I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: Romona on October 15, 2009, 01:35:19 PM
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I know there are threads about parathyroid here, but I want some opinions. I had a ultra sound showing a 1.3cm by 1.4cm adenoma on my right parathyroid gland. I also have a thyroid nodule on the same side. My calcium is 9. something. My phosphorous is low. My last PTH was in the 90's, which I know is low compared to some here. I take calcitrol everyday. My doctor doesn't want to remove it. I just don't see why he just wants to leave it there. He is sending everything to my endocrinologist which I don't think much of. For example, her recommendations to me to lose weight is to eat lean pockets and lean cuisine to lose weight. I just don't see that as a healthy or economical way to lose weight , I have kids to feed too. I try to limit pre-packaged foods. So I don't think she will have an opinion much different than my doctor. I am frustrated. I have been complaining about various things I think are PTH related and don't get many answers.
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Hi Romona,
You probably have already seen this but there's lots of info here. http://parathyroid.com/
Forgive me, but why can't they remove the adenoma?
As far as losing weight, rather than buy those pre-packaged foods (which, as you say, can be very expensive) you can focus on portion control and low-fat meals, lean protein, add more vegetables and fruit in your diet, and drink more water. Walking each day helps too.
:cuddle; :cuddle;
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Thanks Carol, I have tried to bring up some of the points from the website. My nephrologist never heard of the things I told him. When I talked to the renal fellow he said everything was going to the endocrinologist. It has been a week and I haven't heard a thing. As far as her suggestions, I just nodded my head. We have been eating out of our garden so I have not taking her advice. I personally think there is much more going on. I had a colon polyp removed, cysts on my ovaries as well as the thyroid nodule. I am thinking a multiple endocrine disorder. If I don't hear from her soon I am going for another opinion. My nephrologist says there are studies that in transplant patients removal of an adenoma can cause a reduction in kidney function. But he will go along with what the endocrinologist recommends. I think my nephrologist has dealt more with hyperplasia and hyperparathyroid. He did say he thought for sure it was just hyperplasia and not an adenoma. This surprised him.