I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: donnia on May 04, 2009, 07:15:07 AM

Title: Kidney still not kickin in :(
Post by: donnia on May 04, 2009, 07:15:07 AM
Creatinine back up to 4.7.  They will do a kidney biopsy today. PLEASE tell me what to expect.  I'm scared!  We will also do dialysis again today. :'( :'( :'( :'(
Title: Re: Kidney still not kickin in :(
Post by: paul.karen on May 04, 2009, 07:44:30 AM
I just want to say goodluck and ill say a prayer that all goes smoothly.
Im not sure what you should expect??
Title: Re: Kidney still not kickin in :(
Post by: okarol on May 04, 2009, 08:03:33 AM

The biopsy is quick and they take a tiny bit of tissue. They'll numb the area first. Then you keep pressure on the area and lie flat for a couple of hours. Hopefully this will give them more info on rescuing the kidney. Best wishes Donnia!! :grouphug;  :grouphug;
Title: Re: Kidney still not kickin in :(
Post by: willieandwinnie on May 04, 2009, 08:25:17 AM
 :cuddle; Oh Donnia, I sure hope they act fast with whatever they are going to do. I'll keep praying.  :cuddle;
Title: Re: Kidney still not kickin in :(
Post by: monrein on May 04, 2009, 08:28:09 AM
All my thoughts and prayers are with you Donnia and I'm hoping that the biopsy can give them the info the need to know how best to get things back on track.  So sad that this is happening.   :grouphug; :cuddle; :grouphug;
Title: Re: Kidney still not kickin in :(
Post by: David13 on May 04, 2009, 08:30:49 AM
Donnia, I hope they are able to figure out what is going on with the new kidney.  I am sending positive energy your way.  Take care and keep us updated.   :grouphug;
Title: Re: Kidney still not kickin in :(
Post by: donnia on May 04, 2009, 08:34:02 AM
Thanks everyone  :grouphug;

I am going to dialysis in about 10 minutes.  Please say some prayers for my kidney, 'Hope' is what my donor and I named her... she is my hope.  She wont let me down... I will stay positive.... I will get through this.... :boxing;

Would still like more information on how the biopsy works.... how painful is it, etc...  Thanks Okarol for the info.
Title: Re: Kidney still not kickin in :(
Post by: David13 on May 04, 2009, 08:36:43 AM
Donnia, I found some really good information on the kidney biopsy procedure here:

http://kidney.niddk.nih.gov/kudiseases/pubs/biopsy/

Title: Re: Kidney still not kickin in :(
Post by: Romona on May 04, 2009, 09:11:41 AM
My prayers are with you! :grouphug;
Title: Re: Kidney still not kickin in :(
Post by: lola on May 04, 2009, 09:30:18 AM
 :grouphug; :grouphug; :grouphug; :grouphug;
Title: Re: Kidney still not kickin in :(
Post by: twirl on May 04, 2009, 09:51:31 AM
Donna,
I am praying for you
Title: Re: Kidney still not kickin in :(
Post by: rose1999 on May 04, 2009, 11:35:41 AM
Prayers for you and Hope  :cuddle;
Title: Re: Kidney still not kickin in :(
Post by: okarol on May 04, 2009, 11:36:29 AM
Jenna had no pain at all during the procedure as the transplanted kidney is right under the surface (unlike native kidneys which is much more involved.)
They do an ultrasound to guide the needle biopsy gun, it's a quick stick. Jenna had 2 biopsies, one had mild bleeding so she had to lie still an extra hour. She never had any pain, slight soreness the next day. I pray it goes as smoothly as it did for Jenna.
Title: Re: Kidney still not kickin in :(
Post by: rookiegirl on May 04, 2009, 11:38:41 AM
Hi Donna,

I had my first transplant kidney biopsy 2 weeks ago.  It wasn't painful at all.  They took me in radiology and I laid slightly to my left since my new kidney is on the right.  They did an ultrasound of my kidney to see where would be a good place to go in.  After several pics from the ultrasound, the doctor came in and they prep the area and they gave me local shot of pain medicine in the area.  They actually did 4 biopies of the kidney and I didn't feel any pain.  They went in the same hole each time.  After that I was wheeled back to my room where I had to lay flat on my back for 2 hours and the remaining 2 hours I was able to sit up on the bed but not allowed to get up completely until the total 4 hours was up.  After 4 hrs. I got up to collect a urine sample.  Since there were no blood in my urine.  I was released within an hour.

I pray all works out for you.

