I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: tubes on November 09, 2009, 10:47:43 PM
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Hey my IHD family! I was thinking about this place so I had to come drop in. So I might as well fill y'all in on whats been going on lately.
This past summer I completed the transplant evaluation. It was probably the scariest thing I've ever done. I've tried completing the transplant evaluation "stuff" in the past. I always freaked out and told myself I didn't deserve it. That is all behind me now. I do deserve it and I will get it! Yet, the selfworth issues come into play now and again.
So, I finished the evaluation in July and on August 7, 2009 while at dialysis I got a fax saying I was officially on the transplant list. :bandance; WOW, getting that fax just about gave me a heart attack. Later that night I told my mom and stepdad. They were so happy. Myself, I couldn't stop crying. The thought of living without dialysis is very scary. Considering I'm 29 now and have been on dialysis since I was 16. I don't know anything else. What am I going to do now at 6am on Monday, Wednesday and Friday mornings. Hmmm, guess I will get to sleep in. :yahoo; Oh wait, maybe I will finally get to work full time again. That would be nice. Uh oh, I think I've gotten off track somewhere. So yea, I cried my eyes out and my mom reassured me I wouldn't be going through this alone. I'm very glad to be back in Omaha with my family, without them I would of never completed the evaluation process.
The next step is for my mom, stepdad, dad and both my sisters to complete their donor packets and get them sent in. Since we are all going to be together for Thankgiving we are gonna sit down together and get the donor packets filled out.
I really feel like I've accomplished something. I've been on dialysis for 13 yrs now and have started transplant eval. so many times but flaked out. This is the farthest I've ever gone in this process and now I hope to see it to the end. One day, I hope to hang up my, "Member of the No pee Society" t-shirt. What a glorious day it will be to one day look that smug porcelain bowl in the face, unzip my pants.....well, you know the rest! :rofl;
So, there you have it. Sorry if I got off track.
Thanks for reading,
Robert (aka-tubes)
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Good to here you're back dude. I have read some of your older posts.
Best of luck with getting a kidney, been a long time coming.
Cheers Brad.
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Wonderful news Brad, hope it happens soon and all is successful for you.
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Oh Tubes it is so good to hear from you. It has been a long time. Glad you've finished the evaluation, it sounds wonderful to hear you
may be getting a kidney soon. IHD has missed you and I hope you will continue to keep us updated about what is going on in your life. In
the meanwhile take care and stay happy.
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That's great news! Good luck!
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Tubes! You have been so missed!! I am so very excited that you got listed! Susie would be so proud of you. I'll be thinking of you on Thanksgiving. What a great day for all of your family to fill out the paperwork together. Please keep us updated. Come back to us!! We love you :cuddle; :cuddle;
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:) Great news, indeed !
kelli
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:waving; Tubes!!
Paris is right, Goofynina would be damn happy! I am proud of you too because I KNOW you deserve a transplant and I pray everything works out. It's great to hear from you - it's been too long!
:-* :-* :-*
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yes, you do deserve a transplant!! it's gret to see you back, you've been missed.
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Go for it Brad! Wonderful!
:yahoo;
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So glad to hear from you, Tubes!!
:beer1;
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Thank you for the replies and encouragements. :grouphug;
With my blood type, (B+) I think I was told. It is a 3-5 yr wait. So I have a while but it's still a short wait compared to other people. Plus with my family getting tested I'm hoping to have a new kidney before my 30th birthday or around that time. I know thats a huge wish. So a more reasonable expectation would be by this time next yr. ;)
Thanks again,
Robert
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God Bless you Tubes! And congratulations on making "the list"!!! I hope you get off dialysis soon! You will love it! :bestwishes;
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Good to hear from you tubes
And yet somedays I do miss dialysis so i wouldn't have to visit the porcelin bowl ;D :rofl;
Hope you have an easy journey tubes through this.
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Hi Tubes,
Congrats on getting listed :bandance;
I hope it works out for someone in your family to donate. I am just beginning the process to qualify for a transplant and have some of my family tested as well. I know what you mean about feeling at times like you don't deserve it...but remember, our families want us around for a long time, and so we do it as much for them as for ourselves :)
Keep us updated!
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Congrats on getting listed Tubes!
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Robert, I told AlohaBeth yesterday about you getting listed and I thought she was going to cry! She is very excited for you :2thumbsup; She will meet you in Vegas after the transplant and go clubbing!! :rofl; We are both excited for the possibilities ahead for you. We love you! :cuddle;
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wow that is amazing. How soon are you going to get a kidney? I would think you would get one pretty fast for being on dialysis for so long. I thought now they put you on depending on how long you have been on dialysis. There are other patients like you.
