I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: billybags on November 05, 2009, 08:04:02 AM
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Hi every one, for those who have not read my earlier posts, I will keep it short. Husband got very bad e-coli bug on holiday was extremely poorly -had to have PD tube out - went on to emergency hemo - 4 months later and 2 surgeries cancelled because he was not well he had a new tube fitted. Got very excited.
Back to to-day, he had it flushed out last week and it was very slow, had another flush yesturday and it was still very slow so they sent him for an x-ray and guess what, it is positioned too high and will not work properly. I, no, we are pi**ed off with it all. It means he will have to be rescheduled to have a new tube put in. Who knows how long this will take and you still have to wait while it heals again. So I would say another 2 months. I really feel for him, he has taken a lot since July and was really looking forward to going back on to PD. He hates hemo. So to-day I am really fed up, he bless him just takes it in his stride. :banghead; :banghead; :banghead;
EDITED:Moved to CAPD home dialysis area-kitkatz-Moderator
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What a bummer after all that ! I do want to ask you a couple of things though , when they say its too high , what do they mean ? to high where ? Caths should go in and then point down towards your feet , but sometimes they flick up so the end is more upwards or towards your side (understand? ) Now you know me NEVER being normal ! The end of my cath was wedged under my last rib , yes i had an x ray to prove it ! I can always feel it like poke me in the ribs if you will , it has dropped a few inches over the years but i can tell you exactly where the end is ,BUT its always worked fine !!! Now if they say its too high and mean the end has flicked up , it can be manipulated by putting a wire down it and moving it about or the second more unpleasant alternative ..a good dose of Picolax , the strongest laxative on earth !!! Is he constipated? that would deffo cause problems with the cath ...slip some in his tea and find out ! :rofl;
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You make me roll you little bogger. Apparently when he went for his second flush he was not draining out very fast and draining in was also slow. He was sent for an x-ray and was told the results by his neph an hour later that the tube was set to high and he would need it taking out and a new one inserted. They also said he had pockets of pooh (what a subject) which he needs to get rid of. His nurse has told him to keep doing CAPD and also hemo. He has got to get up tomorrow at 5 do his exchange then get picked up for hemo at 6 he will eventually get home about 1. Nursie said she would come to the unit to talk to him to-morrow. I had to smile about the picolax, I can remember when I had to take it before a colonoscopy procedure, I took a packet of fags and a book to the loo and sat there all day, wow was my a**** sore. Laughing apart you are right about watching that you are not constipated, he is not, but since he has been on hemo he is very very windy and it could be the hemo is dehydrating his system because before on CAPD he had no trouble. Now he has to take all this crap, (nice word) senna. lactolose , boy the smell. Any way it is wait and see again. :banghead;
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Well ive never heard of it being set too high ! Im begining to think they got they've got YTS 's doing the surgery ! :rofl; Talking of wind ..tell Alan he is not the only one suffering ! Ive been exactly the same since i started on hemo ! I wonder if its a common thing but everyone on here is too polite to talk about it ? I didnt think it was physically possible for one person to have so much wind ! :rofl; My theory is , as the machine takes your blood out, you replace it with air and they sell your blood on the black market !!! :rofl; (joke joke before anyone complains!) There cant be enough room in my body for both ! :rofl; I bet he is really fed up now , stand over them when they do his next one with a rolling pin , they'll get it right then !
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Well Ladies,
I hate to be so blunt, but you're right... When Mum was on haemo, she was farting like a brass band!... :rofl;...
And she said that it appeared to be a BIG problem in the unit... Did I hear someone say once that Bicarbonate of Soda is added during the haemo process???.... Could that be it???...
Oh and KS... The trouble is, it's not the windbag who's doing the suffering... it's those of us who live with them!.... :rofl; :rofl; :rofl;... Honestly, if flatulence was an Olympic Sport, Mum would have taken home the Gold!!!... :rofl;
Darth....
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Oh, Billy bags, that is just the pits. Hope things get a little bit better for you two and soon!!!! :beer1;
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What a post...you guys kill me! I feel for your spouse BB and for you too. It's too bad they couldn't get it right the first time!
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Heart goes out to you and your husband billybags, unecessary surgeries are a bummer to go through (unecessary only in the respect that it wouldn't have needed to happen if they hadn't stuffed up the first one).
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Thanks for you replies guys, I can not stop smiling, perhaps we could bottle the wind up and sell it. It could be classed as Renewable Energy.
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Thats what happened to my first one billybags. Once it flipped they put me on coloxyl with senna, lactalose (grose) and movicol.
In the hope that if i completely emptied my bowels it might drop the catheter down. No such luck.
