I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: reg28enia on September 21, 2006, 12:56:34 PM

Title: New Member
Post by: reg28enia on September 21, 2006, 12:56:34 PM

 My son is 10 years old and is going into kidney failure. We are scared to death. We belive he will have the type od dialysis at home over night. If any one has any advice for children in dialysis we could use it.

Title: Re: New Member
Post by: Joe Paul on September 21, 2006, 02:13:12 PM

Welcome reg28enia , glad you found us, sorry you and your son have suffer with this awful disease.

Title: Re: New Member
Post by: mallory on September 21, 2006, 02:48:55 PM

Welcome reg28enia.  Sorry to hear about your son.  I don't know very much about pediatric dialysis, but here is a link to a website:

http://www.meganshome.net/index.html

The website is about a little girl named Megan who lost her kidney function due to vasculitis.   She was on peritoneal dialysis, the same kind you're looking at for your son, for just over a year.  In May of this year she had a successful kidney transplant from her mom.

You can email her parents, they may have some advice for you.  Good luck, and I'm glad you found this site.

Title: Re: New Member
Post by: Fox_nc on September 21, 2006, 03:52:43 PM

 :welcomesign;

Title: Re: New Member
Post by: angieskidney on September 21, 2006, 04:26:52 PM

Glad you are here! I was one of a bunch of kids that were called the Kidney Kids. So I know some of what your son might feel about being a "Kidney Kid"    :welcomesign; I started PD at 16 but was in and out of hospital since 9

Title: Re: New Member
Post by: Rerun on September 21, 2006, 04:34:16 PM

Welcome Reg28enia.  I think you will find this site very helpful.  You son might enjoy the Arcade Game Room.  Please tell us a little more about yourself.  Are you from the United States?  Are you married?  Just wondering how much support your son will have.  Brothers and sisters??

Title: Re: New Member
Post by: Bajanne on September 21, 2006, 10:59:28 PM

 :welcomesign; to our community!  We are here for you.  Feel free to ask questions, to vent when you need to.  Give your son a special hug from all of us.  :grouphug;

Title: Re: New Member
Post by: Zach on September 22, 2006, 04:59:52 AM

Welcome to the site.      :)

Title: Re: New Member
Post by: AlasdairUK on September 22, 2006, 05:56:53 AM

Welcome to the site, I started dialysis at 15 and had both PD and HD. I was a bit older than your son, but feel free to ask any questions and I'm sure we can come up with the answers.

Cheers
Alasdair

Title: Re: New Member
Post by: Sluff on September 22, 2006, 07:06:06 AM

This is a nondiscriminatory disease. Welcome to the fountain of knowledge.