Lisa
P.S. you are only two years older then me. What caused you to go on dialysis? Did people pressure you to get on the list?
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That is great news Robert! I am sure your family is so excited that you have made the giant step. My guess is they have been waiting for an opportunity to help. Big hugs to all of you! :cuddle; :cuddle;
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Great news, Tubes! :yahoo; And absolutely great to have you back. :grouphug; My caring thoughts and prayers are with you all the way. :cuddle;
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Thanks again everyone. :grouphug;
It's great to be back, Bajanne.
Robert, I told AlohaBeth yesterday about you getting listed and I thought she was going to cry! She is very excited for you :2thumbsup; She will meet you in Vegas after the transplant and go clubbing!! :rofl; We are both excited for the possibilities ahead for you. We love you! :cuddle;
Paris, you tell Beth I'm ready to go clubbing NOW. :yahoo; :bandance; :yahoo;
wow that is amazing. How soon are you going to get a kidney? I would think you would get one pretty fast for being on dialysis for so long. I thought now they put you on depending on how long you have been on dialysis. There are other patients like you.
Lisa
P.S. you are only two years older then me. What caused you to go on dialysis? Did people pressure you to get on the list?
I was told a 3-5 yr wait with my blood type, Lisa. My kidneys failed because of Polycystic Kidney Kisease. (PKD) I was 2 weeks old when my left kidney was removed because it was cystic. My parents were told I would be fine the rest of my life; live a normal life. At 14 found out my right kidney was failing then 16, I started dialysis.
It's been a hell of a ride every since then. :o
Yes Lisa, I had been pressured to get on the transplant list. Many times in the past, and I tried. I never followed throu, never cared enough. Until now, this time it was my idea. I tell you, my entire family was shocked beyond belief.
~Robert
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idk u, but i am crying with u, for the struggle and the fax. The day i got listed i was in the library parking lot about to drive home. It took me an hour to stop crying enough that i could drive. Its hard to know ur worth sometimes, and transplant ppl judge u(or so it seems) and then finally the verdict comes back approved. Wahhhooo. I too am afew yrs younger than u, w allot less D time. But i really look forward to my 30s as i believe they may be my wonder years.
U really deserve this i will be pulling for a brief stay on the list and strong living donor match
congrats
girl
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Thank you girl. It has been real hard. I dont understand my family. I thought they were going to fill out the donor packets or atleast discuss them this week. They can't seem to find the time to do it. My mom is bent on seeing her doctor first for a check up before she jumps into the donor packet. My mom said it took me 13 yrs before I got on the transplant list. So they are shocked that I did it. Now she says it will take her 13 yrs to get over the shock then she'll fill out the donor info. Not sure if I should be laughing for freaking out. :banghead;
I hope your stay on the list is short also.
:cuddle;
~Robert
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Give them time. It's a big decision to give away part of your body. It's fantastic that they're talking about it.
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Best of luck with the whole transplant deal. You will do fine.
:cuddle;
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Sorry to hear your thanksgiving plans didnt go as planed, (but plans never do :thumbdown;).
Im sure you know you just have to sit back and let them do it how ever they feel comfortable, and if you want to offer to assist them then you can and maybe that will help get the process moving along. You mom is going to have to do lots of test any way if she is a match, so maybe she will get some done now that will save time later. I offered to help my donors w things that i knew were frustrating for them, I got to help w some things, but most they did wo help or w the help of others. I get agitated, because I think "it is totally possible to have gotten that done by now" but I just have to tell myself that in reality I have no Idea what it would be like in there shoes.
Its always hurry up and wait, hurry up and wait.
Good luck
Girl
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Congratulation and good luck.
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Congratulations Tubes!!! :bandance; It was so refreshing to see you start this thread. Susie would be so proud of you. She loved you so much, we used to talk about you and how she was going to have you move in with her and Sam. I hope there was a little devine intervention in this. Either way I am very proud of your accomplishment.
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OMG, it's Sluff!!!! Thanks so much. It's so so so so so so so so so so so so good to hear from you. It's been way too long. It's so great to be back here, I was gone too long.
I know Susie would of been proud too. I miss and love her so much also. I was just talking about her last week with my mom. :'( My mom even knew how much she cared. They talked on the phone too. once or twice
Really good to see you again Sluff.
Love ya man! :beer1;