I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Neo on May 25, 2009, 01:15:51 PM
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Just wanted to check in on everyone and see how your doing. Things are good with me just doing a lot of studying (as usual..lol). My dialysis issue was resolved which has taken a lot of stress off as well.( Thanks to a lot of your advice by the way) So how are YOU?
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Glad to hear you're doing better, Neo. I'm doing great! Thanks! :waving;
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Glad yours has been resolved , now its my turn !! I have been feeling like c*** since i swapped from CAPD to the Cycler. Im either fluid overloaded or dehydrated beyond a joke.
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Dialysis for me lately has been boring - just the way I like it! No crashing, no cramping, no puking, no scary lab results. I feel pretty good most of the time. I came home and took a nap today, but then I've been busy, busy, busy, so it's not a surprise that I'm tired. I do wish I had more energy - but given that my hemoglobin is 12.8 right now, and I just finished a dose of iron, I realize that there's a limit to what they can do to compensate for my lack of kidney function. I have to remember that I am on life support, and I'm still not healthy, no matter how good my treatment is going!
Glad you got some of the problems solved with your dingbat nurse, Neo!
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Hi Neo, It is always good to see your handsome, smiling face. Glad you got the issues resolved! Keep studying. We need more people like you in the medical flield :2thumbsup;
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Hey, Neo,
Dialysis is going well for us ... except a BIG thunderstorm has swept in and I'm hoping I don't have to fire up the generator to get through tonight's treatment! :o
Aleta
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I'm just like jbeany. My dialysis has just been boring. Same old routine: Start setting up my machine around 8:00 pm, I'm usually on by 9:00, and I'm usually done and have my needles out just before midnight. Then I go right to bed. Same thing, day after day after day. I'm glad things are going better for you, Neo.
Adam
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Neo, you are just so darn cute!
glad to see a smile on your face....
I have a sore rear end for the last three hours of dialysis and I am beginning to itch and it feels like red ants -- the unit is trying to talk me out of benadryl because I drive home ----
any suggestions for a sore read end ????
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Neo, you are just so darn cute!
glad to see a smile on your face....
I have a sore rear end for the last three hours of dialysis and I am beginning to itch and it feels like red ants -- the unit is trying to talk me out of benadryl because I drive home ----
any suggestions for a sore read end ????
Massage is the only suggestion for a sore rear end. Works best if you like the person administering the massage.
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I am so glad that things are going better for you and that you got your issues resolved. Things with me are going great. My fistula is getting a pump speed of 500, and they cut my time by 15 min. :yahoo;
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My dialysis is also boring. However my boring may be different than yours. I get put on about 6am and then the fun starts. We seem to have a game we play: depending on how HIGH, thats right I said HIGH will depend on how my dialysis goes. The higher the better. I go for 4 hours so about halfway through by blood pressure ususally drops into the 80's. :cheer:. We have been going through this since I started dialysis.
However, ever since I got the HeRO device (anyone here have one?) I get some cool 8) readings. For example: 25/11, 249/143 etc. I bounce all around the globe. I know part of the problem is that I have them taking my blood pressure in my leg. But still, even when I wasn't, I was still getting goofy readings. ::)
Sometimes I just don't get it. But we have a great time guessing what my blood pressure is going to be today.
EDITED:Dropped color and size tags-kitkatz,Moderator
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Hi Neo glad your your problems have been sorted. Haemo is going pretty well for me. I do 3 hours 3 times a week, should be four but I'm a member of the awkward squad and 4 hours would drive me stir crazy. In spite of that the Doctors say my bloods are good. I feel well so I'll stay on three for the moment.
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Glad things are going well NEO... I have only been to Dialysis twice and I feel good besides the headaches and tingling feeling I get but I feel pretty good. I hope that things keep going well for you.
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Glad to hear it!
