I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: Hanify on August 26, 2009, 04:05:37 PM
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She got tested and was a match for me, but I'm unlikely to ever be eligiable for it, so she's going ahead and becoming what's called an 'altruistic donor'. So exiting to think that sometime soon (hopefully as there are miliions of tests to get through yet) someone will get the call! Anyone else out there been an altruistic donor?
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I'm unlikely to ever be eligiable for it,
Why???
It is wonderful that she wants to be a live donor. :cuddle;
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I have multiple myeloma, and even if I got into remission (which is unlikely and they'd make me wait 5 years before considering a tx) the drugs you have to take post tx are very dangerous to a cancer person. So even if it was possible, they wouldn't thinik it was worth the risk of the cancer coming back with a vengeance. Neither would I. I am fine with dialysis. It's not worth the risk for me. I'll pretend it's me getting it ha ha. Vicarious transplant?
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That is wonderful of her. I wish she was getting a $40,000 check. If I win the lottery I'm going to pay her $40,000. You can hold me to that. That would be the Mega Million with all 5 numbers and the quick pick. (Just to clarify)
:waving;
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Okarol's daughter got her wonderful kidney from an altruistic donor. :2thumbsup; Tell your sister we think this is a marvelous act and she will be someone's hero.
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More than a hero - a super hero.
:clap; :clap;
This is such a wonderful thing to do.
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That's awesome! What an amazing thing to do.
I have my friend's father getting tested now to be a donor for me, but if I am not a match he wants to still give to someone....I am so amazed by that!
Did any of you see that article on MSNBC yesterday about the cab driver in Arizona who gave his kidney to a woman he used to drive to dialysis every now and then? There are some pretty incredible people out there.
Hanify, best of luck to your sister!
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That's too bad you cannot get a transplant. I am sorry about that.
It is a kindness beyond imagination to donate to a stranger.
Living donors ROCK!
They make miracles happen. :cuddle;
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Hanify hun that totally sucks that you may never be able to get a transplant :( that makes me sad.. but who knows what medical science may come up with. There's even hope for the hot pools!
Maybe I should fly to NZ and meet your sister hmmm? I do need a good woman in my life (psssst what's her blood group? >:D :rofl;)
I think it is beautiful that she wants to go that one step further and give to someone else. Clearly a special person (must be the genes)
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Your sister is an :angel;
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That is such a wonderful thing for some one to do for another. Sorry it can't be you, and yes, live vicariously thru her and her recipient. How was your vacation?
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What a lovely person your sister must be! Sorry she can't donate to you but at least you know that she "gets" the situation and would do whatever she could.
P.S. So where are the Samoa photos Madame? :cuddle;
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Oh, Hanify, what an amazing family you all are. A brave and generous act from your sister, and an astonishingly graceful attitude from you. I hope if this is important to your sister, that she is able to donate.
Best wishes to both of you! :grouphug; :cuddle;
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Yes - who knows if she'll get through all the tests. She's done a week of blood tests and 24 hr urine tests so far, but doesn't have the results yet. Actually, she's still swanning around in Samoa for a few more days lucky thing. Will let you know how she gets on. Funnily enough, she had started the procedure of donating a kidney before I got sick - she had a friend who had no kidneys so wanted to do it then. Being an altruistic donor is pretty weird. You have to be absolutely altruistic about it. You have to understand that the kidney could go to a useless person who doesn't look after it or what ever. And that has to not matter to you. I don't know if I could do it actually.
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Happy Birthday tomorrow Bernadette... Hey, I thought I was getting Helen's kidney if you couldn't have it. Tell her I guess we are through then... joke, joke, joke, and a very poor and distasteful joke...
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The good thing is, the receipent has to go very stringent tests to be able to recieve a kidney. The person who is fortunate to get this gift will forever be grateful that a stranger changed his life. She is doing a wonderful thing. :2thumbsup;
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Happy Birthday tomorrow Bernadette... Hey, I thought I was getting Helen's kidney if you couldn't have it. Tell her I guess we are through then... joke, joke, joke, and a very poor and distasteful joke...
You know she'd be on a plane in a second Dan! Shame about that blood type difference...
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What about me?
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Are you A+
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Well, her urine tests and scans are all good. Next step is talking to a neph. Apparently it can't be my neph - even though she's not giving it to me. I guess so they couldn't accuse the neph of telling me I couldn't have it cos he wanted it for someone else or something? Keep it all seperate. I think all the mental stuff is next.
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Wow you're sister is amazing.
I hope someday soon they can figure out how to do tissue matching to such an advanced degree that no immunosuppressant drugs are necessary, which would be the best possible solution if you wanted a transplant.
Can your sister get you added points for donating to someone else in the event it becomes feasible for you?
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Interesting Hanify. My sister and brother both saw my Neph when they tested to give to me. I actually thought they would have to see another (as you suggest) to avoid any kind of conflict or something. My sister(who got much further along with her testing - well she got to the last hurdle actually) did have to see another neph near the end of the process for a second, independent, opinion.
Can I meet your sister in a hot pool or something and discuss this whole donation thing? :rofl;
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Hanify's sister Helen is a loving and giving person... and she's pretty on the outside too...
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Here's Helen and me in Samoa. She's on the left. We were on the ferry going from Savai'i to Upolu island. Had just had a pretty rough couple of hours, but I staved off any sea sickness by closing my eyes and singing the entire show of Joseph and the Technicolour Dreamcoat to myself ha ha.
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:angel; :angel; :angel; :angel;
Helen really is something. I would ask about the points, I know they do that at Vanderbilt where I am listed. I Do believe Medicine is going to change alot in the next decade. Good luck to both of you. I have a cousin who wants to donate and says the same thing. I think they are amazing.
Thinking of you
Girl
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Well, it's all taking such a long time, but Helen is in today getting scans and stuff to make sure all her bits are OK. Back on track again!
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Living donors are tops. Give Helen a big hug! She deserves it.
I heard from my colleague that his wife is home and recuperating well from donating last week. Wonderful people.
:yahoo; :clap; :cheer: