I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: cloud393 on April 17, 2009, 10:49:38 AM
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My name is Lorie and I was diagnosed with Polycystic Kidney Disease in 1990. My kidney function was good until about 3 years ago, although I have taken blood pressure meds for the last 12 years. My creatinin was 2.5 in April of 2008 and in October of 2008 it was 3.9. Maybe not as bad as some but I just felt so lousy. Extreme fatigue, trouble sleeping, nausea, headaches, trouble concentrating & remembering things. It was horrible. Needless to say I developed some depression too. The worst part I think is my body image. I use to be a size 5 and am now an 18. I look more pregnant now than I did when I really was. (and I have 4 kids ages 19, 16, 13 & 10) I've been told each of my kidneys weigh 40 pounds. I started Peritoneal Dialysis on 2/16/09 and it has helped with the headaches and concentration but I still get nauseous alot & want to sleep all the time. I'm going through the process of getting on the transplant list but have concerns about that too. Although I have an aunt who just got a new kidney about 3 weeks ago and is doing just wonderful. Unfortunately the PKD runs strong in my mothers family and I've seen what it can do to people.
Well thanks for listening to my ramblings.
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Hi Cloud. Happy to have you. You feel free to come and ramble on all you want. We are always all ears. I am sure you will find so many wonderful, supportive people on this site. I hope you come and visit us often.
Take Care
~Manda
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:welcomesign; Lorie. You have found the greatest place for information and support and we love ramblings. Please post often and check the older threads as there is loads of information there. Ask any and all questions and someone will answer you. Again, welcome. :cuddle;
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Welcome to IHD.
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Hey there Buckeye!! I'm a Michigander. Glad to have you here, you came to the right place.
Are you a Columbus Blue Jacket fan? I'm a big Red Wing fan.
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:waving; Cloud
Glad you found us here at IHD the webs BEST site for dialysis related topics and discussions.
Im sorry your in so much pain with such big PKD kidneys. I also have PKD and it hurts SO BAD. I hope you find some relief.
P&K
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:welcomesign;
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Hi Cloud, Welcome to IHD. All my family is in Ohio, most in Columbus and I still think of it as "home". You have found a great site with so much information. We are also here for support. Many members have PKD and can relate to your situation. Post often and let us now more about you. We are glad you joined us. :2thumbsup;
paris, Moderator
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Welcome Cloud! Whereabouts in Ohio are you? I live in Dayton. I don't normally reply in this section because my e-mail ends up getting slammed, but the "new member in ohio" link on the main page caught my eye. I had to drop in and say hello to a fellow Ohioan!
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:welcomesign;
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:welcomesign; Lorie,
I am sorry that you have to go through all of this crap. It must be very difficult going through all of this and caring for four kids! I am glad your aunt got a new kidney. Welcome to the group and feel free to come here to vent or research or just chat. This is a very supportive group. :grouphug;
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:waving; Welcome Cloud
I too have PKD and am on PD. I really understand the pregnant feeling. Some days it just sends me gaga :urcrazy;
I am glad you found us.
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Welcome Cloud, good to have you aboard.
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Hi, Lorie.
:welcomesign;
My husband and just about everybody in his family has PKD. He has been doing NxStage since August and is feeling soooo much better. I hope your dialysis starts to do its stuff to help you feel better soon, too.
Keep us posted on your progress. We all care.
Aleta