I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: kaeli211 on June 15, 2009, 12:08:52 PM
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Hello to everyone - I'm 48, born in Connecticut, grew up in Massachusetts and now I live in southern New Hampshire. I've been on hemodialysis for 16 months (PKD, inherited from my dad) and I hate it even more than I hate the Yankees, and that's saying something :)
Seems like I should adjust after 16 months but it's getting harder to cope - I don't talk about it much to anyone and that's probably a bad idea, so here I am...
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Hi Kaeli,
Welcome to IHD! :welcomesign;
This is the place to come vent about dialysis. When your friends and family don't understand.... we do!
This is also a place to ask questions and learn about your new life on dialysis. You will laugh again too.
Glad you found us! :waving;
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Hi, Kaeli,
My husband and I have been on the dialysis journey for about a year now. Although I'm glad he has this way to stay alive, it just sucks. And even though I hate dialysis, I really, really appreciate the family of support here at IHD.
Welcome. :welcomesign;
May you find some relief here as I have.
Aleta
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Welcome to our little corner of the world . Lots of good information and shoulders to cry on. Come on back and post often!
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:welcomesign;
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Welcome to our community, Kaeli! There is one good thing I can say about dialysis - my IHD family! So sad that this disease is what caused me to meet some of the greatest people on the planet! So I am glad that you found us. This is more than just a forum - it is a genuine family :grouphug; This is just the place for information, lots and lots of support, and even fun at times. Just keep reading and keep posting, and let us know how you are doing.
Bajanne,Moderator
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:welcomesign; to the best place to talk and (most importantly) be listened to about kidney disease.
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Hi Kaeli, good to meet you. Is PD not an option? Ask lots of questions and never be afraid to vent! It's what keeps most of us same I think (that's for those of you who are sane...hello...hello).
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I guess maybe I should say I hate kidney failure - dialysis is horrible but what's got me going out of my mind is RLS; I've had it for years but it's increased exponentially in the last year. None of the medications or supplements have reliably helped and no matter what kind of of dialysis I choose, I can't walk around to ease my legs while I was doing it! Spent today's dialysis miserable because I couldn't sleep - spent the afternoon reading posts and I feel a little better - thank you all :) I try to keep my sanity by making things, but when the misery takes over on days like these, creativity seems to vanish.
Hopefully tomorrow will be a better day...
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:welcomesign; Welcome. :welcomesign;
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Welcome to IHD Kaeli, this is a great web site and a whole lot of nice and informed people, who never get tired of the newbie's asking questions. RLS has got to be one of the miseries of dialysis. I take Robaxin every night, or I will kick my hubster out of bed. Sometimes in the daytime also, so that the cat can lay on my lap and not get bounced off!!!
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:welcomesign; Kaeli. This is a great place to have a good rant, learn loads and get support all the time. Hope we hear more from you. :cuddle;
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You hate the Yankees? How can that be? Let me guess, you like Boston? (so it's a judgement thing...)
:waving; and welcome (in spite of your "flaw", I'll try to see past it :) ) A lot has been posted on RLS, I hope you find something that helps. PD has been mentioned, perhaps even NxStage home hemo with the shorter but more frequent treatments would be more tolerable.
( :cheer: Reggie, Reggie, Reggie, Reggie... :cheer: (am I dating myself?) :cheer: ...Reggie, Reggie, Reggie, Reggie... :cheer: )
Alene
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:waving; RLS is a real pain. So glad you found us here. You'll love it!
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Welcome Kaeli, good to have you aboard.
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:welcomesign;
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:welcomesign;
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:welcomesign; From :ukflag; You will just love this site Yvonne the wife