I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: pamster42000 on June 04, 2009, 03:57:09 PM

Title: pamster42000 introduction
Post by: pamster42000 on June 04, 2009, 03:57:09 PM

My name is Pam and my daughter, Sarah was on dialysis and had two transplants. She was diagnosed with a rare kidney disease named Membranoproliferative Glomulernephritis Type 2 when she was six years old, in 1988. During her periods of transplants she attended the 1994, 1996 and 1998 U.S. Transplant Games. She attended Camp Chimer, a summer camp for children on dialysis or who had a transplant. She played softball and table tennis. Sarah and I held a coloring contest while she was in school to promote organ donation. She received her first transplant in 1993 and then another in 2000. The first transplant lasted five years and the last about a year and a half. Sarah passed away Oct.1, 2007.

I joined this site that maybe I can give advice or learn something new I didn't know. From the experiences Sarah had I know dialysis is no picnic and by getting a transplant a person has a better quality life.

Title: Re: pamster42000 introduction
Post by: okarol on June 04, 2009, 04:14:58 PM

Hi Pam,
I am so very sorry to hear of your loss. I am sure you have a great deal of wisdom and emotions that you can share and I am glad you joined us. I have a daughter who has been dealing with CKD since she was 14 years old. She sometimes hides her head in the sand - I wish she was more active with kidney issues but she has said "Mom, I don't want to be 'Kidney Girl." - so I stay active and learn all I can. She is now 23 years old and 2 years post transplant.
I am sure Sarah was a very special person - and I hope we get to know more about you both.
Welcome!
okarol/admin

Title: Re: pamster42000 introduction
Post by: willieandwinnie on June 04, 2009, 04:25:45 PM

 :welcomesign; Pam. It broke my heart to read your story and it is a wonderful thing you are doing in memory of Sarah to continue to learn and share your experiences. We have lots of information but also support here and we look forward to hearing more from you.  :cuddle;

Title: Re: pamster42000 introduction
Post by: willowtreewren on June 04, 2009, 04:30:50 PM

Pam, your introduction brought tears to my eyes. I always tear up over transplants, but learning of your loss along with your joining our group as a voice of wisdom took my breath away.

You are a very special person as I am sure your daughter was, too.

Thank you for joining us. This is truly a wonderful family and I am glad you are here with us now.

Aleta

Title: Re: pamster42000 introduction
Post by: MandaMe1986 on June 04, 2009, 05:32:55 PM

My heart is breaking for you. I am so happy you found us, I hope to see you around.  :grouphug;  :welcomesign;

Title: Re: pamster42000 introduction
Post by: Joe Paul on June 04, 2009, 10:55:57 PM

Welcome Pam, good to have you aboard.



                                                                   
 

Title: Re: pamster42000 introduction
Post by: Hanify on June 05, 2009, 12:32:40 AM

Oh Pam, so sad to hear your story.  Perhaps you can share some lovely memories of your daughter with us. 

Title: Re: pamster42000 introduction
Post by: monrein on June 05, 2009, 04:18:04 AM

 :welcomesign; Pam but I am so very sorry about Sarah and what a tough time she and your family have been through.  I look forward to your participation here as I feel sure that you have much that we can learn from.   :grouphug;

Title: Re: pamster42000 introduction
Post by: paris on June 05, 2009, 10:15:42 AM

Dear Pam,  I am so very sorry. Helping others will honor Sarah and will give others more insight.  We are glad you joined and look forward to learning more about you and Sarah.   We are also here for support and friendships.  No Mother should have to bear the pain you have gone through.   You are among friends   :grouphug;





paris, Moderator

Title: Re: pamster42000 introduction
Post by: Romona on June 05, 2009, 03:55:30 PM

Pam, Thank you for sharing Sarah's story with us.  :grouphug;

Title: Re: pamster42000 introduction
Post by: Rerun on June 05, 2009, 05:13:41 PM

Pam, you are a good Mother and Sarah was lucky to have you, as I'm sure you feel luck to have had her.  I'm so sorry she went home, but she is in a better place and you will meet again someday. 

Thank you for joining our site.  Please come and post often.  Your experience is invaluable.

                                               :welcomesign;

Title: Re: pamster42000 introduction
Post by: Bajanne on June 12, 2009, 11:23:05 AM

Welcome to our community!   What a wonderful way to keep your Sarah's memory alive - reaching out to others.  We appreciate you joining us and look forward to your contribution.  Sorry I only just saw your intro - been having some connection problems. 
Looking forward to hearing much more from you.





Bajanne, Moderator

Title: Re: pamster42000 introduction
Post by: paul.karen on June 12, 2009, 11:33:04 AM

Well i was reading and had a big ol smile and was happy to hear how Busy Sarah is and so involved in so many things.
Then i got to the end of your post.  I am sorry you lost Sarah so young.  But i am happy she had you as a mother and that you both were so dedicated and busy with your proactive approach to this disease.  Many people hide and pretend it isnt happening.  You can give hope to many people.
RIP SARAH

I hope to see you on many threads here.