I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: rose1999 on March 07, 2009, 11:51:30 PM
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Sorry to be asking for support yet again - but please may I ask for your thoughts and prayers to be with my Dad for a few seconds this coming week.
He has to go into hospital on Tuesday (IF there's a bed, we have to ring first thing to see). He has had nothing but hospitalisation this past 7 or 8 months with one thing and another and now has an ischaemic foot, we hope they can do a bypass as they did for his other leg in 2007 but it may mean amputation this time as his heart is in a poor condition to stand up to long surgery. He is beginning to get very depressed by it all and your support will lift him.
They will admit him on Tuesday (if bed available) and then carry out a series of tests with a view to operating by Friday. Of course his relatively low platelets are a concern, they are also concerned because he has heparin dependent antibodies, an aneurysm and badly blocked arteries around the heart. The scan of his leg onThursday showed no arterial flow from groin to ankle and no pulse in the ankle, he is in a lot of pain, so it is not looking good.
He will be in a hospital that is a 2 hour drive away, slightly further than the one he usually has to be admitted to. I am due to be made redundant at the end of the month, I now wish it was sooner as it will be a struggle trying to hold down my job and visit daily, but I can't afford to give up my job and miss the redundancy payout which I need to live off. I've worked there over 20 years and don't want to come away with nothing. But I'll cope with all that, just as long as Dad pulls through this and can have a bit of pain free life between the inevitable dialysis sessions and issues.
Thanks for your support in the past and in advance for the support I know we'll get now.
Love
Rose xx :grouphug;
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Oh, Rose, you and your dad and mum have been through so much. Yes, I will definitely think about and pray for you guys all week. Please keep us updated.
:cuddle;
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Of course we wish only the best Rose. :grouphug;
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I'm hoping all will go well :thumbup;
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I wish you, your dad, and family the best, and hope this surgery goes well.
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All I can do for you all is pray and give support here. :grouphug;
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Thanks everyone, it means a lot to have your support. :grouphug;
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Rose, I'm sorry to hear that things are once again unstable and I'm also sad about your job situation. I send all my best thoughts to you and your parents.
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Dear Rose, we all love you and your Dad and will pray for the week to go well. Sending you good thoughts, much love and many prayers :grouphug;
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Poor Rose! I'm so sorry for you and your dad's struggles. I'll keep you in my thoughts and prayers. :cuddle;
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Sorry to read this Rose.
Of course you will have many prayers and good wishes coming your way.
Wish i had words of wisdom. But it seems you are all doing what has to be done.
:cuddle; :grouphug;
P&K
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This is such sad news Rose. I mean really, enough is enough. Your Dad has already been through so much. And you and your mom must be exhausted from all the worry. I hope that somehow you can focus on the fact that you still have this precious time together. :grouphug;
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We had to call the hospital this morning to see if there is a bed. They have just called us back (it's noon here) and said there isn't one until Sunday!! :banghead; we have to ring then to make sure and if there is a bed Dad can go in and have his operation on Monday - that means almost another week for him in pain. We have no choice, there is no other hospital around that does vascular surgery plus dialysis, we are already having to travel nearly 2 hours to get to this one.
I'm angry at the system and I'm really upset for my poor Dad, as if he hasn't had enough now he has to suffer another week of pain because whatever he takes either makes him vomit or doesn't relieve the pain much. It's a lot of stress for Mum too, she's 79 this year and it is all beginning to take it's toll on her too.
Thanks for your continued support, I will let you know how things go.
Rose xx
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Hang in there, a week is a long time when you are in pain but hopefully ths is the last of the wating. It"s so easy to wait here, because it's not me I guess. However I do hope it goes by fast and your Dad can get some relief. :grouphug;
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Thanks Sluffbunny :bunny:
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Rose,
Your Dad and the whole of your family will be in our novena today for our Mother of Perpetual Help. It's not easy but prayers could get you a lot of strength. I will pray for your Dad to be out of pain until he recovers.
love,
cris
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Bless you Cris :cuddle;
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:cuddle; Hi Rose my thoughts and prayers are with you, and your Mum and Dad. This waiting game is shocking in this day and age I went through it all with John. The only time he gets anything done is when he has been taken off in emergency.
I understand your worry about your redundancy as both my daughters are facing it also, one on the 3rd April the other in November. I had to face redundancy 3 times in my working life, makes you feel like working for your self, invent something disposable that's what my sister told me, after 15 years I'm still thinking.
I hope the bed will be available on Sunday and hope he will have his Op. on Monday and pray he will be out of pain soon. Yvonne
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Thanks Yvonne, I hope all is still going well with John and that you are feeling more 'yourself' now. If you ever think of that disposable item let me know and we can set up business together :rofl; Rose xx
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Dearest Rose, I only just saw this( connection problems). My caring thoughts and prayers are with your Dad, your Mom, and you at this time. :grouphug; Thanks for keeping us updated.
