I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: idahospud on April 04, 2009, 05:31:44 AM

Title: going to talk to the transplant team?
Post by: idahospud on April 04, 2009, 05:31:44 AM

I got the call today to go see the transplant teem and see if I cam git on the transplant list. thy asked that I wright all my questons down and I'm a bit overwhelmed what do I need to ask? Can some of you how have don this give me a hand  thanks Carol





EDITED: Fixed errors in subject line - Sluff/Admin

Title: Re: going to tock to the transplant teem?
Post by: Romona on April 04, 2009, 05:54:59 AM

It is an overhelming experience to meet with the different coordinators. I was very emotional when I talked with the social worker. There is a lot of information being thrown at you. Best Wishes for you. :grouphug;

Title: Re: going to tock to the transplant teem?
Post by: jbeany on April 04, 2009, 07:26:41 AM

This has a lot of info - start here -

http://ihatedialysis.com/forum/index.php?topic=2607.0

Title: Re: going to talk to the transplant team?
Post by: Sluff on April 04, 2009, 08:14:44 AM

Thanks JB for helping with the link.

Good Luck Idahospud.

Title: Re: going to talk to the transplant team?
Post by: idahospud on April 04, 2009, 11:52:38 PM

 Thank all of you for your support and help . I'm rill glad I found this family  :thx;  Carol

Title: Re: going to talk to the transplant team?
Post by: okarol on April 05, 2009, 03:18:40 PM

This thread is always helpful- "What NOT to do or say at the Transplant Evaluation!" http://ihatedialysis.com/forum/index.php?topic=703.0

Title: Re: going to talk to the transplant team?
Post by: idahospud on April 06, 2009, 07:08:23 AM

 :thx; I loved that thread  OKAROL

Title: Re: going to talk to the transplant team?
Post by: paul.karen on April 06, 2009, 07:46:31 AM

Idaho,
I just had this evaluation on the 25th of March.
In at 8 am out by 2pm.  The time went by fast.  And when i went for my EKG-and bloodwoork (17) vials? they pushed me to the front of the line :thumbup;  what took the longest was the chest Xray.  That was in a different building and they didnt push me to the front.

I have another appt. In Philly in June.  They sent me a TON of paperwork to fill out.  So my point is it seems to change from hospital to hospital.  I hope it all goes smooth for you.  I was honest about everything except one issue.  All i need to complete the first evaluation is a stress test which i will be doing soon.  And maybe i can have all my recent tests from transplant hosptial one sent to Philly and be able to bypass the tests???

Title: Re: going to talk to the transplant team?
Post by: skuch65 on April 10, 2009, 05:15:05 PM

Which transplant center are you going to?  I have my first appt next week at the Intermountain Medical Center in SLC.  I'm like you trying to figure out what to ask.  I read the booklet the center sent to me and it is way overwhelming.  There is a lot of information in that booklet.  Well good luck.

Title: Re: going to talk to the transplant team?
Post by: idahospud on April 10, 2009, 06:32:12 PM

ha skuch65 good luck to you . I'm going to the Uof Washington. Let me know how it gos for you . :flower; Carol

Title: Re: going to talk to the transplant team?
Post by: Chris on April 10, 2009, 06:36:41 PM

Ask what their medication protocol is post tx, meaning which immunosuppressant/anti rejection meds do the prefer to use. Steroid or non steroid. If steroid, then do they taper you off of them.

What is their average stay for their transplant patients? (always plan to stay a little longer though)
This is up to you, but can someone take a picture of my transplant/transplanted kidney
Ask about side effects of the medications, what other medications will they/might use post tx.
Is there any pre tx medications I may need to take? Depends on pre tx work up though.

Just somethings that come to my mind.

Title: Re: going to talk to the transplant team?
Post by: idahospud on April 12, 2009, 05:18:40 AM

 :thx; thous are rely good ones