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Glad you are doing well and studying. I think this is my "off" week. Fri I got shorted an hour due to tech problems so Mon I went in overloaded and seriously feeling it. Hadn't slept for 3 days so finally fell asleep in the chair and my tech starts yelling...are you ok, ANN, ARE YOU OK....you never sleep...so much for the first time, LOL. Then Dr comes and says my clearance is so good and other numbers as well so he is reducing my time to 3.5 hours instead of 4, I told him "My butt thanks you" and off he went. My BP took a serious nose dive, cramps, and migraine, I crawled to my car, drove home behind a city bus so I could stop a lot and breathe, crawled in the house, grabbed the phone, crawled under the covers and called my kids to check in..I asked them not to breathe so loud on the phone as I could feel my hair growing..Saul called and I asked him to only call if he could do it without the phone ringing...migraine was gone this morning but dizzy was alive and well...good thing I have furniture to hang onto..I'm now drinking some hot tea and I think I'm finally balancing out....sorry to write a book but you asked. Have a great day. It's all good. :bandance;
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Dialysis and its associated pain have really dwindled since I started using my new fistula. They tried to use it at Week 5 and it blew up into a "fistulatoma." We're progressing to bigger needles eventually, but right now I'm using two 17 gauges. Next week we move to 16 and finally 15 the week after. Then I'm allowed to say goodbye to my chest catheter.
If I stop having pain and difficulty at Dialsysis, does that mean I'll stop being a sarcastic curmudgeon?
Probably not.
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We can only hope....
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If I stop having pain and difficulty at Dialsysis, does that mean I'll stop being a sarcastic curmudgeon?
Probably not.
Hasn't worked for me yet!
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Glad yours has been resolved , now its my turn !! I have been feeling like c*** since i swapped from CAPD to the Cycler. Im either fluid overloaded or dehydrated beyond a joke.
It is your turn.. I complained enough..lol Im sorry to hear that, fluid is the hardest thing for me to manage out of all the things we have to manage. Im not as familiar with peritoneal dialysis, but I hope you start feeling better soon..
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I'm just like jbeany. My dialysis has just been boring. Same old routine: Start setting up my machine around 8:00 pm, I'm usually on by 9:00, and I'm usually done and have my needles out just before midnight. Then I go right to bed. Same thing, day after day after day. I'm glad things are going better for you, Neo.
Adam
Thanks, you do dialysis at around the same times as me. you do yours at home right? Im thinking of doing that sometime.
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Neo, you are just so darn cute!
glad to see a smile on your face....
I have a sore rear end for the last three hours of dialysis and I am beginning to itch and it feels like red ants -- the unit is trying to talk me out of benadryl because I drive home ----
any suggestions for a sore read end ????
Yea I get that too..lol I drive home after my treatments as well and they have a rule as do I that the latest I can take the benadryl is 1 hour before I get the needles out. It filters out of your system relatively quick because of the dilaysis machine filters it. If you find the cure for a sore rear end after dialysis you will be a millionaire becasue every patient in the world woudl pay good money for that..
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I am so glad that things are going better for you and that you got your issues resolved. Things with me are going great. My fistula is getting a pump speed of 500, and they cut my time by 15 min. :yahoo;
Wow! 500? I didnt even know you get it that fast. You must get a real good clearance congrats!
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My dialysis is also boring. However my boring may be different than yours. I get put on about 6am and then the fun starts. We seem to have a game we play: depending on how HIGH, thats right I said HIGH will depend on how my dialysis goes. The higher the better. I go for 4 hours so about halfway through by blood pressure ususally drops into the 80's. :cheer:. We have been going through this since I started dialysis.
However, ever since I got the HeRO device (anyone here have one?) I get some cool 8) readings. For example: 25/11, 249/143 etc. I bounce all around the globe. I know part of the problem is that I have them taking my blood pressure in my leg. But still, even when I wasn't, I was still getting goofy readings. ::)
Sometimes I just don't get it. But we have a great time guessing what my blood pressure is going to be today.
Do you take BP pills? If you are ask your doc if you should take less on dilaysis days Mine drops as well at the end of my treatment to the 95/50 range but not til the end of my treatment and it basically lets me know i hit my dry weight. good luck
EDITED- Fixed quote tag error- kitkatz,Moderator
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Hi Neo glad your your problems have been sorted. Haemo is going pretty well for me. I do 3 hours 3 times a week, should be four but I'm a member of the awkward squad and 4 hours would drive me stir crazy. In spite of that the Doctors say my bloods are good. I feel well so I'll stay on three for the moment.