The surgeon did tell me the more abdominal surgeries i have the least likely PD is to work.
I hope you're other half does persevere with it cause he will feel better on PD.
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damn it! I was hoping for good news not bad because I'm in the same boat. I was on PD, now temp. on hemo to wait for a new pd cath to be put in. So now I'm worried that will happen to me.
Good luck with the next attempt, and don't come back here without some good news!
This will be your next post:
Hi everyone Billybags here, hubby's doin great! The PD cath is in place and he did the first few exchanges with no problems at all, Our plans for a hot air balloon ride powered by human flatulance have been put on hold indefinitely.
just copy and paste that, I don't want to hear any more bad news!
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calypso, I wish that was the case, the frigging nurse has now got him doing CAPD plus hemo until they sort it out. This morning he was up at 4-30am to do an exchange before his pick up for hemo at 6-00am, he got home at 12-30. At his weigh in this morning he was well over his dry weight so they took the max off him. He came home did another bag. So he is now doing 4 bags a day plus 3 hemo days. I know they say it is not working, it is but very slowly. Where it use to take him 30 mins tops it is taking about 45min. The worrying thing about it is if he gets over loaded again. When he is on hemo his kidneys must think it is bloody Christmas, I bet they are saying "lets get some fluid from his peritoneal that machine is trying to suck us dry" Its a waiting game, our lives have been taken over once more by this crap.
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Oh billybags, that's s.hitty. My Blokey is going to have his PD catheter surgery in two weeks time and now I'm all worried that anything that can go wrong will go wrong!
And speaking of farting, Blokey could fart for England before he went on dialysis ... I really - desperately - want to ask if you can imagine what it's like now in the Licious household, but he appears to be far less windy than pre-dialysis.
And I'm sure he'd be a little put out if he discovered I was discussing his farting behaviour on the world wide web ...
;D
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I know the feeling. My new PD catheter was put in April 28 and wouldn't drain. My doctor called me and said he had an opening for me to get "revision" surgery. I looked it up. Revision surgery is a medical term meaning "I screwed up in the first place." :rofl; Anyhoo, after the revision surgery the catheter works fine. Hang in there!
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Oh man, that is horrible! I can't imagine if someone told me that my PD cath didnt work and I had to remain on Hemo. The thought of another surgery, recovery time etc would be enough to set me over the edge. Sounds like your husband might be holding some in because no matter how strong you are emotionally, this just might be too much to handle.
Take care and I hope things get better!
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I'm sorry to hear that he can't use it and has to go through even more, hopefully things will work out and get better soon!
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Well Billybags it certainly was a treat to hear about all the windy people on this board.
Seriously I am sorry your hubby is having such a hard time. All of these problems would make a person start to look for the place to give up. I pray all of this comes to an end soon. Keep your chin ahhhhh up.
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Thanks for your replies guys, I was on a downer yesterday. I know my husband is far more positive than me. : Poppylicious, do not worry about having your tube fitted, his first one was spot on, no trouble at all, every thing went fine. this second one was done by a brilliant surgeon, and nice guy too, he helped look after Alan when we were going through the e-coli saga. We will get through this. How many can say "I am on hemo and CAPD at the same time" got to be a first. I expected him to be jumping up and down. I will keep you informed.
peleroja, what did they do to you with the revision surgery? I said to the nurse "Why can't they just poke it down a little bit" Plumbing thing, I was only joking, wow cold look.
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When I had my surgery to put the cat. in, I asked the surgeon whey there are only two surgeons to do such a simple surgery in our state. His answer is that it is a simple surgery, but it is difficult to replicate. Good replicates result in high successful rates. With only two surgeons to do it, they have surgery every month and have good results. I guess it is worthwhile to pick the surgeons who does the surgery often and has a high successful rate.
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When I had my surgery to put the cat. in, I asked the surgeon whey there are only two surgeons to do such a simple surgery in our state. His answer is that it is a simple surgery, but it is difficult to replicate. Good replicates result in high successful rates. With only two surgeons to do it, they have surgery every month and have good results. I guess it is worthwhile to pick the surgeons who does the surgery often and has a high successful rate.
True, i think the surgeon that did my second cath did a much better job. Put it in a completely different way.
It goes under my skin on my right side of the belly then tunnels under the skin below the belly button then into the peritoneum.
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I love how you say "It goes under my skin on my right side of the belly then tunnels under the skin below the belly button then into the peritoneum." sounds quite sexy!!!
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I love how you say "It goes under my skin on my right side of the belly then tunnels under the skin below the belly button then into the peritoneum." sounds quite sexy!!!
I don't know about sexy billybags. I'm just really happy that this one is working for me as i had my heart set on PD.
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Sico its was just how you said it.