I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis - NxStage Users => Topic started by: petey on February 18, 2009, 06:47:28 PM
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Marvin had his monthly checkup yesterday (required to stay in the home hemo program), and it was a great one. Last month, the neph said, "Your labs are all 'normal' and don't look like those of a dialysis patient." This month's labs, however, were even better than last month's. Excellent, excellent, excellent -- all of them were, according to the doc, in line for a perfectly healthy, 25-year-old (and Marvin's 53!). His kt/V was 2.4, and his doctor said we'd talk soon about decreasing treatments from 6/week to 5/week. Marvin said he didn't "feel" this good when he had his transplant. We both think it's the home hemo. :yahoo;
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:yahoo; :yahoo; :yahoo;
Fantastic Marvin and Petey. Keep it going.
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My last Kt/V with 5 days was 2.2. I've been doing 3 days with 20 L and 2 days with 25. When they calculate the KT/V, they use an average of the liters. 5 days a week is even nicer - all the benefits of home, with an extra day off.
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That's great to hear, you're such a lovely couple and it's good to share some of your good news. :cuddle;
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Great news! That is great clearance! Pray you can cut back and still get good reports! You two deserve a break!!!
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:yahoo; :bow; petey. What wonderful news. You just keep doing what your doing for Marvin so when that phone call comes he is in the best shape he can be. :cuddle;
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That's fantastic Pete :clap; :yahoo;y!! If he cuts back will he do 3 days on and a day off then 2 days and a day off ( so he doesn't have 2 days in a row without dialysis? Hubby does the 3 and 2 schedule so that he doesn't go 2 days without dialysis.
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That's fantastic Pete :clap; :yahoo;y!! If he cuts back will he do 3 days on and a day off then 2 days and a day off ( so he doesn't have 2 days in a row without dialysis? Hubby does the 3 and 2 schedule so that he doesn't go 2 days without dialysis.
Yes, del. The doc said two days off a week couldn't be consecutive days. But, hey, two days off is two days off! That's our goal now...that and nocturnal home hemo.
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If you need a consistent day off - you do three in row, then a day off, then 2 days in a row. If your days off don't matter, you can also do 3 days, 1 off, then another 3 days and one off. If you work that out on the calendar, most weeks end up 5 days, but you get a 6 day week every once in a while. That's a pretty good routine, too, if you use the pureflow, as it doesn't waste any of the batch.
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Hubby changes his schedule depending on what we are doing. Sometimes he will do a couple of weeks where he does 2 nights and a night off. Other times he will do couple sets of 3 nights on with the night off. Sometimes he will do 4 nights in a row or just do one night and a night off. In the winter he doesn't like to hook up during a snow storm so that would be a time to change the schedule!!!
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Hubby changes his schedule depending on what we are doing. Sometimes he will do a couple of weeks where he does 2 nights and a night off. Other times he will do couple sets of 3 nights on with the night off. Sometimes he will do 4 nights in a row or just do one night and a night off. In the winter he doesn't like to hook up during a snow storm so that would be a time to change the schedule!!!
This is probably what we would do (minus the snow storms, of course -- we don't get many of those in southern NC). Ahhh, the flexibility of home hemo.
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Awesome news Petey. Rob does 5 does and loves the flexibility that extra day gives him. Doing home hemo is the way to go, like Marvin, Rob feels soo much better and has way more energy.
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You can never have too much dialysis. remember your kidneys work 24 hours a day. Dialysis is only a few hours. Even though your Kt/V may be aveerage, does not mean your are receiving optimal dialysis. You must look at other labs such as potassium, BUN and phosphorus.
A Kt/V of 2.4 is an average number. Some centers like to see this number in the 3-5 range. Mine is currently 3.8 on NxStage with 3 hour treatments 6 days per week.
There are some slides and other files at www.nxstageusers.com/files that are very useful and describe the difference between, short term, nocturnal, and 3 day dialysis. I believe they also may have some good links in the forum area too.