I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Des on June 18, 2009, 11:18:38 PM
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Hi,
I am a 42year old mom of 3 (teenagers). I have Polycystic Kidney's and I'm currently stage 4 (GFR 20) CKD.
I have been married for 19and a half years to the most wonderful hubby in the world.
I am not on dialysis yet but I am on a transplant waiting list here in SA.(between 3-5 years)
I do not have anything else medically wrong with me apart from the CKD.... I suffer from pain as both my kidneys are enlarged and full of systs and kidney stones. I have "studied" a lot of information regarding my disease but everyday I see more info that I didn't know. So... I am here to give support and to learn all I can about every step of my disease.
I only found out about the PKD 8 years ago....(I was adopted at 4 and no one knew any medical history on my birth parents)
I love camping and spending time with my family and pets.
I work a 40h week as an accountant an enjoy it lots.
I am a christian and get my strength from God.
GLAD TO BE HERE...........
ps.. I can't spell and English is my second language.
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Welcome to our community, Des! So glad that you found us and decided to join us. This is a great place for information, support, and even fun! What is your first language? I only detected one spelling mistake [systs for cysts] I notice that we get our strength from the same source!
You will soon find that this is much more than a website - this is a genuine caring and sharing family :grouphug; so you now have family members all over the world!
So keep reading and please keep posting.
Bajanne, Moderator
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Thanks,
My first language is Afrikaans.
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:welcomesign; Des. Glad you joined our family. We are a wonderful source of information and support and look forward to hearing more from you. :cuddle;
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Hi, Des,
So glad you found us here at IHD. My husband also has PKD. so does his sister and our daughter. that's life!
There is so much to learn here.
Aleta
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:welcomesign;
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:welcomesign;
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I think you write very well. Thank you for finding us. At the bottom of your typing space is a "spell check" that may help you. It helps me! ;)
I hope you get your new kidney soon.
:welcomesign;
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:welcomesign;
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:welcomesign;
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Welcome Des, good to have you aboard.
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Welcome Des. I only know one thing in Afrikaans - kak in die millie which is a bit rude but funny. Look forward to getting to know you.
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:welcomesign;
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Welcome!!! I really look forward to reading more of your posts.
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Welcome, Des! :welcomesign;
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:welcomesign;
I also have a Deziree (probably pronounced the same) who is listed as inactive on the kidney transplant list. I was shocked to find out that 2 of my daughters had a recessive genetic kidney condition that cause kidneys to fail between the ages of 13 and 19. The little one's kidney failed at 13 and the older one, Deziree, has 20% kidney function and is feeling great.
I hope that your kidney keep functioning until a cure is found. This is a great support group. Lots of knowledgeable people. I am glad that you joined the group.
:grouphug;
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Thanks all!
I feel welcome already....
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Just an update...
I have now been on dialysis for 2 and a half years. (still hate it)
I use a fistula (very small undeveloped one but it is holding)
I will be on disability from next year, as my employer has called me in and they have decided that I stop working. It is a hidden blessing of some sorts as I am SO darn tired and doing dialysis after work is getting to be a bit much. I just hope we get by with less income.
I have lost a few really good friends these last years on dialysis. I have found that it is a down side to knowing so many ill people - they are closer to death than the others. It was heartwrenching sad and just make me hate this disease more. :'( ???
Lots and lots of them have received transplants and that in itself is an absolute miracle :cheer: :cheer: :cheer: Congratulations to you all! I cant help but feel a bit jealous but it keeps the HOPE alive.
Thanks again for being there for me.IHD.
:flower;
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Hiya Des! :waving;
I hope the time off work does you a world of good, but also hope that a new kidney gets you back on the job soon.
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:waving; Hi Des, good to see an update from you.
How long is the average wait time for a transplant where you live?
Take care.
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Well hi there Des, It's so good to see you and wish you were announcing your new kidney ;) Soon mabie, so keep the faith ;) Im glad for you to get to go on dissability for now. The break will do you good and rest should improve your health... Love to hear more from you, but wishing you well in your 'time off' and hope you enjoy it. :grouphug;
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Oh my goodness! Look who it is! Hi there, Des! I'm delighted to see you and have to tell you that I've often thought about you and wondered how you were doing. So, I'm really glad to see you back on IHD. I still have the complement to the doll I sent to you as your Secret Santa.
I know how much you despise dialysis, and I admire the fact that you are coping with it. Remember that we are always here for you.
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Hi, Des.
I was looking through the welcomes you got on this thread and it really hit me how much life changes around us.
Many hugs to you. :grouphug; :grouphug;
You know you are in my thoughts often. I'm looking forward to the day that we can make it to South Africa to visit.
Aleta
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It's great that you joined. I trust that you can visit often.