I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: karen547 on November 24, 2009, 11:23:54 AM

Title: Grrr another seizure at dialysis
Post by: karen547 on November 24, 2009, 11:23:54 AM

I had yet another seizure during treatment! I was really upset and angry and didn't hold back my feelings! I just basically had had enough yesterday and then had a seizure to top it all off! The NP was about ready to send me to the ER, but I put an end to that! I basically said ''why send me to the ER to wait 6 hours to find out i had a seizure when i know that already??? Just call my mom!'' I then just let everything out, which i didnt care about. I should not have had to start dialysis to begin with and now I GET seizures from it! I just want a kidney for goodness sakes!

Title: Re: Grrr another seizure at dialysis
Post by: Hanify on November 24, 2009, 01:00:24 PM

Seizures are horrible and scary.  Are they taking off too much fliuid???  Ask about setting the machine so it takes off more at the beginning and then less at the end.  Can't remember what it's called.

Title: Re: Grrr another seizure at dialysis
Post by: tubes on November 24, 2009, 01:08:44 PM

It's called a Profile.  ;)

I'm very sorry to hear about the seizures Karen. I don't know what would cause then as I'v never experienced one myself. I hope it is figured out soon or you get a transplant even sooner.

Take care,

Robert

Title: Re: Grrr another seizure at dialysis
Post by: looneytunes on November 24, 2009, 01:40:53 PM

Oh Karen..how scary that must be.  I hope they figure out what causes them so that something can be done for you. 

Title: Re: Grrr another seizure at dialysis
Post by: willowtreewren on November 24, 2009, 01:50:52 PM

 :grouphug; :grouphug;

I know this must be awfully upsetting.  :cuddle;

Aleta

Title: Re: Grrr another seizure at dialysis
Post by: pamster42000 on November 24, 2009, 05:04:44 PM

Are you taking any medications to control the seizures? Are your blood values all in good range?

Maybe you should see a Dr....I would be very concerned, seizures are very hard on the body. They could cause enough harm where maybe you won't be able to get a transplant. Don't play games with this...OK!

I can tell by your post you are very angry and upset about being on dialysis. You can't let your emontions take over..you have to understand when you need help. Something is causing the seizures....please go to a Dr. and get tests done.

Title: Re: Grrr another seizure at dialysis
Post by: Maker on November 24, 2009, 06:43:02 PM

So sorry Karen,  I have had 2 and they are terrifying!  Interestingly, I had them on 2 different occasions when I was in the hospital because of CKD.  Both were attributed to electrolyte imbalances from the CKD.  I pray you get some answers  :pray;

Title: Re: Grrr another seizure at dialysis
Post by: billybags on November 25, 2009, 03:43:47 AM

Karen, so sorry to hear about that, on top of every thing else, you do not need this. Hope you are feeling better.

Title: Re: Grrr another seizure at dialysis
Post by: karen547 on November 25, 2009, 04:08:14 AM

I am on Keppra for them. I admit I havent always taken them, but will from now on!

Title: Re: Grrr another seizure at dialysis
Post by: pamster42000 on November 25, 2009, 06:30:04 AM

 :)

Title: Re: Grrr another seizure at dialysis
Post by: dwcrawford on November 25, 2009, 06:46:02 AM

Your anger, fear and concern are all natural and part of the process.  Embrass it and learn from it.

Title: Re: Grrr another seizure at dialysis
Post by: marie on December 06, 2009, 08:37:11 AM

I know how you feel. I've had 3 seziures while on the machine, and many more at the hospital. They probably wanted you to go to get your labs checked to see if your meds were low. It really sucks.