I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: Scuderia813 on May 07, 2009, 11:01:53 PM

Title: Hi eveyone
Post by: Scuderia813 on May 07, 2009, 11:01:53 PM

Wow, they were right, i does exist. A friend told me about this site and I am so glad to see there are others like me than can laugh as well as cry about having to go thru this...adventure. ESRD was my 30th b-day gift and it's almost one year later. One day I woke up with a head ache, three days later woke up with a posi-port sticking out of my chest, two days later i woke up to this thing buzzing in my wrist. Three days a week I get my ass kicked hemo and no one can tell me why other than "yea, that happens to some people". Hopefully If I can edjucate myself more I can overcome the feeling like this runs/ruins my life. Hope the best to all of you.

Title: Re: Hi eveyone
Post by: Joe Paul on May 07, 2009, 11:10:01 PM

Welcome Scuderia, good to have you aboard.

Title: Re: Hi eveyone
Post by: Maxridex on May 08, 2009, 08:21:58 AM

 :welcomesign;

Title: Re: Hi eveyone
Post by: willieandwinnie on May 08, 2009, 09:08:58 AM

 :welcomesign; Scuderia. Glad you found us and great introduction. Stick around, loads iof information and support to be had here.  :cuddle;

Title: Re: Hi eveyone
Post by: Romona on May 08, 2009, 09:31:29 AM

 :welcomesign;

Title: Re: Hi eveyone
Post by: MandaMe1986 on May 08, 2009, 10:47:02 AM

Happy to have you Scuderia.  I am glad you found this site.  I am sure you will find what you are looking for information wise.  Support too.  This is a good site.  Hope to see you around.

Title: Re: Hi eveyone
Post by: monrein on May 08, 2009, 07:10:03 PM

 :welcomesign; 

Title: Re: Hi eveyone
Post by: Hanify on May 08, 2009, 07:44:17 PM

Hi Scud.  Great to have you here.  It's a good place to come cos you can vent and rant all you like, and we all completely understand!  Yes, sometimes it feels like dialysis runs/ruins your life, but other times it doesn't.  Do you have to do haemo?  Any chance of changing to PD?

Title: Re: Hi eveyone
Post by: Scuderia813 on May 08, 2009, 10:22:12 PM

PD has been an option, but I hated that cathater so much I can't stand the thought of another tube sticking out of me. Sorry to be insenitive about it but all the scars and damage to my hand ( my fistula is amazing, but i've got nerve damage in my wrist ) have made me sick of pain. If I could only reduce the horrible numbness, cramping, and general crappy feeling that knocks me down for a least few hours if not all day.

Title: Re: Hi eveyone
Post by: peleroja on May 09, 2009, 09:43:59 AM

Welcome to the board.  This is a great place for information, atta boy's, and even the occasional shoulder to cry on.

Title: Re: Hi eveyone
Post by: willowtreewren on May 09, 2009, 10:12:13 AM

Welcome, Welcome! :welcomesign;

It sounds like you do 3/days hemo in center. My husband also can't stand the thought of the PD tube in his stomach. We do NxStage home hemo and he feels GREAT!!! Doing it six days reduces that stress on the other organs and keeps his levels steady. You might want to look into it if you have a partner who could help.

Post often and share your adventures!
Aleta

Title: Re: Hi eveyone
Post by: Hanify on May 09, 2009, 04:00:53 PM

Oh I can understand how you feel about the tubes etc.  You will get used to the dialysis - it's a bit like being an athlete I think.  Your body gets 'dialysis fit' after a while. The first few weeks are pretty hard - but you'll get there.  Thinking of you and sending positive thoughts and prayers your way.

Title: Re: Hi eveyone
Post by: Scuderia813 on May 09, 2009, 07:24:30 PM

Thank you for the nice thoughts, god bless.

Title: Re: Hi eveyone
Post by: Chris on May 10, 2009, 12:06:47 AM

Hi Scuderia813 ,

I had that numbness too in my wrist and nervetingling along my thumb. It took over a year to go away though even though my fistula stopped working after 3 months.

Welcome to the club.