I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: Jean on April 15, 2009, 10:46:37 AM

Title: New to the Group
Post by: Jean on April 15, 2009, 10:46:37 AM
Hi All,
My name is Jean Livingston. I am in 4th stage CKD and will be on Dialysis within the year. I am so happy to have found this board, because I think I am going to hate dialysis also. I am afraid of all  of it, and really do NOT want to do this, however, the alternative does not look too great either. Being 70 years old, I dont think a transplant is going to be in my future either.
Looking forward to all of your replys and all the info I will get from you also.
Jean
Title: Re: New to the Group
Post by: pklipe57 on April 15, 2009, 10:58:47 AM
 :welcomesign; to IHD.  I was also in stage 4 when I found this website.  This is a great place to learn.

Title: Re: New to the Group
Post by: paul.karen on April 15, 2009, 11:05:30 AM
 :waving; Jean

Glad you found us here at IHD.
I think alot of people find this site late into there CKD progression.
I can say this site has helped me and many others who were or are still preD.

Hope to see you post on many threads.
Title: Re: New to the Group
Post by: willieandwinnie on April 15, 2009, 11:10:46 AM
 :welcomesign; Jean. So glad that you found us and we are sure that you will find all kinds of information, support and friendships here. Hope to hear more from you.  :cuddle;
Title: Re: New to the Group
Post by: dwcrawford on April 15, 2009, 11:14:59 AM
Jean, I turned  68 last year and learned I had 2 years before dialysis in September of 08.  Then it because 2 months so I start this coming Tuesday.  I hate the idea to so I am with you.  Stay  around and you'll get lots of support from this site.  Just read and read and read I guess.  And get opinions  from everyone ... some of the will work for you.
Title: Re: New to the Group
Post by: David13 on April 15, 2009, 11:17:43 AM
Welcome, Jean!   :welcomesign;

You have found a great site.  You will discover lots of information and support here.

I hope to see you posting often.
Title: Re: New to the Group
Post by: Zach on April 15, 2009, 11:24:40 AM
It's real good to have you here!
 :beer1;
Title: Re: New to the Group
Post by: MandaMe1986 on April 15, 2009, 12:31:23 PM
Hello Jean happy to have you. This site is wonderful, I am happy you found it too!  Stop in from time to time and let us know how your doing. 
Title: Re: New to the Group
Post by: Joe Paul on April 15, 2009, 12:57:52 PM
Welcome Jean, good to have you aboard.
Title: Re: New to the Group
Post by: paris on April 15, 2009, 01:20:14 PM
 :welcomesign; Jean.  Good to have you here. There is a lot of really great information here and even more support.  It is a safe place to share how you feel about kidney disease and all that goes with it.  We are all here for each other.  Post often and share more of your story.   Glad you joined us  :2thumbsup;





paris, Moderator
Title: Re: New to the Group
Post by: G-Ma on April 15, 2009, 01:33:57 PM
 :welcomesign;  to a great family.
Title: Re: New to the Group
Post by: thegrammalady on April 15, 2009, 01:50:57 PM
 :welcomesign; :welcomesign;
Title: Re: New to the Group
Post by: monrein on April 15, 2009, 01:56:15 PM
 :welcomesign;  Jean and in no time at all I bet you'll feel like you've known us forever.  We tend to connect quickly and to hold tight.  :flower;
Title: Re: New to the Group
Post by: southyard on April 16, 2009, 05:42:54 PM
Hi Jean

I have you beat in the age thing I am 85 and started Dial last August after they talked me into trying it for 5 months  That period ws up in March and I am still on it  I hate it and the problems that it causes.  I wanted to quit so as not to be  drag on my family  Last Jan I fell and broke a hip.  The famillies response to this was something I had never dreamed of.  They found about my needs before I did and made all the needed adjustments in the house etc.  After the fall I was given a shot in the ambulance and do not recall anything until 8 bays later as i was being placed in another ambulance to be taken to a rehab hosp.  I spent 2 weeks there and insisted I be released   While in the hiosp and rehab I had dial in my room.  It was and still is at the center a PITA.  I have now agreed with family to live it out until other causes take me. 

IStick with it

Southyard
Title: Re: New to the Group
Post by: TeenHatesDialysis on April 16, 2009, 08:28:08 PM
 :welcomesign; Jean,

Sorry that you have to go through this. Some people are able to postpone dialysis for long periods of time after being diagnosed stage 4....who knows, you just may be one of them!   ;D  How are you feeling?  I have an 18 year old daughter that has been functioning 200%- school, sports, work, go, go, go, with less than 20% kidney function for the past year and a 14 year old daughter who started feeling very bad at 25% kidney function. I am glad that you joined the group. There are so many knowledgeable people here and everyone is very supportive. :grouphug;
Title: Re: New to the Group
Post by: Jean on April 22, 2009, 02:49:21 PM
Today I went to the vampires and had blood drawn. I cannot look at the needle in my arm, nor can I look at the blood coming out. I thought about that and now I am thinking, maybe I should opt for hemo in center. Anyone have any thoughts on this?
Thanks so much, this group is great!!!!
Title: Re: New to the Group
Post by: Yvonne on April 22, 2009, 10:28:26 PM
 :welcomesign; Hi Jean, I am a wife and carer to my husband John he will be 74 this year and had kidney failure in 2007. He has 11% kidney function and once a month has his blood tested to see if dialysis is his next stage. He has functioned like this for the last 2 years and still does not need dialysis. So hopefully you too could carry on being on test only, You don't say where your from! we are in the UK and the medical attention John receives is marvelous, also we can look up his results on line from the renal unit. Good Luck Yvonne
Title: Re: New to the Group
Post by: Jean on April 22, 2009, 11:38:33 PM
You folks are all just great. I am feeling okay, got an EPO shot from the Dr 3 months ago, and it livened up my life a whole lot.Will see him on the 6th of May, and hoping for a good GFR, I am at 18 right now. Was at 29 a year and a half ago when I had a heart attack and was in the hospital. I have been planning to have PD if my membrane is okay, but after having blood drawn today, I dont know. I cant watch the needle in my arm, or look at the blood. What a wimp, huh? I hope I get tougher soon!!!
Title: Re: New to the Group
Post by: rockhound on April 23, 2009, 09:29:27 AM
Welcome to the board Jean,There is lot's of good info here and you can learn alot about treatment. I am 76 and didn't want to do dialysis at all, but man I am so glad I did,  I realize all of us are different. but I am so glad that there is such a thing as dialysis.I say embrace it while you can because when the Obama gang get their way all us over 65 will be out of luck
Title: Re: New to the Group
Post by: drinkboy on April 23, 2009, 11:01:48 AM
 :welcomesign;   I am glad you found this site.  It is a great source of info and insight.  You'll find people of all ages here, and everyone is so helpful and willing to share experiences.
Title: Re: New to the Group
Post by: Ang on April 28, 2009, 01:13:42 AM
 :welcomesign;jean  to  the  family.


  so  that  its  not  such  a shock,  try  visiting  your  local  dialysis  centre  if  possible,so  you  get  an  idea  of  how  things  work. :thumbup;
Title: Re: New to the Group
Post by: Jean on April 29, 2009, 01:21:32 AM
There is a Fresenius and a DaVita close by. I am going to try that and see if they will let me have a peek. I didnt know you could do that. Thanks a lot. I love this website and check in every day, and read, read, read.