I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Toni Cordy on April 08, 2009, 11:54:35 AM
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I'm 42 d and a mother of a 16 yr. old (God help me). I started dialysis last year on April. I've had Sysemic lupus since I was 15 yrs. old. As you could have guessed, it attacked my kidneys. Although I had a couple of dialysis treatments back then, my kidneys began working again and I managed to stay off dialysis for 24 yrs. Unfortunaltly, 2 yrs. ago, my kidneys finally gave out. My lupus is under control now, but, the scarring in my kidneys is so bad, they hardly work. I am currently on the kidney transplant list and am awaiting a kidney. For now, I do the best I can. I have good days and bad days..........sooo, I enjoy every good day I have. I am currently on hemodialysis, although I started out with peritoneal. Knowing both these two types of dialysis, I much prefer peritoneal. It is way easier, you have more freedom with your food and liquid intake, and most of all, it is painless. I had to go to hemodialysis due to stomach spasm attacks I suffer from, which doctors later, diagnosed me with irritable bowel syndrome. Due to such pain, the pd only exhasberated the pain so I was switched to hemodialysis. ........ and now, here I am. I have good days and bad days with hemo. I mostly suffer from cramping and low blood pressure. It happens so often, I cannot get all the extra fluid off me. I have been researching for an herbal remedy, because I refuse to take quinine sulfate. If anyone has any remedies for this........please tell me about them, any info would be greatly appreciated.
Well..........I hope to hear from you all............Have a great day! Your friend, Toni
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Hi Toni :waving; I have kidney problems do to Lupus too. Haven't started dialysis yet, hopefully won't for a few more months. This is a wonderful site, gald you found it. Hope to see you around some
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:waving; Toni
Nice intro. And your welcome for earlier :thumbup;
Sorry you had to switch from PD to hemo. Hopefully you have more good days then bad.
You found a great site for research and questions. Hope to see you post on many of the threads.
P&K
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:welcomesign; Toni. What a wonderful introduction. We hope you enjoy our group and can find all the information and support you need. Please post often. :cuddle;
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Hi, Tony,
I am (only) a care-giver for my husband who is on dialysis. I, to am fairly new to this forum, but it has given me great emotional support. I hope you find that true, as well.
There are so many knowledgeable people here, and so caring. You have found a wonderful place to visit.
Aleta
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:welcomesign;
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:welcomesign;
and Note to Willowtree: You are never """only""" a caregiver....without caregivers we would probably not make it. :cheer:
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Welcome, Toni! :welcomesign;
Sorry to hear about the need to switch from peritoneal to hemodialysis. Just take it one day at a time.
You will find a lot of great information and support here. Look around at all of the posts, ask questions when you have them, and share your experiences.
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Welcome Toni. We are here for support and advice and if you are single, RichardMel may hit on you. He lives is Australia, so you should be safe.
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Welcome Toni, good to have you aboard.
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:welcomesign; Toni,
If you can survive with a 16 year old daughter, you can do anything!!! :cheer: I have 3 wonderful daughters. The oldest is 20 and healthy, then 18 years old with a kidney function of 18% and in 100% denial that anything is wrong with her and 14 year old baby girl that has been on diaysis for 15 months.
I am glad that you are listed and hope that you get a new kidney soon! :grouphug;
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:welcomesign; to IHD. We're glad you're here.
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:welcomesign; Toni. This is a great place and we are glad you joined. There is so much information here. And even more support. We all care about each other and try to help any way we can. So, we look forward to hearing more from you and learning more about you (and the 16 yr old!) Glad you found us. :cuddle;
paris, Moderator
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:welcomesign; I look forward to hearing more from you.
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Hello again Toni,
My 14 year old was having problems getting all of the fluid off without cramping and her BP bottoming out and I discussed it with her today. She takes Norvasc for BP and said that taking it several hours after dialysis on her hemodialysis days helps get more fluid off without her bp bottoming out. She has really had to reduce her fluid intake to one liter a day, which she hates, but has eliminated the other problems of bp bottoming out (she has passed out several times) and cramping.
I hope this helps. Have a wonderful weekend. :cuddle;
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Welcome to our community, Toni! So glad you found us and decided to join us. This is just the place for you to be, as I know you have discovered already. this is not just a forum - it's a genuine sharing and caring family :grouphug; So please take advantage of all the site has to offer. Keep reading and keep posting.
Bajanne, Moderator
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:flower; Thanks for such a "Warm Welcome"! ........You guys are GReat! :bandance;
Well, things are going well..........I do have to share this story to share with you. Recently, I was out of town, in my hometown, Laredo, Tx. I was there to get rid of 2 storage units I've had there for about 4 yrs. Boy, was that a Chore! I'm glad I had my folks, lil brother and his friends to help. ....Thank God! "the call" from the donor people. Unfortunately, they were in a time crunch and they needed me to be there within the hr. For those of you who are not aware of where Laredo is...............it is about 5 hrs. away from Houston. And there you have it. They had to bypass me. Bittersweet. Good news is.......they told me, if they called me this time.......they will def. be calling me again. I'm just shocked they called me soo soon. I was just placed on the list about 2 mths. ago!
All in all...........it was just not meant to be. And anyway, I have a wonderful, loving niece who is getting tested as we speak. Hope that pans out. Can you believe she was born with 4 kidneys???.........wow, God really works in mysterious ways!
Well guys.........Thanks for lending me your ears! Be Strong! Live Full! Have a Great Weekend! Toni
Edited: Fixed smiley error - paris, Moderator
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Wow! Sorry to hear that you missed out Toni, but it seems you have a good spin on it.
Your niece with the four kidney would be very popular around here! ;)
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I am sorry you missed out on the kidney, but it is really good to get a call after only 2 months! Crossing fingers another one comes very soon.
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Wow sorry you missed out on the Kidney.. Goodluck with your Nieces testing. And Welcome.
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Hi, Toni!
How ironic that you missed that call! :thumbdown;
That is amazing about your niece. I had never heard of her. Seems she could give you 2 kidneys if she is a match! :clap;
We will be rooting for you!!!
Aleta