I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: BETTY55111 on May 19, 2009, 02:25:23 AM
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How do you handle a 2000 bag of liquid? I can hardly breathe. Last night was the first night I tried sleeping with it in me and I slept about 3 hrs and woke up with a terrible back ache. I had to get up and drain. this is my first day going to work and I look like I am 8 mo pregnant. My question is do you ever fill with less than 2000mm?
I hate to sound so whiny but I am so uncomfortable.
Betty
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Hi Betty , havent you just started on CAPD ? Whats your regime ? Yes 2000 bags are filling! ,but really when you are lay down at night they shouldnt be as bad, i think its just a case of getting used to it , which does take time. One thing thats not good though is draining it out before your dwell time is up! It means you are not getting enough dialysis. Are you on 2000 fills during the day ? I was always supposed to be on them when i was on CAPD but always put in 1800, not a lot of difference, but made it easier! Now i have just changed over to the cycler and im on 2000 at night and even after all these years i notice a difference (like im going to explode!) As for looking pregnant ..sorry thats going to stay , i think its one of the things we all hate about it ! I would ask if you can start on 1800 dwells and build up to 2000 as it is very hard to start with . :2thumbsup;
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Yes I just started. I am at work now and so miserable I could cry. I am going home at 9 AM and when I fill I not putting in 2000. If I make it until 9.
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So even after you drain you still feel/look 8 months pregenant?
Sorry your feeling so bad. It will get better betty
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I just went home and drained and filled, I drained 2200 and I had put in 4.25- 2000 this morning. i then filled with 1500 2.5 just now and I don't feel as bad as I did with the 2000. No I don't look and feel uncomfortable after I drain.
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Betty can i ask you .. how many exchanges you are doing in one day ? What volume ? and what strength? Maybe i have misunderstood but from what you wrote earlier, you did one exchange this morning and one tonight and thats it ?
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I am doing 5 exchanges a day. The nurse said that since I cannot do the 2000 then I have to do 5 instead of 4. She said I could put in 1600 and do 5. Today was my first full day of filling and draining.
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I am doing green and red 1600
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It can depend a lot on how tall you are. I'm lucky cos I'm 5 ft 7. Are you a bit shorter? It must be a lot harder for a shorter person. Also, I'm not a doctor so check anything I say, but don't worry if you try putting a bit less in for a bit till you get used to it. Once they got me to try 2.5 bags, and I was amazed at the difference. Couldn't breathe, so went back to 5 x times a day like you. It's way harder doing 5 though - takes up so much more time. Your body will adjust I promise. Thinking of you.
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I hope you get it worked out, Betty. :cuddle;
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I hope that doing one extra exchange but with less fluid helps :2thumbsup; I have been doing dialysis for 5 yrs and still cannot take 2000 during the day , although i can manage it at night now , but i feel like im going to explode. ! You will get more used to the feeling after a little while and 1600 isnt so bad. Watch your appetite though , if found because i felt full of fluid i didnt really want to eat , so the best thing to do is eat little and often , rather than say 3 big meals .
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That is so true Kickstart about the appetite I did not eat yesterday. I could not eat. I am much better today with the 1600. I will at time try and put more in.
I love this group :clap;
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Just take it one day at a time , it seems to take ages to get used to the fluid , the weight (but you never get used to looking pregnant!) Just try little snacks till you get more used to it , also forgot to mention watch for constipation! You might not notice but one of the signs is that the amount of fluid you drain out wont be alot , it sort of blocks it if your constipated.
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Oh yeah! My first week or so I felt tremendously bloated. I was doing 3000 mls bags during manual
exchanges because of my size. I had to go out and buy new pants with an elastic waist. I still wear them
because belts cinch accross my catheter. After 1-1 1/2 weeks I got used to the fluid. Good luck, Betty.
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Hows it going Betty? A bit better? :thumbup;
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Hey Guys I think I got this down now. At least until I am thrown another curve, ;D
Every thing is filling and draining. i am doing 1600 5x a day. So far it looks good.
Betty :2thumbsup;