I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: billybill1 on July 03, 2009, 04:06:39 PM

Title: Hello all, I'm trying to avoid dialysis!
Post by: billybill1 on July 03, 2009, 04:06:39 PM

Hi All,
    My name is Bill and I live in New Jersey. I found out I had poly cystic kidney disease March 15th a year ago.
I'm on a journey to live a normal life without going on traditional dialysis. The alternate treatment I'm exploring is
using the sauna and my sweat glands to get out excess fluid and wastes just like dialysis. The more I research it
the more I think it's possible. I spend an hour in the sauna everyday. I'm sweating out between 2 to 3 liters of fluids.
Sweat contains all the same chemicals and wastes as urine. Even if I still have to use dialysis at some point
I still plan to use sauna therapy on the days I'm not taking dialysis.
   Any information that can help me in my journey that would be great! I'll also share my discoveries in case it can help others.
Thanks!

Bill



Edited: Moved to proper section: Introduce Yourself - okarol/admin

Title: Re: Hello all, I'm trying to avoid dialysis!
Post by: Hanify on July 03, 2009, 04:36:25 PM

Welcome and good luck with the sauna idea.  Let us know how it goes.

Title: Re: Hello all, I'm trying to avoid dialysis!
Post by: okarol on July 03, 2009, 05:09:25 PM

 :waving; Hi Bill,
Welcome to IHD. My siblings have PKD but so far no one is on dialysis - they've just been controlling their blood pressure. Will be interested to hear how the sauna works.
 :welcomesign;


okarol/admin

Title: Re: Hello all, I'm trying to avoid dialysis!
Post by: Romona on July 03, 2009, 05:36:09 PM

 :welcomesign;

Title: Re: Hello all, I'm trying to avoid dialysis!
Post by: rookiegirl on July 03, 2009, 09:19:21 PM

Hi Welcome to IHD.  I'm interested on your Sauna prevention.  Please keep us posted on your progress.

Title: Re: Hello all, I'm trying to avoid dialysis!
Post by: Yvonne on July 03, 2009, 10:36:03 PM

 :welcomesign; How interesting, is there any more information on a Sauna anywhere, how did you discover that it might help?

Title: Re: Hello all, I'm trying to avoid dialysis!
Post by: Jean on July 03, 2009, 11:28:36 PM

Well, that certainly sounds better than dialysis. Let us know aobut it, we are all interested.

Title: Re: Hello all, I'm trying to avoid dialysis!
Post by: willieandwinnie on July 04, 2009, 04:19:04 AM

 :welcomesign; Bill. I look forward to hearing more fom you on this. Tons of information and support here and please post often.  :cuddle;

Title: Re: Hello all, I'm trying to avoid dialysis!
Post by: kellyt on July 04, 2009, 09:30:45 AM

Welcome and good luck!  That certainly does sound better.  I love sauna's.   I haven't been in one is a super long time, but I still love them!

I hope you are able to push dialysis away for as long as possible, if not forever.  Do you plan on looking for a transplant?  Are you on "the list"?  I got a living donor in Nov. 2008 and was just able to avoid dialysis.  I pray my new kidney lasts the rest of my life.

It's great to meet you.   :waving;

Title: Re: Hello all, I'm trying to avoid dialysis!
Post by: Joe Paul on July 05, 2009, 05:35:01 AM

Welcome Bill, good to have you aboard.

Title: Re: Hello all, I'm trying to avoid dialysis!
Post by: joyfulmother on July 05, 2009, 01:15:13 PM

I don't blame you for trying to avoid dialysis - it sucks!

Title: Re: Hello all, I'm trying to avoid dialysis!
Post by: Pierre on July 12, 2009, 07:03:23 AM

Hi Bill, and Welcome.

I also have PKD, and your neph certainly will have explained you several things, or at least I hope he did :).

About 50 % of all patients with PKD reach ESRD and have to go on dialysis, the rest don't, so I hope you're one of the lucky people. OTOH, there is still no cure for PKD, so your kidneyfunction will decrease further whatever you do, even if you stay 24h/day in the sauna.

My advice is to stay healthy as possible, don't smoke, and ask information about diet.

Title: Re: Hello all, I'm trying to avoid dialysis!
Post by: cloud393 on July 14, 2009, 10:44:12 AM

 :welcomesign;

I also  have PKD, diagnosed 19 years ago and just started PD in Feb., 2009.  I didn't take it serious in the early years so my advice to you would be to avoid smoking, limit salt, keep blood pressure in check,  control weight and avoid caffeinne.  Good luck to you. 

Title: Re: Hello all, I'm trying to avoid dialysis!
Post by: dwcrawford on July 14, 2009, 01:51:18 PM

Just notice the lead for this thread... only comment is "didn't we all?"
"