Take care,
RG
Title: Re: Kidney still not kickin in :(
Post by: Brightsky69 on May 04, 2009, 12:11:09 PM
I hope that kidney starts working soon!! And lasts you for lots of years!!   :cuddle;

I had a kidney biospy a few years back. Please make sure they give you something for pain. They were getting ready to do the procedure on me and they hadn't given me anything for pain or even a local. They were gonna stick that needle in and I made them stop and give me something. The guy doing it said "We don't usually give you anything for this type of procedure." I said "OH well....cause before you stick that big needle in me your going to give me something." Everyone was pissed off they had to stop and give me something but I didn't care.
Title: Re: Kidney still not kickin in :(
Post by: jbeany on May 04, 2009, 04:21:25 PM
Go Brightsky!

donnia, I hope all goes well.   :cuddle;
Title: Re: Kidney still not kickin in :(
Post by: Wenchie58 on May 04, 2009, 04:55:21 PM
After going through a transplant the biopsy is a walk in the park.  My thoughts go out to you and "hope".  Keep thinking positive, even though I know its hard.
Title: Re: Kidney still not kickin in :(
Post by: chris73 on May 04, 2009, 05:10:57 PM
sorry you are going through this! Hope things  go well for you after the biopsy and they find out why your numbers are so high.
maybe a slight increase in your meds will resolve your issues. Will be thinking of you during these difficult times.. God Bless !! Chris
Title: Re: Kidney still not kickin in :(
Post by: G-Ma on May 04, 2009, 06:49:02 PM
 :grouphug;
Title: Re: Kidney still not kickin in :(
Post by: MIbarra on May 04, 2009, 09:22:00 PM
Donnia,

Saying a prayer for you and your kidney. Hope everything goes smoothly and they can find the cause and get it working!

 :cuddle;
Title: Re: Kidney still not kickin in :(
Post by: Rerun on May 04, 2009, 10:57:42 PM
Praying that "Hope" will get you through this.

                         :flower;
Title: Re: Kidney still not kickin in :(
Post by: Wattle on May 05, 2009, 01:20:17 AM
Thinking of you Donnia. I hope all goes well with the biopsy.   :cuddle;

Do they think it was the anesthetic for the hip surgery or the change in meds that pissed "hope" off?
Title: Re: Kidney still not kickin in :(
Post by: andykinney on May 05, 2009, 02:02:59 AM
Keep us posted - praying that everything works out okay  :grouphug;
Title: Re: Kidney still not kickin in :(
Post by: pelagia on May 05, 2009, 06:11:24 AM
I am praying for you Donnia.   I hope they can get Hope started again.  :cuddle;
Title: Re: Kidney still not kickin in :(
Post by: MandaMe1986 on May 05, 2009, 08:06:57 AM
You and your kidney have my prayers.  As for the biopsy its no big deal. As for a little Atavan or something to clam you down before  you go in. It feels weird, but dosn't hurt. You will be more then alright promise. Let us know how it goes.
Title: Re: Kidney still not kickin in :(
Post by: okarol on May 06, 2009, 05:29:27 PM
 :grouphug; :grouphug; :grouphug;

Today's update:

   
Hello all......
 
Well... I don't really know exactly what to say.  Things are still unknown.  We are still waiting for the results of my kidney biopsy.  I WILL say I have urinated quite a bit today.  I don't feel as if I'm retaining near as much fluids.  My right leg (surgery leg)  is still VERY VERY swollen. I do have home health and physical therapy coming to my house all week.  The physical therapy nurse said that all the swelling in my surgery leg is normal.  I have not had labs done since yesterday.  My creatinine was 3.3 yesterday.... Maybe it's just wishful thinking.. I don't know, but I do believe 'HOPE' (my kidney ... named by Joyce and me) is trying to fight back (Joyce did tell me that her kidney 'aint no quitter')! 
 
My emotional, physical and psychological well being has realllllly suffered.  I am really trying to keep positive.  I am just a really upset person right now.  I think my medical care left alot to be desired (not by Dr. DeMory... he is the only one who made me feel safe!!!)... but that's another story.  We are going to try to keep it positive right now.
 
I am so very sore!  I hurt so bad!  It wears me out just to walk to the bathroom with my walker.  Getting back in bed is a terror.... all I can say is... thank God for Juan and Dr. DeMory!
 
Thanks for the support and sorry for the rant :(
Title: Re: Kidney still not kickin in :(
Post by: Rerun on May 06, 2009, 07:29:53 PM
You want a constant monitor on your wrist of your creatinine.  You want one of those sugar monitors they have for diabetics only for creatinine.  But 3.3 is better then the last one.  It is coming down.  Keep drinking water and make it work a little harder.  HOPE!

