I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: loopywinks on August 12, 2009, 10:26:08 AM

Title: Hello from Washington :)
Post by: loopywinks on August 12, 2009, 10:26:08 AM

Hello,

I am new here..just joined yesterday!  Thank you so much for making this forum available.

I have a genetic kidney condition that is causing my kidneys to fail. My twin brother transplanted almost 12 years ago (my dad gave him a kidney) and he is still doing very well.  He has Alports Syndrome and now wears hearing aids too.  They told me that it only typically manifests in males, but here I am.. I have a 10 (almost 11) year old son who was diagnosed pretty much at birth and he likely has the same condition that my brother has.  My son now wears hearing aids.

I have been followed by a nephrologist for years and was pretty stable until the last couple of years,  My creatinine is now hovering at around 3.8 and I am tired all of the time. My GFR is at about 13.  My doctor has been entertaining the idea of PT Dialysis.  I recently made it onto a transplant list at Swedish Hospital.  They say that I am a good candidate for a "preemptive" transplant.  I have no idea how this is all going to turn out and I am pretty anxious. 

I have been reading your posts and it is wonderful to see healthy, active, and pleasant folks here.  I really appreciate the opportunity to be part of this forum!

Thank you so much!     :flower;

Title: Re: Hello from Washington :)
Post by: loopywinks on August 12, 2009, 10:38:49 AM

Hello again...

By the way.. My name is Tracy  :waving;

Title: Re: Hello from Washington :)
Post by: monrein on August 12, 2009, 11:10:13 AM

Hi Tracy and welcome.  So sorry about your family's too vast experience with ESRF.  I hope you'll post often and I really hope that the preemptive transplant comes through for you.  :welcomesign;

Title: Re: Hello from Washington :)
Post by: willowtreewren on August 12, 2009, 11:12:56 AM

Hi, Tracy.

PKD runs in my husband's family. Our daughter has it, too.

Welcome to our IHD family! You'll be able to find support and information here!

 :welcomesign;

Aleta

Title: Re: Hello from Washington :)
Post by: cookie2008 on August 12, 2009, 12:17:59 PM

Hi Tracy and  :welcomesign; to IHD.

Title: Re: Hello from Washington :)
Post by: tyefly on August 12, 2009, 02:04:42 PM

  Hello Washington......    I am in washington today too....  Vancouver...... I also cross the river to the Oregon coast ... I love it there too...   Good to have you hear....... I am new too....Only been here few months......Lots to learn..... No place better  that  IHD....... the people here are great....

Title: Re: Hello from Washington :)
Post by: willieandwinnie on August 13, 2009, 04:53:34 AM

 :welcomesign; Tracy. So glad you found us. Please look around the sigh and see all the information and support that is to be found here. Please post often so we can get to know you and ask your questions. We are here.  :cuddle;

Title: Re: Hello from Washington :)
Post by: paris on August 13, 2009, 09:16:37 AM

Hi Tracy.  WOW, your family has dealt with kidney disease for a long time and by many members.  I am sure we can learn from all of your experiences too.   Let us know how the preemptive transplant process goes.  Several members have had preemptive transplants and they may beable to help you with any questions.  We are also here for support and we do care about each other.   :cuddle;  Looking forward to reading more of your posts,  Welcome to IHD   :2thumbsup;



paris, Moderator

Title: Re: Hello from Washington :)
Post by: loopywinks on August 14, 2009, 10:23:45 PM

Thank you so much for all of the kind messages!!

I think I will like it here :)  I truly appreciate the real straight talk I see.  I can tell that there are many experienced folks here!

Take care and have a wonderful weekend!

Tracy 

Title: Re: Hello from Washington :)
Post by: Bajanne on August 15, 2009, 07:33:41 AM

Welcome to our community, Tracy!   I am intrigued by your screenname - Loopywinks!  Tell us about it.
I am glad that you are appreciating what our site is all about.  We are definitely more than just a forum - we are now a genuine family :grouphug;  Just take advantage of all this site has to offer - read a lot and post a lot.




Bajanne, Moderator

Title: Re: Hello from Washington :)
Post by: Romona on August 15, 2009, 08:01:35 AM

 :welcomesign;

Title: Re: Hello from Washington :)
Post by: Hanify on August 15, 2009, 04:18:40 PM

welcome.

Title: Re: Hello from Washington :)
Post by: loopywinks on August 15, 2009, 10:41:25 PM

Quote from: bajanne2000 on August 15, 2009, 07:33:41 AM

Welcome to our community, Tracy!   I am intrigued by your screenname - Loopywinks!  Tell us about it.
I am glad that you are appreciating what our site is all about.  We are definitely more than just a forum - we are now a genuine family :grouphug;  Just take advantage of all this site has to offer - read a lot and post a lot.




Bajanne, Moderator

LOL!!  Loopy was my nickname when I was a camp counselor at a resident  camp almost 20 years ago. I still have friends calling me Loopy :)  Winks is the name of a cat that I had.  She lived 19 1/2 years and recently passed away in March.  Loopywinks became a name I use on the computer because it iworks well as a username in many palces :) 
Thank you for asking :)