I hear you! thats why I get the benadryl. Without it the pain and restlessness drives me crazy.. Glad to hear your getting good clearances with 3 hours.
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Glad things are going well NEO... I have only been to Dialysis twice and I feel good besides the headaches and tingling feeling I get but I feel pretty good. I hope that things keep going well for you.
You just started? If you have any questions about dialysis let me know, and I know since you found this site you can see how great everyone is here about answering questions. Everyone here is so incredibly knowledgeable. Keep in Touch
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Glad you are doing well and studying. I think this is my "off" week. Fri I got shorted an hour due to tech problems so Mon I went in overloaded and seriously feeling it. Hadn't slept for 3 days so finally fell asleep in the chair and my tech starts yelling...are you ok, ANN, ARE YOU OK....you never sleep...so much for the first time, LOL. Then Dr comes and says my clearance is so good and other numbers as well so he is reducing my time to 3.5 hours instead of 4, I told him "My butt thanks you" and off he went. My BP took a serious nose dive, cramps, and migraine, I crawled to my car, drove home behind a city bus so I could stop a lot and breathe, crawled in the house, grabbed the phone, crawled under the covers and called my kids to check in..I asked them not to breathe so loud on the phone as I could feel my hair growing..Saul called and I asked him to only call if he could do it without the phone ringing...migraine was gone this morning but dizzy was alive and well...good thing I have furniture to hang onto..I'm now drinking some hot tea and I think I'm finally balancing out....sorry to write a book but you asked. Have a great day. It's all good. :bandance;
Dialysis is so hard to sleep at i wear a sleep mask and earplugs..lol I loof hilarious. I feel like that as well when i get off the machine. Congrats on getting your time shorted. Im glad you wrote so much I DID ask.. ;D
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Dialysis and its associated pain have really dwindled since I started using my new fistula. They tried to use it at Week 5 and it blew up into a "fistulatoma." We're progressing to bigger needles eventually, but right now I'm using two 17 gauges. Next week we move to 16 and finally 15 the week after. Then I'm allowed to say goodbye to my chest catheter.
If I stop having pain and difficulty at Dialsysis, does that mean I'll stop being a sarcastic curmudgeon?
Probably not.
LoL... Well I at least you can get that catheter out. I had a catheter like the first 3 months I started dialysis 5 years back and I hated every minute of having it in.
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Wow! Ok I think I answered all the posts..LoL I did ask for it didn't I... I love hearing from and reading all your posts.A lot of you said your bored on dialysis, and if you are try bringing your laptop like I do to your treatment and read the posts on this board. We are pure entertainment here.. :bandance;
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dialysis is good. Getting my supplies here in time, that's another issue. Nxstage logistics suck. I can't wait fort he Baxter/ Fresinius home machine comes out, just to see if the Baxter Logistics side works better than the NxStage people.
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The tech hit a nerve last night. EIght hours of a needle on a nerve can rattle my cage sometimes. I agree with you about Benadryl and Tylenol, without it I would have had a miserable night, as it was I woke up at three sweating and hot, blood pressure crashing. Saline and turned me off, and I was good to go in a half an hour. The last hour the nerve decided to object to having the needle in it. The entire elbow was aching. This does not happen often luckily. The tech who sticks me regularly is getting to know the arm and the nerve areas.
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wow owieeeeee....I know they would have had to scrape me off the ceiling.
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Hi Neo
Glad to hear you are feeling better!!! Been on dialysis three months now and all going well now that I am home. Did it for the first time yesterday without anyone at home and it was all fine. No probs. I am sure you could manage yourself really well at home if you have that choice. Gives you a lot more freedom time wise and while I am not doing nocturnal yet, when I need the extra hours I will definitely start doing it during the night. I have started playing golf. Having a few lessons a week. I use to play a lot of tennis but don't feel quite up to all the running around the court but I am loving the golf!! I started to help strengthen up my graft and bring it closer to the surface but I am getting hooked. Frustrated....but hooked none the less!!!
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I didn't know you could do haemo at home by yourself. How do you get the needles in one handed? My pd is going fantastically well by the way. Yay.