I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: tyefly on August 21, 2009, 02:47:25 PM

Title: CMV.... need info Please....
Post by: tyefly on August 21, 2009, 02:47:25 PM
   Ok  I have had a ton of blood test done to get thru this evaluation for a transplant.....   One test that came back as Positive is  CMV.. of 4.89 H........    I did some research on here... ( IDH) and  see that alot of people have had to do certain medication because of this being positive.... I think because you have ad a transplant and they put you certain meds...like Valcyte...  or  this IGIV...... ok  I dont understand everything .... I am still learning......    bottom line...... Since I am positive for this CMV    does this mean I can not get a transplant???? or  do I need to take medication before I get a transplant..... or after  or what.........  any infor would help......     thx     kathy
Title: Re: CMV.... need info Please....
Post by: pelagia on August 21, 2009, 03:20:33 PM
Being CMV positive means that you can take a kidney from a cmv positive donor without concern for subsequent CMV-related health risks.  Because you have already been exposed to the virus your body is essentially pre-adapted.  For those who test negative, on-going research is examining whether or not exposing potential kidney recipients prior to transplant will lower the risk of cmv-related problems after transplant.  In any case, I think you can stop worrying about cmv.
Title: Re: CMV.... need info Please....
Post by: tyefly on August 21, 2009, 04:16:20 PM
    Great..... I hate to worry......   There is so much to learn......  I hope I can get it all.....

          thx  again ........ kathy
Title: Re: CMV.... need info Please....
Post by: Wenchie58 on August 21, 2009, 06:30:34 PM
Kathy..
   The issue with CMV is when a person (such as myself) is CMV negative and gets a donor kidney that is CMV positive.  It could lead to all sorts of levels of illness.  So far so good in my case.  I took Valcyte for 6 months, then they took me off so I don't build a resistance to it in case something CMV related gets to me later.
Title: Re: CMV.... need info Please....
Post by: tyefly on August 21, 2009, 08:15:10 PM
      So  because I am positive for CMV antibodies   that is I have the CMV antibodies in my body  if I was to get a kidney that was neg ..   that donated kidney could and would be exposed to the CMV virus antibodies and my affect the donor kidney....     and visa versa.....     So with me being positive  and  if I get a positive donor kidney   then  its equal and there is nothing to worry about....... right......    so that is good    really to be positive since there are more kidneys that are positive too..... 

        let me know if I am getting this......        thx again...  kathy
Title: Re: CMV.... need info Please....
Post by: pelagia on August 21, 2009, 08:19:47 PM
As far as I am aware, a kidney from a donor that tests negative is also not a problem if you are CMV positive.
Title: Re: CMV.... need info Please....
Post by: Wenchie58 on August 21, 2009, 08:31:30 PM
Thats how I understand it too Pelagia!
Title: Re: CMV.... need info Please....
Post by: Zach on August 21, 2009, 08:50:03 PM
Very true.

8)
Title: Re: CMV.... need info Please....
Post by: tyefly on August 21, 2009, 08:58:33 PM
    Great....  so then next week I should be done with everything for the approval of a transplant as that is the only blood test that I thought may be a problem......   I hope everything else goes well..... I have to go talk to the transplant team at OHSU here in Portland and attend their class  and I think that is it....
        I sure hope I can get a transplant before I have to do dialysis.......  crossing my fingers and toes.....
Title: Re: CMV.... need info Please....
Post by: pelagia on August 21, 2009, 09:02:56 PM
Good luck with it!