I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: joyfulmother on May 20, 2009, 04:05:18 PM

Title: Latest Planning Round and Report
Post by: joyfulmother on May 20, 2009, 04:05:18 PM
This past month has been a rough one for me.  Even though I went through training and was taught better, I managed to get myself dehydrated and felt rotten!  My blood pressure got low and they took me off my meds for that.  It kept getting lower and they put me on meds to get it higher (which I thought was awfully ironic).  In the middle of this, I had my kineticks (?) test and as they had thought since I was a low transporter, they added one manual exchange to my treatment in addition to the nightly cycler.  I didn't mind at all - I was ready to go back to four a day manuals if it would make me feel better.

Now I am hydrated and my bp is coming back up.  I do the exchange some time after lunch and it doesn't seem like a big deal at all (since I'm always home).  I am feeling better and ready for summer!!

My phosphorus was high a month ago and they put me on binders.  This month they changed my binders.  Now I am getting even more serious about my diet.  Good bye cheese!  I'm also working hard on losing weight!!  Overall I still feel like I am doing good!  I just hate this restless leg stuff!

God bless you all!
Title: Re: Latest Planning Round and Report
Post by: pelagia on May 20, 2009, 10:32:29 PM
It's great to hear that you are doing so well.  :cheer:
Title: Re: Latest Planning Round and Report
Post by: KICKSTART on May 21, 2009, 03:45:20 AM
Its a nightmare isnt it ! Try this, do that, you get so fed up ! As far as restless legs go there are several threads on here suggesting trying different things which might be worth a look?
Title: Re: Latest Planning Round and Report
Post by: willowtreewren on May 21, 2009, 10:09:55 AM
What does your potassium look like? High potassium can cause RLS.

Aleta
Title: Re: Latest Planning Round and Report
Post by: joyfulmother on May 21, 2009, 11:09:41 AM
I'm taking some thing for potassium but I believe the dr said it was creeping up a bit