I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: billable on October 06, 2006, 06:54:51 PM
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Hi. I posted this morning that I was training on the nxstage with my wife. Had another good day today in training and am now home for the weekend. Have been staying in Nashville all week.
My wife, Denise had a kidney removed due to bladder reflux that wasn't diagnosed in time and caused glomerular nephritis when she was 8. The other kidney continued to work for another 20 years. She went on home hemo in 1985. She received a cadaveric transplant in January 1986. She was married to her first husband at the time.
After her transplant, she had 2 daughters (now 17 and 19). She and I married in 1995. Her renal function really started deteriorating in 2001 and went slowly down hill until she started CAPD in December 2005. Her main reasoning was her horrid memories of sticking herself 20 years ago. PD never really worked for her. I finally convinced her to try the nxstage and we are now in the training.
Monday, the nurse stuck her 6 week old fistula for the first time and blew it out. Not only did it blow, it blew with 5000 units of heparin. her arm looks like, well you all can probably imagine what it looks like. We went Wednesday morning and had a perm cath put in and started back on training that afternoon. Got to go back Monday, Tuesday and Wednesday. Should be through then. We live 2 1/2 hours away, so we are staying in a motel while we are there.
Not sure what else to tell. Anything else you want to know, just ask.
Oh yeah, want to let you know also, that I have started a site for caregivers to get together kind of like this one is for dialysis patients. www.caregivertalk.org. Anyone is welcome, but I think of it as an online support group. Also have a section just for dialysis information. Hope some of you will check it out.
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:welcomesign; Glad you're here. You wife has had a rough time; it's good she has you. This site will be a huge help to you both.
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:welcomesign;
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Welcome to our community. I am always impressed when I see caring spouses in action. Keep it up. Great idea for a site. We also have a section in our community, specifically for caregivers, spouses and significant others of renal patients. Looking forward to hearing much from you. My best regards to your wife. Pass on this group hug - :grouphug;
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Welcome Billable, glad to have you aboard.
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Welcome to you and your wife! Looking forward to your posts.
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I have put your caregiver site into my favorites. I will cruise over and take a look. Welcome aboard.
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Good. Stop by and post anytime.
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Welcome Billable. I hope you and your wife enjoy our site. Sometimes it is nice to vent with people who are going through the same thing you are. That is why there is a caregiver's section and one for patients. You and and your wife don't necessarily need to read each other's posts. Might do you both good to vent without inspection from each other. Best of luck with NxtStage. I'm glad to know you can go home with a parmacath. :thumbup;
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Thanks rerun. We will use the cath for a while and give the fistula a little time. Things are going well, for now.
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Welcome! :welcomesign;
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:welcomesign;