25mg of pred in the morn, 210mg cyclosporin morn and night then 1000mg cellcept morn and night.
All up more than 30 pills a day at the moment.

So great being off "D". I have had a faultless run so far.
I think my daily transplant clinic visits will be decreased after 4 weeks. As that part is becoming a bit of a drag.

Anyways thats it for now.

Ps Dad is doing great
Title: Re: My turn soon.
Post by: galvo on April 29, 2010, 03:07:25 PM
Excellent news, sico.
Title: Re: My turn soon.
Post by: MooseMom on April 29, 2010, 03:13:10 PM
How wonderful that you get a whole new lease on life!  And your dad must be ecstatic to be able to help his son in this way; he's a hero.  What has been the best thing that has happened so far since your op?  What have you most enjoyed?  A previously forbidden food?  More energy?  Freedom?

Congratulations...we are all so very pleased for you!  Please come back often and tell us how you and your dad are doing.  Such good news is always so welcomed! :beer1;   (You can have beer now!)
Title: Re: My turn soon.
Post by: -Lady Noir- on April 29, 2010, 04:52:42 PM
Great to hear from you Brad. Been wondering i must admit!

Title: Re: My turn soon.
Post by: paris on April 29, 2010, 05:52:49 PM
So glad you are both doing so well.  You give us all hope   :2thumbsup; 
Title: Re: My turn soon.
Post by: RichardMEL on April 29, 2010, 08:30:18 PM
So happy about this (and yes, a tinge envious it must be said!). You must be relishing the energy, more normal diet and fluid intake allowed and all that, getting back on your bike and LIVING that all this is bringing. Yes, I am sure the clinic visits are a drag, but way less of a drag than hooking up to that machine every night I bet!

Keep up the good work - both you and dad!
Title: Re: My turn soon.
Post by: carla13 on May 02, 2010, 08:29:23 AM
How wonderful your dad is and how he must love you to do this for you!

I wish you and your new kidney many happy years together! Enjoy all the freedom it brings!

carla
x
Title: Re: My turn soon.
Post by: sico on June 13, 2011, 12:02:44 AM
Thought I'd wonder onto IHD and post an update.

Seen the Nephrologist last week, 14 months since the transplant and everything is going fine.
Blood levels all within range and creatinine at 115. No hiccups at all or hints of rejection have I experienced to date.
So really I have been blessed.

Current medication;

5mg Prednisolone morning
50mg Metoprolol morning
1000mg Mycophenolate morning & night
120mg Ciclosporin morning & night

Sure beats plugging into a machine :)

Title: Re: My turn soon.
Post by: Des on June 13, 2011, 04:33:53 AM
 :2thumbsup;

Good to hear from you.

thanks for the update.  :thx;

Title: Re: My turn soon.
Post by: boswife on June 13, 2011, 06:11:33 AM
so good to hear!!  glad ya shared and brought  a little happy to us :)   Live on  :flower;
Title: Re: My turn soon.
Post by: RichardMEL on June 13, 2011, 06:49:55 PM
Good news on the results sico - that's awesome.

Interesting you're still on a pretty high level of cyclosporin. One of my docs said that at 75mg 2/day I was on a highish dose for 6 months post and they were thinking about dropping it to 50, but they haven't yet. I guess it just underlines we're all different. Whatever works huh? 115 is awesome!!  :bow; :beer1;
Title: Re: My turn soon.
Post by: sico on July 19, 2011, 08:54:34 PM
Good news on the results sico - that's awesome.

Interesting you're still on a pretty high level of cyclosporin. One of my docs said that at 75mg 2/day I was on a highish dose for 6 months post and they were thinking about dropping it to 50, but they haven't yet. I guess it just underlines we're all different. Whatever works huh? 115 is awesome!!  :bow; :beer1;

Yeah I know Rich, I was expecting to be on a lower cyclo dose by now. But the Docs are going by the level thats in my blood. I think everyones body excretes them differently and hospitals might have different protocols on levels and where they should be at a set amount of months post transplant. I've been on 120mg for so long now.

Next time I'm at the clinic I'll note what the level is, I think last time it was 400 or 500 in my blood. Not too sure....
Title: Re: My turn soon.
Post by: RichardMEL on July 19, 2011, 08:59:47 PM
yeah those 2 hour post blood levels are important to keep in check - two high and it can damage the kidney... too low and you risk rejection - what joy! I've been stuck on 75mg twice daily for ages now the levels just stay around where they want it. I don't bother to ask anymore. I seem to handle the 75 ok - I've even lost most of the shakes, which was the worst symptom I got, though it does rear its ugly head from time to time.

As with all these things it's a balancing act and like you say everyone's body is different.

As long as your tx is doing OK that's the main thing!!
Title: Re: My turn soon.
Post by: okarol on July 20, 2011, 03:13:26 PM
 :2thumbsup;
Title: Re: My turn soon.
Post by: sico on August 10, 2011, 01:28:58 AM
So on my 34th birthday I visited my Renal Clinic, my creatinine is at 107.
Not back there for 3 months now, got a big bag of drugs so all sweet for a while...lol
Title: Re: My turn soon.
Post by: Rodneyss1 on August 10, 2011, 02:43:08 AM
Glad to hear that you are doing well.  My turn will be on September 9.  A really close friend of mine is donating.  Are there any serious side effects of the medication that you are taking?  Can you give me any pointers on the proceedure?
Title: Re: My turn soon.
Post by: edersham on August 10, 2011, 01:14:26 PM
Most of the drugs tx patients take have an assortment of possible side effects. Serious is in the eye of the beholder. Also, every body is different so you just never know. With the assortment of things you will be taking after transplant tracking down which drug or supplement is responsible for a given side effect can be a process .  There are a lot of threads on this site discussing different side effects. The bottom line is that for the great majority of transplant patients the side effects are a minor blip compared to the miracle of a healthy kidney.

Godspeed
Ed
Title: Re: My turn soon.
Post by: Ang on August 10, 2011, 04:23:13 PM
Glad to hear that you are doing well.  My turn will be on September 9.  A really close friend of mine is donating.  Are there any serious side effects of the medication that you are taking?  Can you give me any pointers on the proceedure?

you should be given plenty of reading material after your transplant
Title: Re: My turn soon.
Post by: RichardMEL on August 11, 2011, 02:09:30 AM
107 mate? that's awesome!! 3 months?!?! even more awesome!! LOL. I'm still at 3 weeks haha
Title: Re: My turn soon.
Post by: sico on April 07, 2014, 06:08:14 PM
Well thought I'd jump on here as it's been quite a while.

Today is the 4th anniversary of my transplant and it has performed faultlessly.
My last creatinine reading was around 114(aus reading).
Dad is doing well and I am too. So hoping to get lots more D free years.

Title: Re: My turn soon.
Post by: SooMK on April 08, 2014, 07:56:57 AM
Congrats!