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I, too, would be angry and upset by this turn of events. Surely there must be something they can give you dad to relieve his pain that will not make him sick. Are the nurses still coming to the house? Can they be of any assistance on this issue? :grouphug;
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Dear Rose - I just now am seeing your post. I'm so sorry to hear this news about your Dad. Your family has had more than their share of issues. I do know how your Dad feels about the pain meds - I was on a host of them last winter and they mostly just make me throw up, I preferred the pain to having pain and throwing up. Gosh darn it all - I wish he had better luck with them.
My thoughts and prayers are with you and your family as your struggle through this time.
Take care - Big hugs
Sandyb
:bunny:
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You are such great people, thank you for your concerns.
The nurses come once a month and are due tomorrow, but I don't hold out much hope, they never seem to do anything - however Karol PM'd me and did suggest suppositories for pain (which I hadn't heard of) so I will see what they say about those.
We had a letter today confirming that they will admit Dad on Sunday and operate Monday (although it says to ring on Sunday to check a bed is available before going in!) so I'm relatively hopeful that they will stick to that.
I really appreciate your caring thoughts, prayers and good wishes so much and I know Mum & Dad do too,they find it hard to grasp what my other family (IHD) is all about as they are totally computer illiterate :) - but they certainly know you are a bunch of fantastic people. :grouphug;
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The nurses didn't show up, but they're not much use when they do so what the heck! Dad says he will cope until Sunday now.
Anyway I just wanted to say that as the site may be down over the weekend would you please try to find time to remember Dad (Bill) in your thoughts, prayers, good vibes etc. He is still due to go into hospital on Sunday for an operation on Monday and we really hope and pray that they are able to save his leg, at 80 and with all his other health problems he (and Mum) will find it very difficult to cope otherwise.
Thank you my dear friends for all your love and support :grouphug;
I will let you kow how things go.
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Rose - I will certainly keep you and your dad in my thoughts and prayers all weekend. I'm continuing to send you the great healing energy also - and of course all the warm fuzzies you need.
You take care now - and let us know when you can about your dad's operation.
Big hugs
Sandyb
:bunny:
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Dad is due to be admitted today for his op tomorrow - but we have phoned (as instructed) and there are NO beds today - they will try to find one but it is looking unlikely. What on earth is the point of booking him a theater space and not booking a bed? I know the NHS is free, I know all it's good points but my goodness it has it's bad points too. I wish the people 'in charge' could see the tears running down Dad's face as he waits hoping the phone will ring to say they have found a bed. Of course the surgeon isn't on duty today so there is no-one I can get hold of to try to sort this mess. :rant; Grrrrrrrr
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That sucks Rose, I will keep him in thought and praying your dad will get a bed. Good luck
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Rose - I'm really sorry to hear of this snag. I'm keeping all fingers and toes crossed that this will work out for Monday. Still sending you all the hugs you need.
Sandyb
:bunny:
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:thx; Thanks Sandy & Joe Paul, your thoughts and prayers must have worked, a bed has been found, we are so pleased. Now we have to pray the operation goes ahead tomorrow and his leg can be saved.
I am passing all your kind wishes on to Dad as he is very scared and low at the moment.
Bless you all for your kindness.
Rose xxx
:bunny:
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You are welcome Rose, now praying that the Doctors can save his leg.
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I'll be thinking of your Dad, and of course you and your Mum. all day tomorrow Rose. I know you'll update us as soon as you get the chance.
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Your dad will be in my thoughts and prayers tomorrow, Rose. I hope the surgery goes well. :grouphug;
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I hope everything goes well with your dad's surgery and that they can restore his circulation. Best wishes, you are in our thoughts and prayers.
Rolando and Alene
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Blessings and best wishes and some hugs coming your way Rose. :grouphug; :grouphug; :grouphug;
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:thx; thank you all, it means a lot to have this level of support. Today's the day but Dad isn't due in to surgery until late afternoon/early evening (it's 6.30 a.m. now) so it will be a long day. I'll update when I can. Love you all, more than I love this bunny. :bunny: Rose xx
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Rose - its Monday - your Dad is in my thoughts today.
You take care and stay strong.
Big Hugs
Sandyb
:bunny:
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Bless you for thinking of us. :cuddle; We have just had a call to say Dad is being prepared for theatre, we pray that the surgeon will be able to do a bypass, please join us in prayer or positive vibes if you can. Thank you all :grouphug; I'm crying and I type this, I don't know why I think it's just knowing that caring people the other side of the ocean are thinking of us, thank you so so much. xx
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Unfortunately we are back to square one. They took Dad to theatre but found his veins are too bad and they can't do anything. They are sending a pain doctor to see him but he can't live the rest of his life on painkillers so I don't know what will happen. We are devastated. I don't know why they don't amputate the toe at least, but there is no blood flow in the whole leg so maybe he will have to lose that at some other stage. It's all a worry and we are so far from the hospital. We will go over tomorrow and see what we can find out.
