I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: makevalue on May 03, 2009, 07:51:39 PM

Title: Howdy
Post by: makevalue on May 03, 2009, 07:51:39 PM

 :waving;

I am 53, married with 2 kids under 7.  My disease progression:
- measles at 3 years supposedly damaged my kidneys.
- no lifestyle changes until I started taking ACE and allupurinal at 42.
- Very  active physically which probably kept the disease at bay.
- Stress, lack of exercise and perhaps the normal course of the disease caught up with me last year and I started dialysis in Feb.  I just started doing PD with a cycler.

I am considering a transplant but just learned I have a high immune response.  I am working with Cedar Sinai in LA and they have protocols for this.  Not really sure I want to go that way yet.

I've been active with RSN and have friends who are CKD patients.
I am planning a blog to consolidate information for new patients.  "ESRD for Dummies" but obviously not that title.  I think of myself as smart but getting the answers I need has been really difficult.  It shouldn't be so hard to get info and make decisions when a person is under the stress of a severe medical issue. As I saw in someone's tagline, dialysis is not for sissies. Your thoughts are welcome.

Blessings all.

Title: Re: Howdy
Post by: kellyt on May 03, 2009, 07:55:02 PM

Welcome!  You'll find answers here - no problem.  Your blog sounds like it will be fun!  Good for you.
Enjoy this site!  You'll fit in just fine.    :waving;

Title: Re: Howdy
Post by: angellady07 on May 03, 2009, 08:18:23 PM

Welcome.  :waving;

Title: Re: Howdy
Post by: willieandwinnie on May 04, 2009, 04:40:50 AM

 :welcomesign; You love it here, so much information and support. Hope to hear more from you.  :cuddle;

Title: Re: Howdy
Post by: willowtreewren on May 04, 2009, 05:53:15 AM

 :welcomesign; :welcomesign; :welcomesign;

This is the place for you, MakeValue. You will be able to find support and information here!

Welcome to the community.

Aleta

Title: Re: Howdy
Post by: MandaMe1986 on May 04, 2009, 05:54:24 AM

 :waving; :welcomesign;

Title: Re: Howdy
Post by: monrein on May 04, 2009, 06:48:59 AM

 :welcomesign;  Glad you found us and I look forward to getting to know you better.

Title: Re: Howdy
Post by: Joe Paul on May 05, 2009, 02:04:53 AM

Welcome makevalue, good to have you aboard.

Title: Re: Howdy
Post by: Rerun on May 05, 2009, 09:21:39 AM

Welcome to IHD.  Go read some Transplant Stories.  There is one on Positive Crossmatch that goes through every step.

                                        :welcomesign;

Title: Re: Howdy
Post by: pklipe57 on May 05, 2009, 11:28:10 AM

 :welcomesign; to IHD.  We're glad you're here.

Title: Re: Howdy
Post by: peleroja on May 05, 2009, 12:20:26 PM

Welcome to the group.  Gee, I thought I was the only person who said howdy; nice to know there are others about!