I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: djgaryb11 on May 28, 2009, 06:37:23 AM
-
I put together an informational video about Peritoneal Dialysis and using the Baxter HomeChoice Automated Cycler Machine...for any of you that will be starting on the Cycler this will give you an idea of the process that is done every night if you start using the Cycler machine...the video is posted on you tube.....here is the link...Gary
http://www.youtube.com/watch?v=LriX7okbAqU
-
Gary that is fantastic! So informative and made to look easy for someone facing the unknown of PD.
I am curious.... how does the second bag get warm? So you have a drainline to your toilet that disposes of your used fluid? Doesn't the toilet overflow?
I hope you get a donor soon.
:clap;
-
The fluid from the 2nd bag gets drawn up to the first bag after fluid is taken out of the the first bag after the first fill cycle....and it conitinues to do that after every fill cycle.....Yes, the drain line that goes to the toilet is where the used fluid that is drained out of you is disposed of. The toilet does not overflow.
-
Excellent video, Gary. I see you don't cover your exit site, just like me (all the tapes just give me rashes). The only time I cover my exit site is the day I see the doctor, and then I just put a band-aid on it. My only suggestion is perhaps an indication that while you use two 6,000 bags, others (like me) use 5-5-3 or some other combination. Might confuse a newbie wondering why they have 3 bags when you only had 2.
This is something to be proud of. You are a credit to the IHD family :clap;
-
:2thumbsup;
Excellent i just got off the phone with wellbound who is helping me find a doctor to put in my PD access. The one my neph told me to go to doesnt accept amerihealth.
So easy a caveman can do it LOL did you wear that shirt on purpose :thumbup;
After you plugged in and started the machine it said starting to drain?? But it should have been filling?..
Thx for making that video very helpful i know what a PD access looks like.
I am deciding if i want mine in my stomach or chest.............
:waving; Peleroja i think he did mention different people use different amounts or size bags. ;)
-
Great video, Gary. Paul, many of us are carrying fluid during the day so that the first function of
the cycler is the initial drain. After draining then the first fill and then the dwell period.
-
Glad you all liked the video....during the video I mention that I only use 2 bags of 6000ml and that others may use 3 or 4 bags...so if you listen to that part of the video you will hear me explaining that....As far as my exit site, I had to keep it covered for the first 6 months, then my PD nurse said it was up to me if I wanted to use a dressing over it or not....I kinda alternate, some days I put a dressing on it, other days i don't......Oh, yeah....I carry some fluid in me during the day, so when the machine first starts it first does an initial drain...then it does a fill...some people don't carry any fluid in them during the day, others do...it just depends on what treatment is right for your body and what your doctor/nurse thinks is best for your dialysis....Gary
-
Super job Gary! Very informative!!!
-
Great video - I'm going to share it with friends and family so they know what I do. What did you have in your hands when you connected your bags? I just screw the bag onto the cassette thing, but you seemed to have a machine or something? Also, I was never taught to do the bp or temp bit at the beginning. I just weigh myself in the morning once, and decide on the bag strength from that.
-
Nice job Gary, thank you!
-
Great video! It's all exactly like I do, including the 9 hours at night... I do have to start the machine in the afternoon though, and do an exchange then also. I do the weight, temp, blood pressure, and also have that thing to connect the tubes. I think it's a CXD? (____ exchange device??) The toilets automatically let out the "liquids" when it gets to a certain amount in there, so that they don't overflow. (Well, unless they are plugged up. lol)
-
I have this little device that Baxter makes that helps you connect the bag lines to the bags of fluid, and it is supposed to cut down on the chances of contamination....so instead of pulling the caps on the lines and also pulling the caps on the bags...and then sticking the line into the fluid bag, I kinda stick the line with the cap still on it into this device, and then place the tip of the bag in there...pull the cap from the bag...then close the top of the device, and using a lever, I push down on the lever and it pulls off the cap from the line without me ever touching the line and then sticks it into the end of the fluid bag....I notice from other videos out there that some people use this device and some don't...Gary
-
:thumbup;
Gary that was awesome and I thank you so much for that video. It certainly looks " so easy a caveman could do it" Answered a lot of questions for me and maybe I will do that after all.