                                   :yahoo;
Title: Re: Kidney still not kickin in :(
Post by: pelagia on May 06, 2009, 07:37:51 PM
Hang in there Donnia!  Hopefully the numbers will continue to drop and you'll start feeling better soon.  In the meantime, I'll be keeping you in my thoughts and prayers.  I'm going to keep imagining that you are peeing up a storm.  :cuddle;
Title: Re: Kidney still not kickin in :(
Post by: paris on May 06, 2009, 07:39:55 PM
Donnia, you and "hope" are in my thoughts and prayers.   :cuddle;   
Title: Re: Kidney still not kickin in :(
Post by: kellyt on May 06, 2009, 08:01:29 PM
Absolutely, "Hope" and prayers coming your way!
Title: Re: Kidney still not kickin in :(
Post by: Romona on May 07, 2009, 04:01:15 PM
 :grouphug;
Title: Re: Kidney still not kickin in :(
Post by: donnia on May 07, 2009, 10:39:41 PM
Short little update:

Preliminary biopsy results show either allergic reaction to antibiotics used in surgery or rejection.  Allergic reaction would be treated with  steroids, which Dr. DeMory started immediately anyway.  Rejection would be treated by me going back to Lubbock and my transplant team treating me. 

Had dialysis today.... yep, you guessed it.... it sucked =}
Title: Re: Kidney still not kickin in :(
Post by: rose1999 on May 07, 2009, 10:56:02 PM
I hope they can sort 'hope' out for you, we're all rooting for you.  :cuddle;
Title: Re: Kidney still not kickin in :(
Post by: circleNthedrain on May 08, 2009, 12:27:04 AM
Thinking of you Donnia and sending prayers your way!
Title: Re: Kidney still not kickin in :(
Post by: Joe Paul on May 08, 2009, 01:00:22 AM
Thinking and praying for you Donnia  :thumbup;
Title: Re: Kidney still not kickin in :(
Post by: Maxridex on May 08, 2009, 05:34:27 AM
Donnia the best of luck from me :) Hope to hear your latest news soon
Title: Re: Kidney still not kickin in :(
Post by: donnia on May 08, 2009, 08:22:29 AM
 :cheer: :cheer: :cheer:  NO REJECTION!!!!!!!!!!!!!!!   :cheer: :cheer: :cheer:

It was an allergic reaction to antibiotic given during surgery!  My dr started treating with steroids immediately.... which is how you would treat this to begin with :)  Labs were done yesterday and hopefully we will receive the results when I go back to dialysis tmr.  Retest labs Tuesday.  With time, this should go completely away :)
Title: Re: Kidney still not kickin in :(
Post by: rose1999 on May 08, 2009, 08:23:44 AM
Oh Donia that IS good news, I have been worrying about you.  :bandance;
Title: Re: Kidney still not kickin in :(
Post by: okarol on May 08, 2009, 08:24:14 AM
 :yahoo; Wow Donnia!! That's awesome - really made my day!  :bandance;
Title: Re: Kidney still not kickin in :(
Post by: David13 on May 08, 2009, 08:25:44 AM
Great news!   :yahoo;

I am so sorry you had to go through all of this, but at least in the end it is turning out to be alright.   :2thumbsup;
Title: Re: Kidney still not kickin in :(
Post by: paul.karen on May 08, 2009, 08:36:08 AM
 :thumbup;

Glad to hear it is/was just a reaction.
This must have made your day :clap;
Title: Re: Kidney still not kickin in :(
Post by: Maxridex on May 08, 2009, 08:38:44 AM
really great news Donnia :D  :bandance;
Title: Re: Kidney still not kickin in :(
Post by: willieandwinnie on May 08, 2009, 09:12:10 AM
 :yahoo; Oh Donnia. I was so happy to read your post. Thank you.  :cuddle;
Title: Re: Kidney still not kickin in :(
Post by: Laurie on May 08, 2009, 10:04:36 AM
 :2thumbsup; What a relief!!! Glad to hear it's not rejection.
Title: Re: Kidney still not kickin in :(
Post by: kellyt on May 08, 2009, 11:35:58 AM
Fabulous news!  Hurry up and get back to normal!  Sorry you had to go through this, but "what does not kill us makes us stronger".

 :beer1;
Title: Re: Kidney still not kickin in :(
Post by: kelliOR on May 08, 2009, 11:44:25 AM
Donnia  !

I read this post with great worry....so happy to get to the end to hear great news !!

