I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: lola on April 11, 2009, 07:13:33 AM
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Some how the Star Tribune(the big paper for MN) found out about Otto and trying to find him a donor and they called and did a "phone interview" with me and now on Tuesday they are sending a Medical reporter and photographer to our house. They want to talk about the need for living donors, paired donors and Dialysis. You know me I'll try to get IHD in there since this is my family who has taught me sooooooooo much. They said they may also add our caringbridge site so people can follow us through our journey, they also said it would be cool if someone reading turned out to be a match and they could follow the process. Now with 100% pra doubt that will happen but at least I get to try to help educate. Hope all goes well and they really put it in the paper.
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That is very exciting! You will be a great person to interview. You have so much knowledge and have experienced every step of kidney disease. Let us know how it goes.
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:yahoo; lola :2thumbsup; Can't wait to follow this. You make us soooooooo proud. :cuddle;
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:bandance; Wonderful!
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:thumbup; That's great lola! I know you'll do a wonderful job represent patients!
Whenever I met a reporter I'd give them a printed sheet of some facts (saves them research and helps them get the info correct.) Also a page of resources, like IHD for patients and caregivers, livingdonorsonline. for potential donors, and the Renal Support Network for more education. They usually like to include the NKF, but they are focused on preventing kidney damage, which for a patient on dialysis is like shutting the barn door after the cow got out. And UNOS is often mentioned too, which is fine for data on wait lists, but they focus on deceased donors and not a good place for living donors to learn more.
Let us know how it goes! You never know where it could lead - I believe in miracles! :cheer:
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:bandance; Thats great , good luck :cuddle;
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very nice
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:thumbup; That's great lola! I know you'll do a wonderful job represent patients!
Whenever I met a reporter I'd give them a printed sheet of some facts (saves them research and helps them get the info correct.) Also a page of resources, like IHD for patients and caregivers, livingdonorsonline. for potential donors, and the Renal Support Network for more education. They usually like to include the NKF, but they are focused on preventing kidney damage, which for a patient on dialysis is like shutting the barn door after the cow got out. And UNOS is often mentioned too, which is fine for data on wait lists, but they focus on deceased donors and not a good place for living donors to learn more.
Let us know how it goes! You never know where it could lead - I believe in miracles! :cheer:
Thanks Karol
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Well we just got done, They found us on Livingdonors.com. They talked about living donors and why we feel more people don't come forward, and what I'm doing to try to find Otto a donor. They have a few more families they are going to talk to and they will let us know when the story will be in the paper.
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:yahoo; lola. Keep us updated. :cuddle;
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Livingdonors.com ? The NKF site?
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Livingdonors.com ? The NKF site?
My bad, livingdonorsonline.com
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:thumbup; Thanks lola, I always mix them up... and I am an admin on LDO! :P
:rofl;
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No rest for the wicked. Thanks for being such an advocate.
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:clap; Don't forget to post the article when it's published! We want to see!!