-
Great video! :2thumbsup;
This would be a great promotional item for peritoneal dialysis. With this video, people who are new to dialysis would be able to see that peritoneal dialysis is a viable option.
-
This is very cool! Interesting to see how different our machines are and how we certain things in different ways. I use the Liberty cycler and the cassettes are somewhat similar but the screen is completely different. Excellent video!
PS: I NEED that clamp you have for the toilet! I had my first incident the other day where the tape came unloose and flooded the whole bathroom... :oops; That sucked... can you give me a direct link to the place you got it?
-
That little clamp I use for the drain line is called a "Genia Clip", and is by Stickman Industries...it only cost $ 8.00 and is well worth the investment. Here is the direct link for the web site ...and check out the other products on there...I also use the PD Belts they sell on there...they work great to.
http://www.kidneystuff.com/accessories.html
-
That is really awesome that you made that video.. Thanks
-
My bad, Gary. I never hooked up my speakers, and I was going only by what I was reading. You were so thorough, I should have known there was sound!
-
I have a friend who started dialysis unexpectedly in January. Now they have told him his kidneys would never come back. I sent it to him. I think PD would be best for him rather than a fistula. He works construction.
Thanks again for this tool.
-
Rerun: Wouldn't your friend have a problem with restrictions on carrying weight because of the
PD catheter? I've been told not to carry more than about 12-15 lbs.
-
Steve do you know if it matters if your carring fluids or not during lifting?
-
Hi Paul.karen; Steve might know different, but I think the restriction comes as soon as you have the catheter in. I was told about the lifting immediately, before I even started dialysis. At the time, we weren't even sure if I'd start dialysis immediately, or wait a bit; the dr. just wanted to make sure the catheter was in & ready. I was told then though, no lifting more than 10 - 12 pounds. I remember, because I was told that I couldn't pick up my little granddaughter anymore... I hated that worse than the dialysis!
-
I wasn't sure but good answer from Jenabcd. It may be the problem is that the catheter
breaches, and thus weakens, the abdominal wall which make hernias easier to happen.
-
I do carry fluid during the day, but was told not to lift over 15 lbs due to risk of hernia.
-
Sorry, forgot the purpose of my post. Excellent Video
-
Thanks :) I went to the sight and purchased the clip, I can't wait to start using and it stop worrying about floods! Also, I was surprised to see your catheter itself looks different than mine.. do they differ according to area, the company we use or the hospital?
-
Rerun: Wouldn't your friend have a problem with restrictions on carrying weight because of the
PD catheter? I've been told not to carry more than about 12-15 lbs.
OH, I didn't know that. Thanks!
-
My Catheter is a Baxter Catheter...so if you don't use the Baxter system of PD your Catheter might be different....Gary
-
How do people get on who do pd and live by themselves? Because we don't have the system where it can go into the toilet, I end up with a 15kg bag in the morning. Even trying to drag that weight to the shower would be a bit iffy I think. I was never told not to lift heavy things - it's just that I can't anyway.
-
That is a wonderful video! Thank you for sharing it. You did a great job of walking us through each step. :2thumbsup;
-
I wasn't sure but good answer from Jenabcd. It may be the problem is that the catheter
breaches, and thus weakens, the abdominal wall which make hernias easier to happen.
This is very true!
-
Nice work on the video!
-
I wanted to come back and THANK YOU for introducing me to the genia clip! Who knew such a small thing could be such a large help! It cuts off at least 5 minutes of my preparation time since I don't have to struggle to tape the line to the sink :2thumbsup;
-
Yeah that Genia Clip is a great little invention...It has worked perfectly every time I have used it...never had the line jump out of it or anything..Gary