I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: ladyhawk526 on June 12, 2009, 08:42:47 PM
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I am new to this site although I have been on it several times as a guest. I learned at the age of 17 that I would eventually need a transplant. In 1983 my mother gave me a kidney which worked for 15 years. After kidney failure again, I was diagnosed with cancer and had to wait five years before getting back on the list. When I did get back on the list in2003 I waited 3 months and a cadaver was found. That transplant never worked and it was a DISASTER! I was in the hospital for approximately 7 months! I am lucky to be here today. So, I finally felt recuperated and wanted to get back on the list only to find I had cancer once again. The hospital I where I want to receive my transplant only requires a 2 year wait instead of 5 to be cancer free. I just got the clear two months ago. However, living in Indiana there is only one insurance company that will cover me since I am under 65 and I cannot afford it. So, no insurance, no transplant :stressed; and thats my story.
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Welcome to our community! Glad that you decided to post after being a guest. It means that you already know that this is the best place for information and support. I am sure that you have seen that this is more than just a website - it is a genuine family :grouphug; sharing and caring.
So sorry that things are not working out for your transplant. Hope that you get this worked out to your benefit soon. I take it that you are on dialysis now. If so, is it HD or PD?
Keep reading and keep posting. Let us know how you are doing.
Bajanne, Moderator
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:welcomesign;
Ladyhawk You will find all of the support you need here. Both of my daughters live in In. Fishers and Greenwood.
Pam
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Welcome Ladyhawk, good to have you aboard.
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Happy to have you :welcomesign;
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Hi, LadyHawk.
Yours is a sad story, but at least there is dialysis! :clap;
There are so many stories here, but also lots of wonderful, helpful folks, and even plenty of humor!
:welcomesign;
Aleta
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:welcomesign;
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:welcomesign; Glad you joined us.
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Wow, sounds like you've been through the ringer. I certainly hope things get better for you soon!
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Hi and welcome. I also have cancer (multiple myeloma) and am waiting till I'm in remission at which point I start the 2 year wait to be considered for a transplant. You have given me such a buzz when you talked so positively about only having to wait 2 years! I never realised some people had to wait 5! Look forward to getting to know you.
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:welcomesign;
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:welcomesign; Ladyhawk. I'm so happy you decided to join us. Tons for information and even more support here. I'm sorry to hear that you have been through so much. Are you on dialysis? If you are then you are entitled to Medicare and they will pay for another transplant. Stick with us and you will never feel alone. Please post often. :cuddle;
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Yes, I am on dialysis and I have been on Medicare for since 1998. What I cannot get is a supplemental insurance.
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:welcomesign;
You are amazing! Look into www.cota.org It is Childrens Organ Transplant Association, but there are quite a few adults with sites on there. I pay $700 per month for my family insurance through work and then another $100 per month for medicare for my daughter on dialysis and another $280 for prescription co-pays. It seems that all of her meds have the max $50 co-pay and medicare part D would not be much help on most of them. Also, my daughter is only 15 years old and doesn't qualify for any social security assistance. I take her to dialysis once per week, but have to pay someone else to take her the other 2 days (1 hour commute each way) and stay with her. I plan to be out of state for my daughter's transplant soon (not finalized yet) and am required to be at Stanford for 100+ days so I will be out of work for quite a while. Our insurance doesn't cover kidney transplants at the only hospital that performs pediatric kidney transplants in an 8 state region so we have no choice but to go out of state.
Check into www.cota.org or I think another great site is payitforward. Both will help you get your story out there and fundraise to help pay for insurance, hospital bills, etc. My daughter has a great group that has raised almost $40,000 in 8 months. It is hard enough having the health issues, you don't need financial stress.
Best of luck to you and I am glad that you joined this great site. :grouphug;
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:welcomesign;