Keep on truckin'.......... :)

peace, kelli
Title: Re: Kidney still not kickin in :(
Post by: glitter on May 08, 2009, 12:27:55 PM
 :cheer: :cheer:

so glad to hear this- hope your peeing wonderfully in no time  :cheer: :cheer:
Title: Re: Kidney still not kickin in :(
Post by: monrein on May 08, 2009, 01:38:49 PM
Donnia, this is the best news ever.  I was ever so happy to read your post and was cheering aloud as I did.  I now want to hear that your creatinine is nice and low.  Big hugs to you girl.
Title: Re: Kidney still not kickin in :(
Post by: charee on May 08, 2009, 07:11:10 PM
 :bandance; :bandance;
Title: Re: Kidney still not kickin in :(
Post by: chris73 on May 08, 2009, 07:14:17 PM
thanks for keeping "us" updated....sounds like everything is gonna work out!!!  BTW.. how was the biopsy procedure? bad as you thought is was gonna be? anyways its done and over with...be glad when all this is behind you!!...God Bless !  Chris
Title: Re: Kidney still not kickin in :(
Post by: donnia on May 08, 2009, 09:13:07 PM
Thanks Chris!  The biopsy was a breeze!  No pain!
Title: Re: Kidney still not kickin in :(
Post by: circleNthedrain on May 09, 2009, 01:02:25 AM
Great news donnia!!  WoooooHoooooo!!!
Title: Re: Kidney still not kickin in :(
Post by: MIbarra on May 09, 2009, 03:28:46 PM
 :flower; So glad there is no rejection! I hope "HOPE" gets working right soon!  :cheer: Come on, Kidney!  :cheer:
Title: Re: Kidney still not kickin in :(
Post by: Bajanne on May 09, 2009, 07:29:52 PM
 :cheer: :cheer: :cheer: Yea, Hope, we are rooting for you!!! :cheer: :cheer: :cheer:

Donnia, my caring thoughts and prayers are with you all the way! :cuddle;
Title: Re: Kidney still not kickin in :(
Post by: Wattle on May 10, 2009, 02:28:04 AM
 :cheer: :cheer: :cheer: :cheer: :cheer:


Woooooohooooo That is wonderful news Donnia.    :cuddle;
Title: Re: Kidney still not kickin in :(
Post by: willowtreewren on May 10, 2009, 05:41:19 AM
Yay! So glad to hear that Hope is back in the picture.  :clap; :bandance; :2thumbsup; :cheer:
Title: Re: Kidney still not kickin in :(
Post by: donnia on May 10, 2009, 12:32:04 PM
Hi everyone :)  Well... I went to dialysis yesterday and had to come off the machine 20 minutes early because I had to pee sooooo bad!!!!!!    I didn't think I was gonna make it to the bathroom!  Hope is workin herself back to health :) 

Thanks so much for your prayers and support!  It means so much to me!

Happy Mother's Day all.....   :flower;
Title: Re: Kidney still not kickin in :(
Post by: Rerun on May 10, 2009, 12:40:43 PM
donnia.  Sometimes it just takes some 'time' to kick in.  Hope she improves.
Title: Re: Kidney still not kickin in :(
Post by: pelagia on May 10, 2009, 08:06:30 PM
 :bandance; Great news!  :cheer:  :cuddle;
Title: Re: Kidney still not kickin in :(
Post by: Jill D. on May 10, 2009, 08:18:29 PM
Donnia, I just found this post and had no idea what you were going through. SO HAPPY to hear things are going better and that you weren't rejecting!!! Hope is a beautiful name for a beautiful essential body part!  :cuddle;
Title: Re: Kidney still not kickin in :(
Post by: donnia on May 12, 2009, 07:33:11 PM
Thanks for the support everyone....

Went to dialysis again today.  Creatinine Saturday was 4.5 and today was 5.3.  I am peeing really good... actually my output yesterday was about 1400 and my intake about 1150.  Today they told me to stop the Lasix as they think I might be becoming dehydrated and that is why my creatinine is going back up.

Will let you know more as soon as I know more :)
Title: Re: Kidney still not kickin in :(
Post by: okarol on May 12, 2009, 11:03:51 PM

Keeping good thoughts for you Donnia!  :grouphug;
Title: Re: Kidney still not kickin in :(
Post by: breezysummerday on May 12, 2009, 11:35:55 PM
that little light of shine, I want it to PEE!!
and circulate and filter!

                      praying with all my heart
Title: Re: Kidney still not kickin in :(
Post by: Maxridex on May 15, 2009, 02:51:08 AM
wow really good :D