Thank you for all your support.
Rose xx
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Rose - I'm so sorry to hear this bad news. I was really hoping there would be a resolution for your Dad today. You will probably have to be aggressive with the Docs - I know you have it in you to fight whatever fight there needs to be and I know you have the energy to be a good advocate for your Dad.
Continued good energy heading your way.
Sandyb
:bunny:
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Thanks Sandy. We had our hopes up once he was actually in the operating theatre but it's not to be. I will try to talk to someone tomorrow and see what alternatives there are. Trying to stay positive but feeling a bit shell shocked by all the ups and downs today :bunny:
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Aww, sorry to hear this Rose...I hope and pray they can figure out something :grouphug;
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Dear Rose, I was in meetings all day today and had no chance to check IHD. I am crying now too over the thought that they can't do the surgery and knowing all the stress you are all going through. I am really, really sorry that I can't give you a hug, or be there to hold your hand, or to run and get you coffee, or anything real and tangible. I'm here on the other side of the ocean thinking of you and sending my love. I wish it could be more. XO Linda
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:grouphug; Rose. I agree with Linda, wish there was something I could do. :cuddle;
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I'm sorry to hear this latest news Rose. If they could remove his leg would that fix the problem? Hopefully they figure this out so he can have some kind of quality of life. My prayers are with you and your Dad. :grouphug; :grouphug;
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Thank you all so much for the love and support. Sluff I'd wondered that too, I'm not sure why they didn't do something while he was in theatre, Obviously no one wants an amputation but it has to be better than the pain. The only thing is that his dialysis line goes into that thigh (he's had 4 different site, 2 chest and 2 leg because his veins are so bad a fistula wasn't possible) so maybe they need to move that first (although I'd have thought they could amputate the foot or lower leg anyway). Being so far from the hospital makes it hard to talk to anyone but I'm going over this afternoon and will try to get hold of someone who can explain it all, or find out who I need to see and make an appointment.
It's so good to have this site back, thanks to everyone for their work yesterday, I missed you so much that I had to go over to Facebook :)
Will let you know how things go :grouphug;
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So sorry to read about your Dad,
please know he and your family are
in my prayers -
Anne
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Please keep us updated, Rose.
We are all here for you and your dad. :cuddle;
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We talked to the Dr today and he apologised for not being able to do the operation and explained why. An apology wasn't necessary as we don't expect them to perform miracles, but it was nice to see that he understood how disappointed we are. They are trying stronger painkillers and if that does not work they are looking at a sympandectomy (which I understand means deadening/cutting the nerves).
Dad was a little brighter today but just to add to his problems his dialysis line is playing up again and blocking so they will look at that tomorrow. Fingers crossed for continued pain relief and a quick resolution to the line issues.
Thanks again for all the support it means so much :grouphug;
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Rose, I'm just so saddened by all that your poor Dad is having to go through and I know that you and your Mum, by extension, are going through it all with him. I'm glad that the doctor could explain things and that he seemed understanding but pain is pain and it's awful when it's so darned chronic.
If hugs and good wishes for better outcomes are helpful then you have masses of those coming your way, from me and from so many others here. Please tell your Dad how much we want him to get some relief.
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Dad is now back home, he was discharged after dialysis this evening. :2thumbsup; It was a long journey back (over 2 hours) so he began to feel a little nauseous but was OK. He seems in reasonable spirits now and has enough painkillers to start a pharmacy! I hope he can tolerate them. He has to go back to clinic in 2 weeks when they will assess whether a sympathectomy (cutting/blocking of nerves) needs to be carried out. Of course this won't cure the foot or restore the circulation but at the moment if it relieves the pain it is the best we can hope for.
:thx; Thank you all very much for your concerns, love, prayers and best wishes, they are very much appreciated by all 3 of us - more than you can know. :grouphug;
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Rose - my thoughts are still with you and your family. I have had such trouble with painkillers - so I can really sympathize with your dad in that regard. I really hope he can at least be comfortable.
Big hugs Rose
Sandyb
:bunny:
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Rose, Your Dad stays in my prayers. I feel so bad for all of you. You must be totally exhausted. When you are overwhelmed with fatigue, I hope you can feel our arms around you and our prayers surrounding you. :grouphug; We love you.
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Rose,
:cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;
i know how hard it is of being few in the family.
all my love and prayers for your dad and the whole family.
love,
cris
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I can feel the love, thank you all so very much :grouphug;
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So pleased to here Dad is home, he will feel so much better as John says "there is no place like home" when ever he comes home from hospital and also you do not have to do that long run to hospital every day. I hope the pain killers do their work love and best wishes Yvonne