I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: *kana* on November 26, 2009, 06:43:03 AM
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I just started the liberty cycler and my clinic has never had a patient request this before, so I believe that they have me set up wrong. I am set for tidal 250, first drain 2500, fill 3000 and so on. The problem happens when I get to dwell 3 of 3. I wake up in so much pain and start vomiting and must bypass to the drain cycle after about 45minutes into the dwell cycle. It then removes a UF of 1500 plus! That is a total volume of 4500-4800 in one dwell because it holds all the extra fluid until the 3rd dwell.
Does this sound correct? I can't tolerate that much fluid in my abdomen :'( Someone please tell me what my tidal should be set at before I explode or go back to manuals because I'm a wimp.
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Question! is the cycler set up right. We had a lot of problems when my husband was on the Baxter's cycler. it was initially set up right by the instructor and then further down the line it needed another bag adding. Then came the problems. Every night for two nights it kept alarming and we had to ring Baxter s in the middle of the night. We were told by our nurse to add a 3000 bag she had programmed it to take 5000 so it wanted the extra 2000 before it would move on. Suffice to say she did not fix it and we had to use 5000. bags. So we had 8 cycles and used 3 5000 bags and finished with extraneal 2000. I would get it checked out, you should not feel sick or pass out. We did not do very well on the cycler and have reverted to doing manual.
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Someone needs to help me if they can. I called my clinic nurse and he wants me to go back to regular settings only because he isn't willing to figure out tidal settings. I did CCAP last night and I woke up to bad drain pain. So, I either choose over fill and suffer that pain or pinching pain with draining. Either way, I don't get much sleep and I am getting frustrated. I used to be able to figure stuff out, but my brain isn't right these days. LOL
Here is my scrip if anyone can help me with the tidal settings.
First fill 3000
Drain 3000
Dwell time 1hr 44min
Fill time 15min
Cycles #4
Last fill 2500
Total sleep time 7hrs 32min
So with this info should tidal drain be 2750?
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Nobody knows? I have searched this entire forum and still can't find the answer.
I guess I go another night with hardly any sleep. :o :stressed;
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I would get in touch with your clinic nurse again and ask to speak to some one who knows about programing these bloody machines. I find a lot of nurses do not know much about programming, ours didn't.
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kana,
I am not on the Liberty cycler (I'm on the Baxter cycler). But how I have my Tidal set is 95% of the fill plus 120ml additional UF.
For example your reading are:
First fill 3000
Drain 3000
Dwell time 1hr 44min
Fill time 15min
Cycles #4
Last fill 2500
Your fill cycle each is 3000ml
If your nightly UF total is 1000ml divide that by your 4 cycles you do a night= 250 but reduce that a bit so you don't have drain pain
Drain should be approximately 2850ml plus 200ml which equals 3050.
If you still have drain pain reduce the 200ml by 50ml
or if you still feel you have extra fluid add 50ml to the 200ml
Or if your total nightly UF is 2000ml divide by 4 cycles you do a night =500 but reduce that a bit to about 450
So Drain should be approximately 2850ml plus 450ml which equals 3300. Reduce or increase as needed.
Hope this makes sense to you.
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Thank you! :laugh: