I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Bajanne on May 17, 2009, 07:45:02 PM
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As I told you, I was asked to help with our unit's bulletin board. Petey gave an excellent idea about 'Did you know?' and I have started to do that. I made a sign with 'Did you know' and every now and then I will change the item underneath.
My first one is - ...that starfruit is toxic to dialysis patients and should not be eaten by them?
The next will be ...that you need your binders (Phoslo, Tums) to keep the balance between phosphorus and calcium, since your kidneys can no longer do so?
Please help me by thinking up and adding items to this thread. Keep it simple (very simple!) and informative. One I am thinking of is to do with heart health, but I don't know how to word it yet. I want to show that this is an area we have careful about in order to prolong our lives.
I am depending on my IHD family. I know my supervisor asked me because she believes that I have access to much knowledge through our forum.
Here is a picture of the DID YOU KNOW poster...
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DID YOU KNOW that after transplant you CANNOT eat grapefruit, or items containing grapefruit, due to the fact that it interacts with your anti-rejection meds! DANGER!
or did you want to kep this strictly dialysis related?
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That ihatedialyss.comRocks!
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that the more you know about your treatment and options, the better off you are on dialysis.
thee are several options for dialysis: Hemo, PD, and home hemo. Ask your doctor now.
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Something you might put in about the binders thing on calcium and phosphorus are what the potential consequences of not having calcium and phosphorus within normal levels.
I have seen too many that have labs out of whack in this area and since they do not feel the effects right away they almost ignore their labs in this area.
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Or maybe you could say dat your your own advocate n dont b scared 2ask questions
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Did you know... that large fluid gains between treatments is not healthy for your heart
Did you know... there is more than one treatment option!! Educate yourself
Did you know.... you need to do dialysis to live not live to do dialysis!!!
Did you know... that home hemodialysis is an option!!
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Did you know that skipping treatments can kill you... the more dialysis the better.
( But who cares because you are going to die anyway! ) :rofl;
Did you know to keep a list of your medications with you at all times?
Did you know that you need to check your fistula three times a day to make sure it is still working and if there is a change to call your doctor.
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Did you know you should NOT have IV Iron if your blood pressure is too high !
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DID YOU KNOW that you should NOT allow anyone to perform blood pressure checks, draw blood or give you shots in your fistula arm?
DO YOU KNOW about button holes?
DO YOU KNOW your correct dry weight?
DO YOU KNOW what each of the alarms on your dialysis machine mean?
DO YOU KNOW the symptoms for low/high blood pressure?
DO YOU KNOW the symptoms of "crashing"?
Are these any good? I've never been on dialysis... sorry if I'm way off base.
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Excellent! [Kelly, you did quite well!]
These are really great! I will be using themDID YOU KNOW that after transplant you CANNOT eat grapefruit, or items containing grapefruit, due to the fact that it interacts with your anti-rejection meds! DANGER!
This is great because it is not only a problem with anti-rejection meds, also Lipitor which I use. There are many medications for which grapefruitis counterindicated. I will put us one about grapefruit.
Keep'm coming, guys! You are doing well.
Think of yourself helping dialysis patients a long way away in the Caribbean!
I am now thinking that I need another poster saying 'Do you know..?'
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that you need to come to all of your dialysis treatments. I know one patient who has never missed a treatment in ten and a half years so far!
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How about some historical facts?
Did you know that Dr. Willem Kolff is considered the father of dialysis? This young Dutch physician constructed the first dialyzer (artificial kidney) in 1943.
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that you need to come to all of your dialysis treatments. I know one patient who has never missed a treatment in ten and a half years so far!
That's REMARKABLE!!!! I wonder if they have ever been sick despite that they have never missed a treatment? Do you know?
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That patient is ME! Yes I get sick periodically. The usual things-colds, flus, etc. However I think because I make every treatment regularly and do not skip I am staying pretty healthy. Plus the change to nocturnal has made a world of difference in my health!
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Oh, I did not realize you were talking about yourself. :rofl; Anyways, that is REMARKABLE!
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Did you know that Home Dialysis is an option you may want to consider?
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Did you know that Home Dialysis is an option you may want to consider?
sorry, but that is not an option here. The only option here is in-centre haemodialysis.
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Did you know that Home Dialysis is an option you may want to consider?
sorry, but that is not an option here. The only option here is in-centre haemodialysis.
Huh? I thought you were asking for ideas for a bulletin board. Dialysis centers love home dialysis $$. Plus other dialysis patients may not realize they could be candidates.
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Did you know that psyllium fiber capsules can bind to minerals like phosphorus? Take some with your meals, and you can relieve your constipation and bind up some phosphorus at the same time.
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Did you know that Home Dialysis is an option you may want to consider?
sorry, but that is not an option here. The only option here is in-centre haemodialysis.
Huh? I thought you were asking for ideas for a bulletin board. Dialysis centers love home dialysis $$. Plus other dialysis patients may not realize they could be candidates.
Now think about it, Bajanne lives on an island in the Caribbean. So not everything is available to the there.
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How nice that Bajanne lives in the Virgin Islands! What Island?
Here's a link for a dialysis center in the Virgin Islands offering home hemo.
http://www.vikidney.com/hemo.htm
As a patient "I would want to know....." what all my options are including ones not necessarily offered by a particular unit. That way I have choices.