I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Spouses and Caregivers => Topic started by: Yvonne on May 04, 2009, 11:27:41 PM
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:ukflag; I often read through many threads on this site as I'm up at 6.30 (UK time) some make me cry and some make me laugh and I try to tell John he is in good health compared to many. He has never ever wanted to read any of the letters on this site, still keeps his head buried in the sand. But if ever he has a question about him self he always say's go to your American site and get an answer for me.
Are we right or wrong about thinking that when or if John ever has to have diaylsis will he stop peeing?
That would slove all our problems if that is so (get rid of the stoma) Yvonne
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If there is a good side to dialysis, it is you will pee less. However not everyone is the same when it comes to that. Some that have had their kidneys removed completely will probably not pee. For me, I lost kidney function due to diabetes and still pee some. I used to put out 3000ml in a 24 hour period and now its only 200-300ml. So you may have some relief, but probably not all the way. If he still has urine output when he starts dialysis and stops when treatments start, he will have his dry weight set too low and have other issues that are less desired.
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Interestingly, I pee more on hemodialysis than I do on peritoneal dialysis. I think a lot of it has to do with just how healthy you are when you start and how much fluid overload you are in. Then again, every BODY is different.
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I pee...ed in a dream the other night for a long long time...well felt long and so good....I checked the bed when I got up and it was dry. Interesting..that was the whole dream.
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My Ray has been on dialisys for a year now, still pees
4 to 5 times a day.
So, my answer to you would be that everyone is
different..might have to wait and see on this one.
That dang stoma!!
take care Miss Yvonne
deborah
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My Dad still pees a little but for the last month has started to wet the bed at night,he's very upset about it - of course we tell him not to worry, it isn't his fault but he still hates it and feels dreadful. As if he didn't have enough problems without this.
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When I was in center doing hemo 3X/week, I still peed. Since doing home hemo - I never do.
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I have been on dialysis for over 4 years
and I still pee some - a little
it graduallly got less
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I pee a little less after every surgery and fisutlagram - apparently, either the dye or the sedatives don't agree with my kidneys. I doubt I pass more than a couple of teaspoons a day.
There are no absolutes with this disease - every patient responds differently. Anytime you hear someone start a sentence with "ALL kidney patients . . . ." there's some form of BS about to follow. Not all of us have fluid restrictions. Not all of us have potassium restrictions. Not all of us have phosphorus restrictions. All you can do is learn as much as you can about it all so you can decide what works for you.
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My husbands been on dialysis 2x a week for almost 3 years now. He stills pees a decent amount but I don't think he's measuring his fluid intake. I think he drinks more than he's supposed too. My understanding is that when you have kidney failure your urine is mostly water. The toxins that urine rid stayed built up in the body. Dialysis cleans these toxins out. Hang in there! Do something nice for YOURSELF today!
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That's why this site's so great....everyone on or pre-dialysis responds differently.
Many people, but NOT all, stop making urine once starting hemodialysis.
Since he's not on dialysis yet, the only advice I have to give is to ask your doc....they will have labs, etc that can help answer many questions. And, as always, tell him to listen to his body!!!!!!!!!
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As I have said before John has an Urostomy (bladder removed through cancer) He wears a bag attached to his tummy and is linked up to a night bag at night. The bag fills up during the day and has to be emptied about every hour and the night bag is always full. So although he has kidney failure he pees a lot, and I just asked the question if and when he goes on dialysis will he stop peeing? As we are having so much trouble with the stoma.
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If he goes on hemo, yes, he will most likely stop producing urine eventually. The time varies, I've seen it happen in weeks and up to a year.
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Will a reduction help, even if he doesn't quit completely?
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What is a reduction please jbeany
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Yvonne , sorry to jump in but I think she means a reduction in the amount of urine he passes.
If it is less will it help you?
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I agree, everyone is different and it does depend on the individual ciircumstances. My husband (although on PD) still urinates quite a bit. In fact, when Da Vita has him do a 24 hour urine, I need 2 of their containers to carry it all in. (he probably puts out 2500 to 3000 ml/ day) I am told that he still has good residual function and that will most likely dwindle the longer he is on dialysis. So far, it has not. He has always been good at keeping well hydrated and this has not stopped. Dialysis rarely pulls more than 300-500 ml off with each treatment and most of teh time it is isn the 100 to 300 ml range with no fluid overload or edema. You are a wonderful support system for your husband and mine is the same way, he won't get on this site at all. He likes to live in his own little world. That's OK I guess, they all know him there :) :bandance;